Go back to the Arachnoid Cyst Awareness Organization's main website

Go to Arachnoid Cyst Awareness Network where over 1400 people are all dealing with arachnoid cysts

Click here to sign the petition if you haven't already done so.

We have signatures here from all over the world, we urge you to use the google translate application to see what everyone has written. It really is something special that people have come together from many different countries for one cause--Arachnoid Cyst Awareness! If we have discovered anything since the petition began, it is that we are not alone, there are so many suffering from the same illness, and there are so many being turned away from hospitals because the medical communities around the world do not understand the way these cysts work.

The Arachnoid Cyst Petition was started by ACA Organization on January 25,2010 and reached its goal of 1,000 signatures on April 5, 2010. A letter was sent as promised requesting a meeting to the World Health Organization. To listen to that letter click here.

 

Arachnoid Cyst Awareness Petition:

(Will be updated weekly, so don't worry if your name isn't appearing right away.)

Petitioners so far:

#1
Name: Dia DiCristino on Jan 25, 2010

Comments: All too often arachnoid cyst patients get turned away from hospitals, from doctor's offices. This is only because our symptoms are not written anywhere in a medical textbook under "arachnoid cyst". This needs to change, we shouldn't be turned away when we are trying to get help! Some of us here can no longer work because of increased debilitating symptoms. Some of us have become severly disabled and can't even do the day to day things most people take for granted. These cysts cause symptoms, and depending on their location, the symptoms can be of a wide variety. We are not making them up, they aren't in our heads, and we need doctors that will listen to us instead of second-guessing us! Location: USA and UK


# 2
Name: Gemma DiDonato on Jan 25, 2010 Location: UK

# 3
Name: Shayla Rogers on Jan 25, 2010 Location: London, UK

# 4
Name: Michael DiCristino on Jan 25, 2010 Location: Philadelphia, PA, USA

# 5
Name: Melissa Smyth on Jan 25, 2010
Country: United States
State: Idaho

# 6
Name: Martina DiDonato on Jan 25, 2010
Country: UK
State:
Do you have an arachnoid cyst?: no, my cousin does


# 7
Name: Martin Gardot on Jan 25, 2010
Country: France
Do you have an arachnoid cyst?: yes


# 8
Name: Shannon Gardot on Jan 25, 2010
Country: France
Do you have an arachnoid cyst?: My husband does


# 9
Name: Michele Kaplan on Jan 25, 2010
Country: United States
State: New York


# 10
Name: MaryBeth Godlewski on Jan 25, 2010
Country: United States
State: Pennsylvania
Do you have an arachnoid cyst?: no


# 11
Name: David Gregory on Jan 25, 2010
Country: United Kingdom

# 12
Name: Franny DiDonato on Jan 25, 2010
Country: United Kingdom
Do you have an arachnoid cyst?: no


# 13
Name: Katie Thiel French on Jan 25, 2010
Country: United States
State: Tennessee
Do you have an arachnoid cyst?: YES


# 14
Name: Job Smyth on Jan 25, 2010
Country: United States
State: OK
Do you have an arachnoid cyst?: No


# 15
Name: Richard French on Jan 25, 2010
Country: United States
State: Tennessee
Do you have an arachnoid cyst?: no


# 16
Name: Brandy Burns-Carey on Jan 25, 2010
Country: United States
State: Massachusetts
Do you have an arachnoid cyst?: No former classmate of a friend whos daughter has it.


# 17
Name: Aren Dilucente on Jan 25, 2010
Country: United States
State: Florida
Do you have an arachnoid cyst?: no


# 18
Name: Philip on Jan 25, 2010

# 19
Name: Mary Gardot on Jan 25, 2010
Country: France

# 20

Name: Debbie Stock on Jan 25, 2010
Country: UK

# 21
Name: Cindy Schneider on Jan 25, 2010
Location: Indiana, USA [ I am signing on behalf of my son who was diagnosed at age 9 with a left temporal lobe AC.]

# 22
Name: Mia Burke on Jan 25, 2010
Location: Cincinnati, OH
Comments: This is a common disorder which deserves treatment other than psychotropic drugs which have little effect. We need research into boi-medical treatment and boi-feedback treatment. Thank You!

# 23
Name: Rick Steinhauser on Jan 25, 2010
Location: Baltimore, MD
Comments:

# 24
Name: Helena Pereira on Jan 25, 2010
Location: London, England
Comments: It is already bad enough to suffer from this disease/syndrome; with no help/recognition from doctors - it's unbearable ! This needs to change!

# 25
Name: Christine Taylor on Jan 25, 2010
Location: UK
Comments: Hoping for further research into this delicate health issue.........

# 26
Name: Jennifer Bromagen on Jan 25, 2010
Location: USA
Comments: I have an Arachnoid Cyst and I support this petition.

# 27
Name: Angela Tambrella on Jan 25, 2010
Location: Santa Fe Texas
Comments: I would be happy to help you guys out!!

# 28
Name: gabriela osorio on Jan 25, 2010
Location: Tegucigalpa, Honduras
Comments: Hi i have a posterior fossa cyst. I wish this illness catalogued as rare would be more studied.There are tons of us with this problem.

# 29
Name: Angela Waalkes on Jan 25, 2010
Location: Tegucigalpa, HondurasMichigan
Comments:

# 30
Name: Marybeth Vanihel on Jan 25, 2010
Location: NYC
Comments: For a friend.

# 31
Name: Sarah Frank on Jan 25, 2010
Location: Jackson Heights, NY
Comments:

# 32
Name: Shamida Rehman on Jan 25, 2010
Location: Ontario, Canada
Comments: Attitudes need to change in order for AC sufferers to get the help they need from their Primary Care Physicians. If their PCP's believe that 'it's all in your head' and they treat you with indifference, how likely are they to refer you to a doctor and/or specialist who will be able to help you? The answer: Not likely at all!!

# 33
Name: Mark Fullera on Jan 25, 2010
Location: uk
Comments:

# 34
Name: Royalyn Hayes on Jan 25, 2010
Location: Beloit, Kansas USA
Comments: So many people need and deserve to be on Social Security because they can not function well enough to work or go to school fulltime whether it be Elementary, High School, or College. Please help us!!!!!!

# 35
Name: Marisol Febles, Ph.D. on Jan 25, 2010
Location: Perth Amboy, NJ
Comments:

# 36
Name: Ms Sharon Ryan on Jan 25, 2010
Location: Wales, UK
Comments: I am the mother of a 7 yr old son with a large arachnoid cyst on the left temporal lobe.

# 37
Name: Julie Epple on Jan 25, 2010
Location: New York
Comments: Mom to Tyler 12, arachnoid cyst diagnosed at age 5

# 38
Name: Brenda S Gibson on Jan 25, 2010
Location: Purcell OK
Comments: Diagnosed with Arachnoid Cyst 2-2007

# 39
Name: Marianna Hunter on Jan 25, 2010
Location: Philadelphia, PA USA
Comments:

# 40
Name: Bridget Porter on Jan 25, 2010
Location: Atlanta, Georgia...USA
Comments:

# 41
Name: chris morton on Jan 25, 2010
Location: northumberland, uk
Comments:

# 42
Name: Bill Nagle on Jan 25, 2010
Location: White Plains, NY
Comments: 25 year survivor of 2 shunt operation for 3rd ventricle cyst

# 43
Name: Deni Chiccini on Jan 25, 2010
Location: Pennsylvania, USA
Comments: Parents should be made aware of this complication as my child was diagnoised with a lazy eye when in fact 12 years later it was an arachnoid cyst that was causing her health problems. Then the surgeries really messed up her motor skills. Doctors should be more knowledgeable and parents also and people as a whole in general.

# 44
Name: Joaquim Arnaldo Pereira on Jan 25, 2010
Location: Lisboa, Portugal
Comments: We can!!!!!!!!!!!!!!!!!!!!

# 45
Name: Sandra Pereira on Jan 26, 2010
Location: Portugal
Comments:

# 46
Name: Natacha da Luz on Jan 26, 2010
Location: Switzerland
Comments:

# 47
Name: Varghese on Jan 26, 2010
Location: Kuwait
Comments: A broad research is highly required on Arachnoid Cyst. Human went to moon and trying to go to Mars it is unfortunate to say that human in earth are having unsettled problems , our doctors ,scientist advanced in several field but not in Brain related ailments.

# 48
Name: Julie Duffy on Jan 26, 2010
Location: UK
Comments: Its not all in our heads, our symtoms!! its real, please take note, that millions of other suffers can not be all wrong!!!!!!!!

# 49
Name: Jade Lucas on Jan 26, 2010
Location: UK
Comments: what we need is awareness. A miracle cure may not be on the cards as of yet but just some knowledge to people around will maybe inspire individuals to look for that answer. Awareness isn't asking for much.

# 50
Name: Lisa Shirley Reece on Jan 26, 2010
Location: Hodges, South Carolina
Comments:

# 51
Name: Gladys West on Jan 26, 2010
Location: Michigan
Comments:

# 52
Name: Pat Cardwell on Jan 26, 2010
Location: Loveland, OH
Comments:

# 53
Name: Johanna Bellaiche on Jan 26, 2010
Location: New Jersey, USA
Comments: I hope we will finally be heard and taking more seriously on this matter as much financially as emotionally...Please everyone be supportive...

# 54
Name: Mark Wheeler on Jan 26, 2010
Location: Flushing Michigan USA
Comments: Let the truth be know and set you free! We are NOT making this up!

# 55
Name: Mark Collings on Jan 26, 2010
Location: Salem, NH
Comments:

# 56
Name: Laura Dawn Lennon on Jan 26, 2010
Location: Chicago IL
Comments: I have lived in pain 24/7 for the last 5 years. I have lost my physical health and then the icing on the cake had doctors tell me that the arachnoid cyst that suddenly showed up on my MRI since June 2004 was most likely there all along just not mentioned on prior brain MRI's before this due to it is considered incidental. Although it showed up on the brain MRI's approximately the same time my physical symptoms became unbearable. The medical profession ruled it incidental, although they had no other explanation for my deteriorating health

# 57
Name: Cherish on Jan 26, 2010
Location: Potsdam, Germany
Comments: I have a friend with one of these cysts in her brain and it affects her life a lot, whether or not that is acknowledged.

# 58
Name: Kimberly Bell on Jan 26, 2010
Location: Rochester, NY
Comments:

# 59
Name: Chad Gierlich on Jan 26, 2010
Location: USA
Comments: I understand the importance and need for this research.

# 60
Name: Sherry Rashid on Jan 26, 2010
Location: Oklahoma City, OK
Comments:

# 61
Name: Kristal Norris on Jan 26, 2010
Location: Florida
Comments: I have a friend in OK who has this. She was diagnosed three years ago this month with it and is a survivor!!

# 62
Name: Gary Starr on Jan 26, 2010
Location: Arizona
Comments:

# 63
Name: Doris Sommers on Jan 26, 2010
Location: Connecticut, USA
Comments:

# 64
Name: Tristan Jaksons on Jan 26, 2010
Location: Alaska, USA
Comments:

# 65
Name: David Milner on Jan 26, 2010
Location: Burlington, Vermont U.S.A.
Comments:

# 66
Name: Lori Lee on Jan 26, 2010
Location: Staten Island, NY USA
Comments:

# 67
Name: Chelsea on Jan 26, 2010
Location: California, USA
Comments: I have a posterior fossa cyst and have been in pain for 2 years. The pain makes everyday things rough. I have had test to rule out everything else but I am not getting help with the cyst because some text book says they do not cause pain.

# 68
Name: Rebecca Dagnall-Moss on Jan 26, 2010
Location: Lancaster, England, UK
Comments: I have been experiencing werid sensations, back pain, head pain and balance problems for 10 years and just found out I have arachnoid cysts.

# 69
Name: Gordon Armstrong on Jan 26, 2010
Location: Manchester UK
Comments: living with a person and seeing the suffering they go through daily - lets hope the doctors listen and do something to stop people suffering - and its all due to medical negligence

# 70
Name: Geeta Armstrong on Jan 26, 2010
Location: Manchester UK
Comments: Am so grateful to Dia to start this petition, we do really suffer and its not all in our head!!Please listen to us..

# 71
Name: Dawn Joyce-Reno on Jan 26, 2010
Location: North Carolina
Comments: arachnoid cyst on right side of brain stem have been told that there is nothing they can do for me. Doctors don't think that I should be in as much pain as I am. Have serious headaches in the back of my head that keep me bedridden. Memory has been impaired and horrible dizzy spells added with vomiting in the wee hours of the morning.

# 72
Name: Michael Trepp on Jan 26, 2010
Location: Seattle WA USA
Comments:

# 73
Name: Robert Perrone on Jan 26, 2010
Location: Crystal Lake Illinois, USA
Comments:

# 74
Name: David Taylor on Jan 26, 2010
Location: Philadelphia, PA, USA
Comments:

# 75
Name: J.A. Ditmer on Jan 26, 2010
Location: Ohio, USA
Comments:

# 76
Name: Vickie Burkett on Jan 26, 2010
Location: panama city Florida, USA
Comments: this is a serious issue that docotrs and the world needs to research and understand that people with this truly do suffer all the time.

# 77
Name: Tamara Hauser on Jan 26, 2010
Location: El Cajon, Ca, USA
Comments:

# 78
Name: Jan Brooks on Jan 26, 2010
Location: Australia
Comments: My wish is for everyone who has an arachnoid cyst to get the help they need, like I was lucky to get!

# 79
Name: peter nobel on Jan 26, 2010
Location: New Milford CT, USA
Comments: My daughter-in-law has been going through hell tring to find someone who knows about this and can treat it.

# 80
Name: Elizabeth Norris on Jan 26, 2010
Location: Hickory, NC
Comments: I am big on spreading awareness!

# 81
Name: Kara Rayner on Jan 26, 2010
Location: Leeds, UK
Comments:

# 82
Name: Jennifer Clarke on Jan 26, 2010
Location: Dorking, UK
Comments: I LOVE JADE LUCAS

# 83
Name: Sue Skinner on Jan 26, 2010
Location: Leicestershire, UK
Comments:

# 84
Name: Mike Horton on Jan 26, 2010
Location: Surrey, London, UK
Comments:

# 85
Name: Krissy Lantz on Jan 26, 2010
Location: New Jersey, USA
Comments:

# 86
Name: Jennifer Bechard on Jan 26, 2010
Location: Northville, MI, USA
Comments: "There's nothing that can't be done, if we raise our voice as one."

# 87
Name: Anna on Jan 26, 2010
Location: United Kingdom
Comments: Help needs to be given

# 88
Name: Jason Ebane on Jan 26, 2010
Location: United Kingdom
Comments:

# 89
Name: Sam on Jan 26, 2010
Location: United Kingdom
Comments:

# 90
Name: James R Gatesman Jr on Jan 26, 2010
Location: Marion, OH USA
Comments: I don't have a cyst myself, but Hydrocephalus has dogged me all my life.

# 91
Name: Becca Becca on Jan 26, 2010
Location: UK
Comments:

# 92
Name: Trish Fripp on Jan 26, 2010
Location: Gatwick, UK
Comments:

# 93
Name: Casssandra Thew on Jan 26, 2010
Location: New York, NY, USA
Comments:

# 94
Name: Monica Ferrante on Jan 26, 2010
Location: Cleveland, OH, USA
Comments:

# 95
Name: Kelsi Curran on Jan 26, 2010
Location: Scranton, USA
Comments:

# 96
Name: Tess Stone on Jan 26, 2010
Location: Scranton, USA
Comments:

# 97
Name: Eric Glenn on Jan 26, 2010
Location: Stroudsburg, PA, USA
Comments:

# 98
Name: Susan Stone on Jan 26, 2010
Location: East Stroudsburg, PA, USA
Comments:

# 99
Name: Dana Reese on Jan 26, 2010
Location: Fleetvile, Pennsylvania USA
Comments:

# 100
Name: Karen Anderson on Jan 26, 2010
Location: Tunkhannock, PA, USA
Comments: Please take notice of this issue so many suffer from this affliction.

# 101
Name: Morgan Curran on Jan 26, 2010
Location:factoryville, PA, USA
Comments:

# 102
Name: Susan on Jan 26, 2010
Location:Massachusetts USA
Comments: Daughter Hayley, 5 yo has the AC

# 103
Name: Jessica Lynn Argondiza on Jan 26, 2010
Location:Philadelphia, PA, USA
Comments:

# 104
Name: Brianna Smarkusky on Jan 26, 2010
Location:Nicholson, USA
Comments: Please help them(: my best friend has it and no one knows what it really is and how to deal with it..help us make it known!!!

# 105
Name: Beverly Sales on Jan 26, 2010
Location:Oklahoma, USA
Comments:

# 106
Name: Kathy Curran Taylor on Jan 27, 2010
Location: Moosic PA, USA
Comments: For my 15 yr old niece, find a cure

# 107
Name: Mark Wheeler on Jan 27, 2010
Location: Michigan, USA
Comments: we may be sick but we can still vote. Please help some or most of us can not function! We need SSI!

# 108
Name: Jackie Lampey on Jan 27, 2010
Location: West Sussex, UK
Comments: Seen the impact on life of a friend of mines daughter, so hard, wanna help !

# 109
Name: Karen Podella on Jan 27, 2010
Location: Twin Lakes, WI, USA
Comments:

# 110
Name: Michael Levy on Jan 27, 2010
Location: RCHSD - UCSD, USA
Comments:

# 111
Name: Andrew Herrick on Jan 27, 2010
Location: Reigate, UK
Comments: Every signature counts.

# 112
Name: Lisa Warburton on Jan 27, 2010
Location: London, UK
Comments: Good work on raising awareness

# 113
Name: Teri Vaughn on Jan 27, 2010
Location: Anaheim, CA, USA
Comments: I have an AC and known about it since 1983. i experience headaches, cervical spine probs but to my doctors it's all in my head....WELL KNOW KIDDING!!! Mine is quite large(lemon in size) and share symptoms with others having same problems. I am almost 53 yrs old and no one seems to give a darn. Maybe this petition will help in some way.

# 114
Name: May Aaron on Jan 27, 2010
Location: Redhill
Comments:

# 115
Name: Roy Aaron on Jan 27, 2010
Location: Redhill, Surrey, UK
Comments:

# 116
Name: Linda Frabousky on Jan 27, 2010
Location: Scranton, PA, USA
Comments:

# 117
Name: Genevieve Daniels on Jan 27, 2010
Location: Craven County, NC, USA
Comments: My son was seen by countless doctors who diagnosed him with tension headaches, poor diet, and dehydration... I was told by the school nurse of that he had the classic symptoms of intracranial hypertension. I brought this up to a doctor and I was laughed at. Just a week after his symptoms started he had CT scan, then another week later an MRI w/ contrast. It had shown that he had an AC left temporal fossa. Despite this finding every neurologist and neurosurgeon had told me that it wasn't the cyst causing his problems. I kept asking more testing to be done and I was denied, they'd rather put him on migraine, nausea, and even blood pressure medication and dope him up on pain killers. A month later an opthalmologist found evidence of intracranial hypertension. He had neurosurgery the next day because his cyst had enlarged since the scans were done. I wonder why it takes a school nurse to figure out that it was more serious than tension headaches when you have n!
euros that have a "higher" education and seem to be complacent with the concerns of the parent . My son no suffers from papilladema, strabismus, and possible nerve damage to his eyes because it took so long to correct it. There needs to be raised awareness in neurosciences about these cysts, textbook changes, or whatever it takes. All too common do I hear that these cysts aren't harmful, but yet I've talked to more patients than doctors who say that the cyst was the cause.

# 118
Name: Nelly Samat on Jan 27, 2010
Location: Ensuès, France
Comments:

# 119
Name: Nichole Nye on Jan 27, 2010
Location: Clarks Summit, USA
Comments:

# 120
Name: Sandy Yannatell on Jan 27, 2010
Location: Philadelphia, PA , USA
Comments:

# 121
Name: Maria Alejandra Toribio on Jan 27, 2010
Location: Rockville, Maryland, USA
Comments: Please raise awareness, I have a friend diagnosed with it and the insurance company does not do much about it!

# 122
Name: Tilo Springs on Jan 27, 2010
Location: New York, New York, USA
Comments:

# 123
Name: Shiri Betzalel on Jan 27, 2010
Location: North Jersey, USA
Comments:

# 124
Name: Gena Ciotto on Jan 27, 2010
Location: Philadelphia,PA USA
Comments:

# 125
Name: Kristina Nye on Jan 27, 2010
Location: New Albany, Pennsylvania USA
Comments: I love the Curran's!!

# 126
Name: Stephanie Hill on Jan 27, 2010
Location: Tampa, Florida USA
Comments:

# 127
Name: Maria Shockey on Jan 27, 2010
Location: LA, CA USA
Comments:

# 128
Name: Susan Curran on Jan 27, 2010
Location: Factoryville, PA USA
Comments: My daughter, Morgan, had a large arachnoid cyst removed from her left parital lobe in july 2009 at Hershey Medical Center, Hershey PA.

# 129
Name: Denise Bechard on Jan 27, 2010
Location: Michigan USA
Comments:

# 130
Name: Sue Glacken on Jan 27, 2010
Location:Scranton, PA USA
Comments:

# 131
Name: Aimee Bartelson on Jan 27, 2010
Location:WI, USA
Comments:

# 132
Name: MitchellLynn McElwee on Jan 27, 2010
Location: Nicholson, PA USA
Comments: In support of Morgan Curran

# 133
Name: Maria Woehr on Jan 27, 2010
Location:New Jersey USA
Comments:

# 134
Name: Kenneth Epple on Jan 27, 2010
Location: New York USA
Comments: Dad to Tyler, 12, diagnosed at age 5

# 135
Name: Holly Watts on Jan 27, 2010
Location: Alicante, Spain
Comments:

# 136
Name: Mark McDermott on Jan 27, 2010
Location: Dublin, Ireland
Comments:

# 137
Name: Magaly Febus Ortiz on Jan 27, 2010
Location: San Juan, Puerto Rico
Comments:

# 138
Name: Marcelle Walczuk on Jan 27, 2010
Location:New York USA
Comments:

# 139
Name: James V. Bruno on Jan 27, 2010
Location: New Brunswick, NJ, USA
Comments:

# 140
Name: Nina Baumstein on Jan 27, 2010
Location: Wantagh, NY, USA
Comments:

# 141
Name: Laura Evans on Jan 27, 2010
Location: Levittown, NY USA
Comments: Friend of Tyler Epple age 12 diagnosed age 5

# 142
Name: Louis Bernardo on Jan 27, 2010
Location: Cape Town, South Africa
Comments:

# 143
Name: Bethany Murphy on Jan 27, 2010
Location: Olive Branch, MS USA
Comments: My 13 month old son has an arachnoid cyst that was diganosed prenatally. He has had 5 brain surgeries including a shunt placement and 3 revisions. There needs to be more awareness about the debilitating effects of these cysts!!!

# 144
Name: Patty Hopkins on Jan 27, 2010
Location: Penticton USA
Comments: I have been living with my cyst for most of my life, I believe it is the case of alot of my health issue's,my doctor's disagree, we need to make them more aware.....

# 145
Name: Jennifer Snyder on Jan 27, 2010
Location: Grand Prairie, TX USA
Comments:

# 146
Name: Tracy Beck on Jan 27, 2010
Location: Forest Grove OR USA
Comments:

# 147
Name: JANA REINECKE on Jan 27, 2010
Location: South Africa
Comments: hereby I SIGN THE PETITION

# 148
Name: William fisher on Jan 27, 2010
Location: Edgewater, New Jersey USA
Comments:

# 149
Name: Joyce Louie on Jan 27, 2010
Location: New York USA
Comments: To support awareness.

# 150
Name: Trish Kelly on Jan 27, 2010
Location: Inwood NY USA
Comments:

# 151
Name: Paul Kustek on Jan 27, 2010
Location: Seaford, NY USA
Comments:

# 152
Name: Steven Lee on Jan 27, 2010
Location: watford,hertfordshire.UK
Comments: hopefully this will help all those who are suffering.

# 153
Name: Diana Iaccarino on Jan 27, 2010
Location: Brigantine, NJ USA
Comments: spreading the word around

# 154
Name: Sharon Peters-Gentles on Jan 27, 2010
Location: New York, NY USA
Comments:

# 155
Name: Anthony Vona JR on Jan 27, 2010
Location: PHILADELPHIA,PA USA
Comments:

# 156
Name: Debbie Traenkle on Jan 27, 2010
Location: Levittown, USA
Comments:

# 157
Name: Chris Rugg on Jan 27, 2010
Location: Taunton, Somerset, UK
Comments: I had a shunt for an arachnoid cyst on my left frontal lobe in 1987. Now 23 years on I still have a cyst on my left frontal lobe. Neurologists do not seem to believe that the pain, tiredness and general malaise which often affect me, can be caused by an arachnoid cyst. I am also an epileptic and even though this is controlled I am convinced that the root cause is the cyst. It is time that the medical professions of all countries recognised the arachnoid cyst for what it is. A serious illness!

# 158
Name: Lori Lofaro on Jan 27, 2010
Location: Levittown, NY USA
Comments: Friend of Tyler Epple,age 12, diagnosed at age 5 with arachnoid cyst.

# 159
Name: Trina Madonia on Jan 27, 2010
Location: Nashville, TN USA
Comments:

# 160
Name: Donato DiCristino on Jan 27, 2010
Location: Philadelphia, PA USA
Comments: Brother to Dia DiCristino, survivor of 20 surgeries!

# 161
Name: Darlene Carter on Jan 27, 2010
Location: Florida, USA
Comments: Auntie to Dia DiCristino, survivor of 20 surgeries

# 162
Name: Ashley Vona on Jan 27, 2010
Location: Philadelphia, PA USA
Comments:

# 163
Name: Sarah Stein on Jan 27, 2010
Location: New Jersey, USA
Comments:

# 164
Name: Susan Bartkowiak on Jan 27, 2010
Location: Utica, NY, USA
Comments: I was diagnosed with an AC over 9 months ago.

# 165
Name: Georgina Tarry on Jan 27, 2010
Location: Riverside, Ca, USA
Comments:

# 166
Name: karen ross on Jan 27, 2010
Location:
Comments:

# 167
Name: Carmen Vega on Jan 27, 2010
Location: USA
Comments: Even if we are not directly affected with Arachnoid Cysts,I am sure we know someone who is or have heard of it. However many may not realize how serious it is, and that is why it is our duty to bring awareness because it could save someones life. Freinds of Tyler Epple who is twelve years old and was diagnosed at the age of Five. That is a long time to battle with Arachnoid Cysts. Please join us to bring awareness so that people like our friend Tyler can resume a normal life.

# 168
Name: Nicole Barber on Jan 27, 2010
Location: Tunkhannock, PA USA
Comments:

# 169
Name: Angelika Finchum on Jan 27, 2010
Location: Panama City Florida USA
Comments: I would like to see this I battle with this illness for 24 years and not seen a doctor yet what will really listen to me

# 170
Name: Lisa Gordon on Jan 27, 2010
Location: New York USA
Comments: friend of Tyler Epple, age 12, diagnosed at age 5 with an arachnoid cyst

# 171
Name: Daniel Frank on Jan 27, 2010
Location: Chicago USA
Comments: Thank you Dia for starting this petition. You are an inspiration to me. I was diagnosed with dandy walker and arachnoid cyst 5 years ago.

# 172
Name: bonnie armstrong on Jan 27, 2010
Location: castroville texas USA
Comments:

# 173
Name: Kristin Driesbaugh on Jan 27, 2010
Location: Scranton, PA USA
Comments:

# 174
Name: Anna on Jan 27, 2010
Location: West sussex ,England
Comments: A living nightmare

# 175
Name: David Micetic on Jan 27, 2010
Location: Phoenix, AZ USA
Comments: Diagnosed with arachnoid cyst in December 1998. Had it lasered and life is now much better.

# 176
Name: Dolores Cascarino on Jan 27, 2010
Location: Phildelphia, pa. USA
Comments: this is a serious condition and should be recognized as such. Doctors must look for this long before telling someone it's"just in their head".

# 177
Name: Donna Clement on Jan 27, 2010
Location: USA
Comments:

# 178
Name: Cassie Joy on Jan 27, 2010
Location: Florida USA
Comments:

# 179
Name: JESSICA on Jan 27, 2010
Location: california USA
Comments: I have had arachnoid cyst know for almost5 years and the doctors still dont think that they are what are causing my symptoms of sever headaches daily and dizziness all the time. I have way more syptoms but i will leave it at that.I just wish that they would realize that these are real problems that need to be aacknoledged. HOPFULLY WITH ALL OF USE TOGETHERE WE CAN GET THEM TO HEAR USE AND DO SOMETHING TO HELP US. JESSICA AGE 19

# 180
Name: deb peters on Jan 27, 2010
Location: lancashire uk
Comments:

# 181
Name: chris swain on Jan 27, 2010
Location: surrey uk
Comments: I support this x

# 182
Name: Carolyn Tilley on Jan 27, 2010
Location: Ohio USA
Comments:

# 183
Name: Larry Sullivan on Jan 27, 2010
Location: California USA
Comments: Dia, all, keep up the good work and awareness efforts!

# 184
Name: John Welty on Jan 27, 2010
Location: Palm Harbor, Florida USA
Comments: Sufferer of symptomatic arachnoid cysts (multiples).

# 185
Name: renee knyper on Jan 27, 2010
Location: fl. USA
Comments: friend's son, Tyler Epple, now 12 years old - diagnosed at 5 yr with arachnoid cyst.

# 186
Name: lisa gordon on Jan 27, 2010
Location: woodbury USA
Comments: friend of Tyler Epple, age 12, diagnosed at age 5 with arachnoid cyst

# 187
Name: emily taylor on Jan 27, 2010
Location: moosic, pa USA
Comments:

# 188
Name: Angela Stevens on Jan 27, 2010
Location: Philadelphia, PA USA
Comments:

# 189
Name: Michael J. Hadden on Jan 27, 2010
Location: Granitville S.C. USA
Comments: I have had three surgeries this time they installed a shunt.

# 190
Name: Brian Bromagen on Jan 27, 2010
Location: Loveland Ohio, USA
Comments: My wife had the cyst remove last Feb in L.A.

# 191
Name: betsy roberts on Jan 27, 2010
Location: louisville, KY, USA
Comments:

# 192
Name: Tracy Lucas on Jan 27, 2010
Location: Surrey, UK
Comments:

# 193
Name: Tayla Lucas on Jan 27, 2010
Location: Horley, UK
Comments:

# 194
Name: Lee Lucas on Jan 27, 2010
Location: Horley, UK
Comments:

# 195
Name: Carly Lucas on Jan 27, 2010
Location: merstham, UK
Comments:

# 196
Name: Steve Lucas on Jan 27, 2010
Location: surrey, UK
Comments:

# 197
Name: Gary on Jan 27, 2010
Location: Brooklyn, NY USA
Comments: Someone I love very much has an arachnoid cyst..hoping that this nasty little thing can be eliminated one day.

# 198
Name: macie lucas on Jan 27, 2010
Location: horley, UK
Comments:

# 199
Name: Josh Eikov on Jan 27, 2010
Location: Pennsylvania- USA
Comments:

# 200
Name: Tom Dieter on Jan 27, 2010
Location: Middleburg,PA USA
Comments:

# 201
Name: shannon cooper on Jan 27, 2010
Location: san antonio USA
Comments: For my dear friend Bonnie...and her daughter Barbie

# 202
Name: Margaret Janicki on Jan 27, 2010
Location: Brooklyn, NY USA
Comments:

# 203
Name: Suzanne Decina on Jan 27, 2010
Location: Bellmore, NY USA
Comments: Cousin of Tyler Epple--age 12. Tyler was diagnosed with an arachnoid cyst at age 5.

# 204
Name: Patricia on Jan 27, 2010
Location: philadelphia USA
Comments:

# 205
Name: Amanda Harris on Jan 27, 2010
Location: Milford Ohio USA
Comments: my best friend has been fighting this..... please help.

# 206
Name: Melissa Plumey on Jan 27, 2010
Location: staten Island, NY USA
Comments:

# 207
Name: holly tighe on Jan 27, 2010
Location: tobyhanna, pa USA
Comments:

# 208
Name: Rose Leiter on Jan 28, 2010
Location: Kansas City USA
Comments:

# 209
Name: Deborah Siladie on Jan 28, 2010
Location: St. Petersburg, Florida USA
Comments: This is a health issue I am just learning about and would like to see monies be allocated for the study and research on Arachnoid Cysts causes, prevention and alternative cures.

# 210
Name: Mark Collins D.D.S. on Jan 28, 2010
Location: az USA
Comments:

# 211
Name: Katarina Sloberg on Jan 28, 2010
Location: Lyskeil, Sweden
Comments: I have a son with a AC cyst with symptoms and difficulties. We are have had difficultiies finding support and help for him for 3 years now.

# 212
Name: Gloria Gold on Jan 28, 2010
Location: Moreno Valley, CA USA
Comments: The doctors mistreated my daughter, when she went for help and fluffed her off when she tried to give them some of her own research because of her little boy's constant head pain. They simply 'threw' drugs at him. A second opinion she got from another was even worse. This type of treatment from doctors is unexcusable!

# 213
Name: mike bellaiche on Jan 28, 2010
Location: France
Comments: ok for your petition

# 214
Name: Gloribel Cabrera on Jan 28, 2010
Location: Puerto Rico
Comments:

# 215
Name: Joe Paz on Jan 28, 2010
Location: Coral Gables, FL USA
Comments:

# 216
Name: Kasey W. on Jan 28, 2010
Location: Lakeland FL USA
Comments: Keep up the good fight and we will keep you in our prayers.

# 217
Name: Joshua McMann on Jan 28, 2010
Location: Florida USA
Comments:

# 218
Name: Stephen Dancy on Jan 28, 2010
Location: Live Oak, Fl USA
Comments:

# 219
Name: John Pickett on Jan 28, 2010
Location: Lake City, Fla USA
Comments:

# 220
Name: Mayra Febus on Jan 28, 2010
Location: Puerto Rico
Comments:

# 221
Name: barbara simpler on Jan 28, 2010
Location: Philadelphila pa USA
Comments: please fine a cure

# 222
Name: Fran Stewart on Jan 28, 2010
Location: Australia
Comments:

# 223
Name: Nancy Martin-Mathewson on Jan 28, 2010
Location: Mount Vision, NY USA
Comments: Awareness is needed. My son was diagnosed in 2004, suffers terribly and is unable to work.

# 224
Name: Kathy Partridge on Jan 28, 2010
Location: West Sussex, UK
Comments: I was diagnosed with an arachnoid cyst in 2002. It has been a great impact, not only on my life, but on the lives of others around me, especially my husband who has had to have time off work to look after me. Also I am not able to hold down a job because of the many symptoms I endure.

# 225
Name: Rhonda Metz on Jan 28, 2010
Location: Ingram, TX USA
Comments: Please help those with this condition. It affects not only the life of the afflicted but also the lives of their families. Those with the cysts cannot work or take care of their children. They cannot participate fully as a spouse or friend. Their lives are extremely limited and very unpleasant. Please find funds to research this condition and help those that have become helpless due to this condition.

# 226
Name: Mary Fuentes on Jan 28, 2010
Location: California USA
Comments: have a 5cm aranchnoid cyst in the postera fossa. and a pineal cyst.

# 227
Name: Susan Smyth on Jan 28, 2010
Location: United States
Comments: For my cousin Melissa!

# 228
Name: Jeb Smyth on Jan 28, 2010
Location: MA, USA
Comments: For Melissa my sister

# 229
Name: Roe Polczynski on Jan 28, 2010
Location: Clinton, New York, USA
Comments: My sister suffers from this condition and I don't want anyone else to go through what she has.

# 230
Name: Darlene Kieffaber on Jan 28, 2010
Location: Redding CA USA
Comments:

# 231
Name: Ralph Sica on Jan 28, 2010
Location: Brigantine, NJ USA
Comments: I support this cause.

# 232
Name: Larry Reter on Jan 28, 2010
Location: United States
Comments:

# 233
Name: rachel eremo on Jan 28, 2010
Location: factoryville,PA United States
Comments:

# 234
Name: James Meeks on Jan 28, 2010
Location: United States
Comments:

# 235
Name: Deborah Stone on Jan 28, 2010
Location: Florida, USA
Comments: Good job Dia, keep it up.

# 236
Name: Brian Jenning on Jan 28, 2010
Location: OK, USA
Comments: We need awareness.

# 237
Name: Mary Webster on Jan 28, 2010
Location: OK, USA
Comments:

# 238
Name: Anna Janemark on Jan 28, 2010
Location: Phoenix az USA
Comments:

# 239
Name: Abigale Martin on Jan 28, 2010
Location: Boston USA
Comments:

# 240
Name: Jessica Martin on Jan 28, 2010
Location: Boston MASS USA
Comments:

# 241
Name: Brianna Moson on Jan 28, 2010
Location: Philadelphia, pa. USA
Comments: Join the fight!

# 242
Name: Shawna on Jan 28, 2010
Location: Tampa, FL USA
Comments:

# 243
Name: Kelly Joyce on Jan 28, 2010
Location: Tewksbury, MA USA
Comments:

# 244
Name: Amanda Burnett on Jan 28, 2010
Location: USA
Comments:

# 245
Name: Teagan Decker on Jan 28, 2010
Location: Kansas USA
Comments:

# 246
Name: Valerie Uvino on Jan 28, 2010
Location: Long Island USA
Comments: Friend of Tyler Epple age 12 diagnosed at age 5 with an ararchnoid cyst.

# 247
Name: Laura Grassia on Jan 28, 2010
Location: Pennsylvania USA
Comments:

# 248
Name: Michelle Motherway on Jan 28, 2010
Location: Rolling Meadows, IL USA
Comments: My husband has suffered from seizures (from petite to grand mal) for the past 15 years. As part of a second opinion, he had a CT scan done, where they found an arachnoid cyst on his brain stem. His neurologist said it was benign, so we were told not to worry. Though, we do wonder if it is related at all to the seizures, or if the seizures predisposed him to the cyst. Please establish funding for more research into this "benign" problem.

# 249
Name: Bob Gentry on Jan 28, 2010
Location: Los Angeles USA
Comments: My AC made me sign this ;)

# 250
Name: Nolaisa Cruz on Jan 28, 2010
Location: USA
Comments:

# 251
Name: George T. Richards on Jan 28, 2010
Location: Texas USA
Comments:

# 252
Name: Cheryl on Jan 28, 2010
Location: Texas USA
Comments:

# 253
Name: Ronald Bauer on Jan 28, 2010
Location: Hicksville, NY USA
Comments:

# 254
Name: elouise linfield on Jan 28, 2010
Location: United Kingdom
Comments:

# 255
Name: Lesley Morey on Jan 28, 2010
Location: North Carolina, USA
Comments:

# 256
Name: Kristen Morin on Jan 28, 2010
Location: Canada
Comments:

# 257
Name: Amy Jakeson on Jan 29, 2010
Location: Holiday Fl USA
Comments:

# 258
Name: Kathleen Chiccini on Jan 29, 2010
Location: New Jersey, USA
Comments: I hope and pray that everyone takes a stand and signs this terrible disease. There are many children and older adults that never think they could be the one that someone somewhere could be striken with a devasting disease that no one can find a cure.I am well aware of the fact that my grandson was diagonsed with leukemia at the age of 3 and a half and I have seen enough pain and suffering that I dare not mention. I pray to God that ALL these diseases are no longer in existance so your pain is no longer there and you can live a life that you are entitled to where there is no more pain and hurt and sorrow. I pray that your journey in life is one of happiness and always remember this one thing in your mind-----WHEN ALL OF THE WORLD SAYS NO MORE-HOPE WHISPERS JUST ONE TIME!!!!!! I hope you keep the fight for what you need to have done and make ALL of the people who are unaware of this disease and how it has altered ! your life to learn more and realize how very lucky they have it without being able to live a SO CALLED NORMAL LIFE!!!!! May God Bless you and keep you close and comfort you in all you do.Now I would like to know where do I sign this and if there is anything more I can do to help you in your fight for this cause please let me know.Kathleen Chiccini

# 259
Name: Anthony Chiccini on Jan 29, 2010
Location: New Jersey, USA
Comments: I hope you are successful in all that you do . Be well and keep on fighting for your right to a better life and dont stop until someone listens to your plea for help....Anthony Chiccini. Grandfather to Dia DiCristino

# 260
Name: wendy hilton on Jan 29, 2010
Location: alnwick, northumberland UK
Comments:

# 261
Name: Nikki Lyn McDevitt on Jan 29, 2010
Location: Albrightsville, USA
Comments:

# 262
Name: Marie Smith on Jan 29, 2010
Location: Hicksville, NY, USA
Comments:

# 263
Name: Ryan Gutierrez on Jan 29, 2010
Location: Rockford, Illinois, USA
Comments: It's not all in my head. It's my right temporal Arachnoid Cyst that my doctor says is harmless.

# 264
Name: Roger Kennedy on Jan 29, 2010
Location: NY,NY USA
Comments: Don't worry Dia, we will get 1,000 signatures. Was diagnosed in 2005 with brain stem arachnoid cyst. Rare I'm told, they won't operate, they leave me with disabling symptoms though!

# 265
Name: Teri Morton on Jan 29, 2010
Location: Minnesota,USA
Comments:

# 266
Name: DAVID EVERETT STOWELL on Jan 29, 2010
Location: Lynnwood, WA, USA
Comments: FIX IT!

# 267
Name: judith leeland on Jan 29, 2010
Location: UK
Comments:

# 268
Name: Craig License on Jan 29, 2010
Location: Alnwick, Northumberland, UK
Comments:

# 269
Name: Amy Myers on Jan 29, 2010
Location: Fulton, NY, UK
Comments:

# 270
Name: Maiko Ouchi on Jan 29, 2010
Location: London, UK
Comments:

# 271
Name: Rebecca May on Jan 29, 2010
Location: USA
Comments:

# 272
Name: Pat Cardwell on Jan 29, 2010
Location: Loveland, CO USA
Comments:

# 273
Name: Donald Epple on Jan 29, 2010
Location: USA
Comments: Grandfather to Tyler Epple, 12

# 274
Name: Susan Maddox on Jan 29, 2010
Location: Macon, Georgia, USA
Comments: We need doctors to understand and be able to treat arachnoid cysts in the most helpful and advanced ways - so patients benefit and aren't hurt by disbelief or incorrect treatment

# 275
Name: Marianne Bascelli on Jan 29, 2010
Location: Philadelphia,PA USA
Comments: We all need to help. I have childen what if this was my child.

# 276
Name: Josh DiCristino on Jan 29, 2010
Location: Philadelphia,PA USA
Comments: Brother to Dia DiCristino, survivor of 20 surgeries

# 277
Name: Joseph DiCristino on Jan 29, 2010
Location: Philadelphia,PA USA
Comments: Brother to Dia DiCristino, survivor of 20 surgeries

# 278
Name: Christina Smith on Jan 29, 2010
Location: Texas, USA
Comments: My 2 yr old daughter has an arachnopid cyst. The information available is limited. We are blessed now to have a good neurosurgeon, but I believe it is because she is so young. I would like there to be more people aware of this condition as she grows up so that her concerns are addressed with the imporatnce that they deserve.

# 279
Name: Rebecca Berndt on Jan 29, 2010
Location: Lamar, CO, USA
Comments: I was digonosed with an cyst in 2004. I was told that the only thing that could be done was to drain the liquid off, but there was now guarntee that it would help and besides brain surgry is brain surgry.

# 280
Name: BEATRICE HURTADO on Jan 29, 2010
Location: texas, USA
Comments:

# 281
Name: Judy Gallone on Jan 29, 2010
Location: Pennsylvania, USA
Comments: I watched one human being a quarter of a century become debilitated from an Arachnoid cyst .I witnessed symptoms that are VERY REAL!I listened as doctors let the words "it's all in your head " slip from their mouths .I never gave up the support to find the answers even when it was talking his sight,causing major intercranial pressure ,seizures,neuropathy etc.And now with the internet I know he was never alone . Dia I sign for YOU and Him and everyone of you . ITS REAL !!

# 282
Name: Teresa Bromagen on Jan 29, 2010
Location: Goshen Ohio, USA
Comments: FOR my niece by marriage

# 283
Name: brenda crane on Jan 29, 2010
Location: torre., Spain
Comments: My granddaughter suffers tremendously from this condition

# 284
Name: Harry gardiner on Jan 29, 2010
Location: torre., Spain
Comments:

# 285
Name: lynne williams on Jan 29, 2010
Location: UK
Comments:

# 286
Name: Sam bush on Jan 29, 2010
Location: UK
Comments: My partners sister, Jade, has had 15 surgeries to date in the past 16 months

# 287
Name: Debra Cobb on Jan 29, 2010
Location: kansas, USA
Comments: Thank you for trying to get attention focused on arachnoid cyst my 6 year old grandson has been diagnosed with this and we are all very concerned about the lack of information available and how little is known about this condition.Hopefully the medical community will take notice and encourage more research.

# 288
Name: Amanda on Jan 29, 2010
Location: kansas, USA
Comments:

# 289
Name: Diann Gaffrey on Jan 29, 2010
Location: USA
Comments:

# 290
Name: Jonathan Hare on Jan 30, 2010
Location: Kittery, ME, USA
Comments:

# 291
Name: Monica Tori on Jan 30, 2010
Location: Philadelphia, PA USA
Comments:

# 292
Name: Philip Gregory on Jan 30, 2010
Location: Nottingham, UK
Comments: Let's get to 1,000

# 293
Name: Stephen Granger on Jan 30, 2010
Location: Upper Darbey, PA, USA
Comments: More awareness please!

# 294
Name: Baron Evans on Jan 30, 2010
Location: Wales, UK
Comments: My daughter has this and every hospital we've brought her to turns their backs on us. At the end of the day, we feel neglected and hurt. Why is she being ignored. There is a cyst in her brain! Why is that going overlooked?

# 295
Name: Dawn Carroll on Jan 30, 2010
Location: Southern Illinois, USA
Comments: My fifteen year old daughter was diagnosed with a left temporal lobe arachnoid cyst at the age of six. Doctors have continually and repeatedly disregarded her headaches, dizziness and nausea as a migraine disorder. Neurosurgeons refuse to seriously consider surgical treatments despite clear evidence that my daughter's brain is under pressure. Doctors fail to recognize the fact that persons with AC's typically have the same set of symptoms. They are taught in medical school that AC's are an incidental finding and are asymptomatic. Please help bring awareness to the medical community that THIS IS A SYNDROME...not an incidental finding!

# 296
Name: Bimini Colt on Jan 30, 2010
Location: Canada
Comments: I don't have an arachnoid cyst, but know some who do. I also suffered for years with another "invisible" illness and was often told it was all in my head. That attitude really makes me mad!

# 297
Name: Diane Eaton on Jan 30, 2010
Location: Perris, CA, USA
Comments:

# 298
Name: Travis Walker on Jan 30, 2010
Location: Maryland, USA
Comments:

# 299
Name: J.Daniels on Jan 30, 2010
Location: North Carolina, USA
Comments:

# 300
Name: Martha Johnson on Jan 30, 2010
Location: Denmark
Comments: It is a global problem. Even in Denmark, there are no doctors for this.

# 301
Name: Howard Gold on Jan 30, 2010
Location: Moreno Valley, CA USA
Comments: I'm supporting this cause, mainly for the sake of my grandson who has been diagnosed with arachnoid cyst and is suffering the complications of it. Our family suffers as well, with him.

# 302
Name: Margarite Hunt on Jan 30, 2010
Location: Levittown, NY USA
Comments: I am a friend of Tyler Epple.

# 303
Name: Derek Knudsen on Jan 30, 2010
Location: Vanuatu
Comments: I want to help end the ignorance!

# 304
Name: Iryna on Jan 30, 2010
Location: bloomfield, nj USA
Comments: I hope this will help!

# 305
Name: Leslie Wagner on Jan 31, 2010
Location: bloomfield, nj USA
Comments: Please take the time to recognize that an Arachnoid Cyst (Brain or Spinal Cord) can be very painful. The pain from the cyst can be life changing and your quality of life is basically diminished.

# 306
Name: natalie stewart on Jan 31, 2010
Location: sydney, Australia
Comments:

# 307
Name: Chantel LaPere on Jan 31, 2010
Location: USA
Comments:

# 308
Name: Nabil Benslama on Jan 31, 2010
Location: New York, USA
Comments:

# 309
Name: Darlene kieffaber on Jan 31, 2010
Location: California, USA
Comments:

# 310
Name: Marigold DeSantonio on Jan 31, 2010
Location: Rome, Italy
Comments: Help us

# 311
Name: Jesse Hill on Jan 31, 2010
Location: USA
Comments:

# 312
Name: Rebecca on Jan 31, 2010
Location: Havelock, NC USA
Comments: I have a friend whose son has been suffering for months with the affects of this cyst. He has finally been diagnosed and treated, but the pain of the last few months could have been prevented with an earlier diagnosis.

# 313
Name: Shaun Holly on Jan 31, 2010
Location: USA
Comments:

# 314
Name: Amy Fisher on Jan 31, 2010
Location: Fl, USA
Comments: This has affected one of my friends life in a big way. Her son (Jack) had a AC and they didnt recognize the symptoms. My heart goes out to this tough little boy and the family.

# 315
Name: michelle hoppes on Jan 31, 2010
Location: nc, USA
Comments:

# 316
Name: Ed Thompson on Jan 31, 2010
Location: Billings, MT, USA
Comments: I hope this petition will create the awareness that will help the people suffering from this desease.

# 317
Name: Melissa Ruhl on Jan 31, 2010
Location: California, USA
Comments:

# 318
Name: Jose Carlos Oliveira on Jan 31, 2010
Location: Amora, Portugal
Comments: Hope this will help. My Aunt has two AC's!

# 319
Name: Damon on Jan 31, 2010
Location: USA
Comments: Awareness please!

# 320
Name: Michael Mendenhall on Jan 31, 2010
Location: Salem, Missouri, USA
Comments: This is for the Daniels family. With medical advances the way they are today, there needs to be a resolution to this.

# 321
Name: Elizabeth Gonzalez on Jan 31, 2010
Location: New Jersey, USA
Comments:

# 322
Name: John Ross on Jan 31, 2010
Location: albuquerque, new mexico, USA
Comments:

# 323
Name: Leticia Vallejo on Jan 31, 2010
Location: Moreno Valley, CA, USA
Comments:

# 324
Name: Abby Ciervo on Jan 31, 2010
Location: Philadelphia, PA, USA
Comments: I know two people affected by this and the effects are debilitating. Please help!!!!!!

# 325
Name: Katie Koford on Jan 31, 2010
Location: California, USA
Comments:

# 326
Name: Crystal on Jan 31, 2010
Location: USA
Comments:

# 327
Name: Dante Blakeley on Jan 31, 2010
Location: new york, USA
Comments: Let's get this done and find a way to help raise awareness. I am100% behind you.

# 328
Name: Nicole Schemel on Jan 31, 2010
Location: Perryville, Missouri, USA
Comments: I have an arachnoid cyst, and the state doesn't think I am disabled because of it. I have severe headaches, Dr.s need to know that this is no laughing joke. Some can be critical. We live with it, but can you live with it? It is rough on our bodies to have to deal with the stress, of our congress doesn't think this is anything to be worried about. Why do you think we have groups, its not like it is five people it is many people that have to deal with neurological numbness in their legs, and arms, some can't walk they need a walker, why? And you thought it wasn't anything. We just want to be recognized, this is a major illness that we have. Please help us, by letting us get aid, so it doesn't have to get worse, just because I don't have insurance, I also can't work because of the headaches, Can you go to work with fluid in your head, and it pressing up on your skull, it is the worst feeling ever. It hurts, I wish w! e could give you something to make you feel like you have just one of our headaches. Do you know how many of us stay up at night crying, while you are sleeping calm and without anything wrong with you, we are up crying in pain, and most all dr.s don't want to help us, because it is too much of a rik. Hey we just have this debilating illness, we are ok. NOT.

# 329
Name: lee martinez on Jan 31, 2010
Location: California, USA
Comments: hi, please research arachnoid cysts to educated yourself n others to the oftimes dibilatating symptoms of arachnoid cysts in all its forms and locations. Tho mine is small i do experience mild symptoms compared to the sufferings of those with larger cysts. i pray mine stays small and bearable but there are so many that need validation that its not all in their head so to speak. thank you

# 330
Name: sondra lareau on Jan 31, 2010
Location: NC, USA
Comments:

# 331
Name: Jasmine Dimeriara on Jan 31, 2010
Location: Rome, Italy
Comments: Appreciate this thank you ACA

# 332
Name: Stacy Aouadhi on Jan 31, 2010
Location: Warren, MI USA
Comments: I'm signing this for my friend Gladys West. We grew up together and I recently came back in contact with her and found out that she was "sick". It's a sad shame that someone who is as nice and caring as her is affected by something so bad.

# 333
Name: Sarah Brown on Jan 31, 2010
Location: CA, USA
Comments:

# 334
Name: Marlon Smyth on Jan 31, 2010
Location: OK, USA
Comments: Cousin to Melissa Smyth, suffering from an arachnoid cyst. Thank you Dia and everyone for all you do.

# 335
Name: Alexandra Barr on Jan 31, 2010
Location: Long Island, USA
Comments: Relative of Tyler

# 336
Name: Jessie Max on Jan 31, 2010
Location: NY,NY , USA
Comments: Friend of Gemma. Thank you for this petition!!

# 337
Name: Oliver Jaksons on Jan 31, 2010
Location: Alaska, USA
Comments:

# 338
Name: Mary Kathleen Flynn on Jan 31, 2010
Location: New York, USA
Comments: A friend's fiance has an arachnoid cyst, and it's been very frustrating for them to get so little information.

# 339
Name: SSG Ryan A. Londot, US Army on Jan 31, 2010
Location: St. Joseph, MI, USA
Comments:

# 340
Name: sherry honea on Feb 1, 2010
Location: long beach ca, USA
Comments:

# 341
Name: Linda Stilson on Feb 1, 2010
Location: long beach ca, USA
Comments:

# 342
Name: JULIA GOUW on Feb 1, 2010
Location: San Bernardino, USA
Comments:

# 343
Name: Amogh Rajanna on Feb 1, 2010
Location: Minneapolis, USA
Comments: I had an Posterior fossa arachnoid cyst. it was resected in Dec 2008, by a wonderful neurosurgeon in Omaha, NE. This happened after countless visits to neurosurgeons, neurologists, PCP who all dismissed my symptoms as something which were in my head. Although the pain has gone away after the surgery, the cognitive symptoms remain pretty much the same. I have had to miss graduate school countless number of times due to my sickness. I have had to drop out of grad school & settle for a Masters degree. I sincerely believe this disease needs to get attention from the medical community & the public in general.

# 344
Name: Tiffany Johnson on Feb 1, 2010
Location: Jacksonville, Nc, USA
Comments:

# 345
Name: Donna Block on Feb 1, 2010
Location: Merritt Island, Fl, USA
Comments:

# 346
Name: pat griffith on Feb 1, 2010
Location: Belleville Illinois, USA
Comments: a chain is as strong as it's weakest link - if it affects 1 it effects us all.

# 347
Name: Stephen Sumpter on Feb 1, 2010
Location: Loveland Ohio, USA
Comments: My Mom has one. It SUCKS.

# 348
Name: Amanda Kerman on Feb 1, 2010
Location: Brampton, ON, Canada
Comments:

# 349
Name: L. Kerman on Feb 1, 2010
Location: Canada
Comments: My daughter has this condition and it seems that the medical profession needs more research completed in this area so that they can see clearly that this condition affects behavior and is related to the clinical signs that she is experiencing.

# 350
Name: charlotte stevens on Feb 1, 2010
Location: riverside, CA, USA
Comments: It has impacted the life of a friend of mine in a devestating way.

# 351
Name: Mary Perrone on Feb 1, 2010
Location: Crystal Lake, IL, USA
Comments: My 4 Year Old Son Has A Posterior Fossa Arachnoid Cyst.

# 352
Name: Heather Hamel on Feb 1, 2010
Location: Leawood, Kansas, USA
Comments:

# 353
Name: Jeff May Jr. on Feb 1, 2010
Location: Moreno Valley, CA, USA
Comments:

# 354
Name: Shari Duong on Feb 1, 2010
Location: Yuma,AZ, USA
Comments: I was not aware of it at all until it happend to a friends son of mine.

# 355
Name: Stephanie gonzales on Feb 1, 2010
Location: California, USA
Comments:

# 356
Name: Lori Matsushita on Feb 1, 2010
Location: Corona, California, USA
Comments:

# 357
Name: Mari Potis on Feb 1, 2010
Location: Scranton, PA, USA
Comments:

# 358
Name: Ron and Barbara Daniels on Feb 1, 2010
Location: Napa,Ca., USA
Comments: Our sgrandson had to have two surgeries because of the cyst

# 359
Name: Dean Anderson on Feb 1, 2010
Location: Canada
Comments:

# 360
Name: Terry Whitling on Feb 1, 2010
Location: Troy, NC, USA
Comments: I suffer from headaches.

# 361
Name: Terry Whitling on Feb 1, 2010
Location: Waterloo, Ontario, Canada
Comments: I have a friend that suffers multiple symptoms.

# 362
Name: K Chomicki on Feb 1, 2010
Location: Canada
Comments:

# 363
Name: Colette Epple on Feb 1, 2010
Location: USA
Comments:

# 364
Name: Nancy deJong on Feb 1, 2010
Location: Milton, Ontario Canada
Comments: My very good friend suffered for years until this was finally diagnosed.

# 365
Name: Patricia Sabbagh on Feb 1, 2010
Location: West Hempstead New York, USA
Comments:

# 366
Name: Gregory Sabbagh on Feb 1, 2010
Location: West Hempstead New York, USA
Comments:

# 367
Name: Rachel Roth on Feb 1, 2010
Location: USA
Comments:

# 368
Name: Sue Wilson on Feb 1, 2010
Location: new york, USA
Comments:

# 369
Name: Sue Wilson on Feb 1, 2010
Location: new york, USA
Comments: Friends with Tyler Epple's family

# 370
Name: Fred Smyth on Feb 1, 2010
Location: OK, USA
Comments: Want to say a big thank you to Arachnoid Cyst Awareness and Dia for starting a petition solely for arachnoid cysts. You are an ace organization and you do great work. They helped my sister get to her doctor by giving her money for gas costs. Enough isn't said about the good work you do at aca. Thank you kindly!

# 371
Name: Bonnie Moskowitz on Feb 1, 2010
Location: Bayside, New York, USA
Comments:

# 372
Name: Jennifer Jespersen on Feb 1, 2010
Location: Southern New Jersey, USA
Comments: My 4 year 9 month old daughter has a massive, bi-lateral, suprasellar arachnoid cyst. She had surgery in Oct. 2008 to alleviate the ICP. They ended up shunting it and so she is now shunt dependant. She had 2 shunt revisions in March 2009. Because of this cyst, she has been diagnosed w/ epilepsy, developmental delay, sensory integration disorder, and autism spectrum disorder. I do an amazing job of advocating, educating, shuffling her to therpay, contacting teachers, doctors, therapists, child study team members, etc...I'm just having a hard time understand what's happening on a daily basis w/ her mal behaviors, aggression and pain. I live my life at the precipe of a cliff, waiting for someone to tell me it's ok to climb down.

# 373
Name: Janice Hili on Feb 1, 2010
Location: Levittown, NY, USA
Comments: Friend of Tyler Epple

# 374
Name: Melissa Ballantine on Feb 1, 2010
Location: Guelph, Canada
Comments:

# 375
Name: Sabine Irene Thompson on Feb 1, 2010
Location: Canada
Comments:

# 376
Name: Jessica Gibbs on Feb 1, 2010
Location: Canada
Comments:

# 377
Name: Pauline Barnable on Feb 1, 2010
Location: Canada
Comments: Thank you ACA for all you do! Awareness!!

# 378
Name: Joanne Shickler on Feb 2, 2010
Location: queens - new york, USA
Comments:

# 379
Name: Michelle Wasyluk on Feb 2, 2010
Location: Canada
Comments: A friend of mine has an arachnoid cyst - she went through many difficult times trying to get someone to believe her symptoms were indeed real. She did not get the support she needed when she needed it most. No one should have to go through what she went through.

# 380
Name: Anita Gribben on Feb 2, 2010
Location: Canada
Comments: Friend of Tyler Epple & Family

# 381
Name: Paul Teixeira on Feb 2, 2010
Location: Levitown NY, USA
Comments:

# 382
Name: Kelly Laverty-Pagnan on Feb 2, 2010
Location: Guelph, Ontario, Canada
Comments: I believe that the burden of proof shouldn't full upon those who are reaching out for help with an illness. More support should be given to those in need by the community and it's health care professionals.

# 383
Name: Kelli Lawyer on Feb 2, 2010
Location: USA
Comments: Our family friend's son Tyler Epple.

# 384
Name: Jessica Lam on Feb 2, 2010
Location: Canada
Comments:

# 385
Name: Maggie Kalen on Feb 2, 2010
Location: Toronto,Canada
Comments: I have a friend with this problem and know of the pain that it has caused her and also the difficulty with diagnosis.

# 386
Name: Colleen Kuhn on Feb 2, 2010
Location: PA. USA
Comments: Cousin to Dia DiCristino

# 387
Name: Kim Locke on Feb 2, 2010
Location: Brampton, Ontario, USA
Comments:

# 388
Name: Natalie Trout on Feb 2, 2010
Location: Philadelphia, PA, USA
Comments: Cousin to Dia DiCristino

# 389
Name: MOAMAR ELKURDI on Feb 2, 2010
Location: SYDNEY AUSTRALIA
Comments: IT HAS DEVASTED MY LIFE.YOU DONT KNOW HOW ITS GONA GO.IT FEELS LIKE A DEATH SENTENCE EVERY DAY.

# 390
Name: Christopher Schulz on Feb 2, 2010
Location: Philadelphia, PA USA
Comments:

# 391
Name: Nihar Jindal on Feb 2, 2010
Location: Minneapolis, Mn USA
Comments:

# 392
Name: Tony Dey on Feb 2, 2010
Location: New York, USA
Comments:

# 393
Name: Jami Shickler on Feb 2, 2010
Location: USA
Comments: Cousin Of Tyler Epple (12years old)

# 394
Name: Jessi Pallister on Feb 2, 2010
Location: Brampton, Ontario Canada
Comments:

# 395
Name: Art Mathewson on Feb 2, 2010
Location: Upstate NY, USA
Comments: Son suffers with a posterior fossa arachnoid cyst and arachnoiditis of the lumbar region.

# 396
Name: Sheila Knox on Feb 2, 2010
Location: Philadelphia, PA, USA
Comments:

# 397
Name: Matt Montero on Feb 2, 2010
Location: amarillo, tx, USA
Comments: I had an arachnoid cyst in the middle of my brain found in march of 2006. I was at work having what I thought were migrains, I went home early. Later that night I asked my wife to take me to the ER they said it would be 4-6 hr wait. I kept going to the bathroom cause I thought I was going to throw up. The ER nurses saw I was looking bad and got a neurosugeon on staff to come down. He did an MRI and my wife said he paniced. I had a cyst about the size of a ping pong ball. He drilled a hole in my head to relieve the pressure, then he removed the cyst I have a scar in the shape a C on the top of my head. I was in the hospital about 5-6 wks. I lost the use of the left side of my body I had to do alot of physical therapy, cognative therapy, occupational thereapy. I still get alot of pain in my head, stiff neck, achy back and shoulders. My memory is not to good, I feel different also now.

# 398
Name: Philippa on Feb 2, 2010
Location: London, England UK
Comments:

# 399
Name: Sally Fosters on Feb 2, 2010
Location: Nottingham, UK
Comments: What do we want? AWARENESS! What do we need? AWARENESS NOW! How do we get it? By signing this!! Thank you Arachnoid Cyst Awareness for your petition.

# 400
Name: Marcus Fosters on Feb 2, 2010
Location: Nottingham, UK
Comments: Do you know how many illnesses arachnoid cysts can be connected with? E.G. my wife is on pain killers, which in turn can kill her liver and stomach gradually overtime. Doctors need to get to the bottom of this disease before it causes another disease!

# 401
Name: Deborah DiDonato on Feb 2, 2010
Location: Essex, UK
Comments: signing for my cousin Gemma and her friend Dia.

# 402
Name: Nikki on Feb 2, 2010
Location: Philadelphia, PA USA
Comments:

# 403
Name: CARLY GIUNTA on Feb 2, 2010
Location: Philadelphia, PA USA
Comments: Friend of Dia DiCristino

# 404
Name: CAROL MCGOLDRICK on Feb 2, 2010
Location: Philadelphia, PA USA
Comments: Friend of Dia DiCristino

# 405
Name: Julie O'Bannon on Feb 2, 2010
Location: Philadelphia, PA USA
Comments:

# 406
Name: Mackenzie Smeltzer on Feb 2, 2010
Location: Philadelphia, PA USA
Comments:

# 407
Name: Steve Smeltzer on Feb 2, 2010
Location: Philadelphia, PA USA
Comments:

# 408
Name: Sue McClellan on Feb 2, 2010
Location: Philadelphia, PA USA
Comments:

# 409
Name: Courtney Cantz on Feb 2, 2010
Location: Philadelphia, PA USA
Comments:

# 410
Name: Terri Betz on Feb 2, 2010
Location: Philadelphia, PA USA
Comments:

# 411
Name: Michelle Bryant on Feb 2, 2010
Location: USA
Comments:

# 412
Name: Robert Jackson on Feb 2, 2010
Location: USA
Comments:

# 413
Name: Briana Myers on Feb 2, 2010
Location: USA
Comments:

# 414
Name: Markeita Bryant on Feb 2, 2010
Location: USA
Comments:

# 415
Name: Monique Bryant on Feb 2, 2010
Location: USA
Comments:

# 416
Name: Monica Bryant on Feb 2, 2010
Location: USA
Comments:

# 417
Name: Treasure Williams on Feb 2, 2010
Location: USA
Comments:

# 418
Name: Samantha Shmuir on Feb 2, 2010
Location: London, ON Canada
Comments: I have seen the difficulty and suffering my friend went through trying to have her health issues diagnosed. There should be a general awareness of arachnoid cysts in the medical community so that others do not have to go through this...

# 419
Name: Matthew Epple on Feb 2, 2010
Location: USA
Comments: My brother, Tyler has an arachnoid cyst and it upsets me that the medical community does not seem to take this seriously.

# 420
Name: susan brown on Feb 2, 2010
Location: Canada
Comments:

# 421
Name: Barbara Giunta on Feb 2, 2010
Location: Sewell, NJ, USA
Comments:

# 422
Name: Lisa D'Adamo on Feb 2, 2010
Location: Philadelphia, PA, USA
Comments: My cousin Dia has had over 20 surgeries and is a great person and performer. She is only 29 yrs old. This has affected my life cause I lost my daughter and husband and brother and I can not take anymore loss in my family.

# 423
Name: Aimee Schulz-Plarr on Feb 2, 2010
Location: North Wales, PA, USA
Comments:

# 424
Name: Davetta DiCristino on Feb 2, 2010
Location: Pennsylvania, USA
Comments:

# 425
Name: tony dagnall-moss on Feb 2, 2010
Location: cockerham, UK
Comments: my wife is a sufferer and i have seen the effect it has had on her life

# 426
Name: Mandy Crandell on Feb 2, 2010
Location: USA
Comments:

# 427
Name: Kathy Maguffin on Feb 2, 2010
Location: Levittown NY, USA
Comments: Friends of Tyler!

# 428
Name: Danielle DiCristino on Feb 2, 2010
Location: PA, USA
Comments: Cousin of Dia DiCristino

# 429
Name: Phil Lettal on Feb 2, 2010
Location: NY, USA
Comments:

# 430
Name: Ken O'Brien on Feb 2, 2010
Location: Middletown, CT, USA
Comments:

# 431
Name: Dawn Jaksons on Feb 2, 2010
Location: North Pole, Alaska, USA
Comments:

# 432
Name: Bill Nagle on Feb 2, 2010
Location: White Plains, NY, USA
Comments:

# 433
Name: Leslie Jespersen on Feb 2, 2010
Location: Atlantic City, NJ, USA
Comments: My baby sister, now 4 years old, suffers from them, and it breaks my heart every day to see such a fragile yet strong little girl go through so much.

# 434
Name: Stacey Golding on Feb 3, 2010
Location: West Deptford, NJ, USA
Comments:

# 435
Name: Ruth J Andre on Feb 3, 2010
Location: USA
Comments:

# 436
Name: Stacy Robertino on Feb 3, 2010
Location: AZ, USA
Comments: My friend has a beautiful child who has suffered from this and has endured 5 brain surgeries already....and he is only 1 year old.

# 437
Name: Jim Landon on Feb 3, 2010
Location: Denver area, Colorado, USA
Comments: A friend of a friend has it.

# 438
Name: Cathleen Goos on Feb 3, 2010
Location: Florida, USA
Comments:

# 439
Name: Christianne Curbow on Feb 3, 2010
Location: southaven, ms, USA
Comments: I am a RN and I took care of a patient who was on long term bedrest during her pregnancy and they discovered the baby had an arachnoid cyst during a routine ultrasound. He just turned 1 year old and has had to have 5 brain surgeries.

# 440
Name: Michael Kearns on Feb 3, 2010
Location: USA
Comments:

# 441
Name: Catrina mills on Feb 3, 2010
Location: Memphis tn, USA
Comments: A friend at work son has this condition and we pray for him alot. Love you baby Jack!

# 442
Name: Katie Potter on Feb 3, 2010
Location: Logan, UT, USA
Comments: One of my dear friends, a fellow Marine recently discovered her son Jack has this horrible illness. This will plague little Jack for the rest of his life. Sure the doctors will have him in and out of hospitals for the rest of his life with momentary cures. But when will we take this further?? When will we help these poor families??

# 443
Name: Mary McCloskey on Feb 3, 2010
Location: New Jersey, USA
Comments: My friend's little sister has an arachnoid cyst on her brain.

# 444
Name: Jennifer Ruopp on Feb 3, 2010
Location: South Carolina, USA
Comments: It has affected a family friend's son.

# 445
Name: Rebecca Clark on Feb 3, 2010
Location: USA
Comments:

# 446
Name: Keegan Clark on Feb 3, 2010
Location: USA
Comments:

# 447
Name: Linda Maclenan on Feb 3, 2010
Location: USA
Comments:

# 448
Name: John Maclenan on Feb 3, 2010
Location: USA
Comments:

# 449
Name: Cathy Flanigan on Feb 3, 2010
Location: Germantown, TN, USA
Comments: A sweet baby boy that I go to church with had one that was discovered prenatally and he has had 5 surgeries because of it. He is just over one year old.

# 450
Name: JENNIFER COLVILLE on Feb 3, 2010
Location: YUMA, AZ, USA
Comments: My best friend's son has an arachnoid cyst. I know that is has affected her life tremendously..With 2 major surgeries.

# 451
Name: Amy LaFerrera on Feb 3, 2010
Location: USA
Comments:

# 452
Name: Ashlee Fai on Feb 3, 2010
Location: NYC, USA
Comments: I am supporting a friend who has been affected

# 453
Name: Pauline Sweaney on Feb 3, 2010
Location: Emerald Isle, NC, USA
Comments:

# 454
Name: Jamie Saling on Feb 3, 2010
Location: Havelock, NC, USA
Comments:

# 455
Name: James Saling on Feb 3, 2010
Location: Havelock, NC, USA
Comments:

# 456
Name: Louise Harrison on Feb 3, 2010
Location: Town of Ajax, Canada
Comments: It is affecting a friend.

# 457
Name: Carla Marriott on Feb 3, 2010
Location: UK
Comments: My Mum had it, very worrying at the time but she's ok now

# 458
Name: Monica Hill on Feb 3, 2010
Location: Philadelphia, PA, USA
Comments:

# 459
Name: Rachael Tencza on Feb 3, 2010
Location: Oregon, USA
Comments: My adorable, sweet, intelligent daughter who was only 2 years old at the time, had a craniotomy to fenestrate a very large arachnoid cyst. She had a terrible time recovering and we spent a week longer than expected recovering at the children's hospital. Prior to the surgery, her neurosurgeon said that he thinks she lived with terrible, debilitating headaches, and silent seizures. But, since she was born this way and didn't know a life free of pain, never said anything to us. Her cyst was as large as a grapefruit and was causing effacement of the left lateral ventricle, midline shift, compression of her left temporal lobe and bony remodeling. Basically, if we hadn't caught this cyst when we did, she would have most likely lived a life with major brain damage and pain. PLEASE help us raise awareness of arachnoid cysts.

# 460
Name: Olivia Flannigan on Feb 3, 2010
Location: Paris, France
Comments:I'm working abroad for 2 yrs, there is no place to go here for our condition. Then I checked your doctors page and called the childrens hospital you had listed and they have agreed to see my son. Otherwise would have never known where to go. Ty!!! Still, how sad is it that there usually is nowhere to go, no matter where you are in the world??

# 461
Name: Mariste Flannigan on Feb 3, 2010
Location: Paris, France
Comments:I'd want my son to grow up in a world that takes his disease serious, is that this world?

# 462
Name: Mary Ackerman on Feb 3, 2010
Location: Scotland, UK
Comments:

# 463
Name: Robert Granger on Feb 3, 2010
Location: Scotland, UK
Comments:

# 464
Name: Fran Windmund on Feb 3, 2010
Location: Edinburgh, Scotland, UK
Comments: Dia we love your enthusiasm at trying to get signatures. I'm doing what I can too to help gather some. There needs to be more done for us. We can't stay poorly and never get well again.

# 465
Name: John Kuhn on Feb 4, 2010
Location: Pennsylvania, USA
Comments:

# 466
Name: Christen S. Howard on Feb 4, 2010
Location: Riverside, CA, USA
Comments:

# 467
Name: Amanda Rud on Feb 4, 2010
Location: Indiana, USA
Comments:

# 468
Name: ANTHONY CHICCINI on Feb 4, 2010
Location: Philadelphia, PA, USA
Comments: I see how my sister has worried about her daughter, Dia, my niece, and the many surgeries my niece has had to endure. She was a promissing opera singer and this has cut that dream short. Please do not let this go un-noticed or ignored.

# 469
Name: Randolph Scott Shelton Jr on Feb 4, 2010
Location: USA
Comments:

# 470
Name: stephanie johnson on Feb 4, 2010
Location: michigan, USA
Comments:

# 471
Name: Meredith Gold on Feb 4, 2010
Location: Tustin, Ca, USA
Comments: my 6 year old nephew has an arachnoid cyst

# 472
Name: Jerome Nevarez on Feb 4, 2010
Location: Tustin, Ca, USA
Comments:

# 473
Name: Debra Madonna on Feb 4, 2010
Location: USA
Comments:

# 474
Name: Melanie Giordano on Feb 4, 2010
Location: Philadelphia, USA
Comments: Let's get 1,000!! Go Awareness!

# 475
Name: Terris Janssen on Feb 4, 2010
Location: Holland
Comments:

# 476
Name: Barret Janssen on Feb 4, 2010
Location: Holland
Comments:

# 477
Name: Felicity Skeffington on Feb 4, 2010
Location: HAMBURG, GERMANY
Comments: Bewusstsein heute!

# 478
Name: Dante Skeffington on Feb 4, 2010
Location: Hamburg, GERMANY
Comments: Wir brauchen mehr Bewusstsein in Deutschland! !

# 479
Name: Adalicia Skeffington on Feb 4, 2010
Location: Hamburg, GERMANY
Comments: Ich habe Gehirntumor und bin sehr krank. Muss jetzt helfen!

# 480
Name: Marcus Skeffington on Feb 4, 2010
Location: Hamburg, GERMANY
Comments:

# 481
Name: Burnett Hughes on Feb 4, 2010
Location: United Kingdom
Comments: Dia thank you a million times over for starting an ac petition. My family should be signing too soon.

# 482
Name: Gregory Pell on Feb 4, 2010
Location: Nottingham, UK
Comments: My mum likes your new aca shirts, I was diagnosed 3 years ago and nothing has been done to help me. I was told the infamous line of it's all in your head. I'm fed up like you can't imagine and how I've been pushed around from one specialist to another. When I feel they think I am bonkers on top of it all, it makes me feel more fed up. There has to be something done to end the way we are being treated like crud on the street. We have real problems here, and can't find doctors to treat us. My GP is the worst of the lot, really no point in going to see him, but don't know what else to do. I thank people like aca who have taken the stand against this discrimination. We are being discriminated against by our own doctors.

# 483
Name: Felicia Gittins on Feb 4, 2010
Location: UK
Comments: signing for my friend who has been affected by this disease

# 484
Name: Robert Gittins on Feb 4, 2010
Location: UK
Comments: For Gregory

# 485
Name: Jade Pell on Feb 4, 2010
Location: UK
Comments: In honour of my brother Gregory, who has never been treated for his arachnoid cyst.

# 486
Name: Bart Munns on Feb 4, 2010
Location: UK
Comments:

# 487
Name: Melissa Munns on Feb 4, 2010
Location: UK
Comments:

# 488
Name: Benjamin Wintergerst on Feb 4, 2010
Location: Neusäß,Germany
Comments: I get used to live with a shunt for almost 25 years now

# 489
Name: Rebecca Hughes on Feb 4, 2010
Location: UK
Comments:

# 490
Name: William Hughes on Feb 4, 2010
Location: UK
Comments:

# 491
Name: Kelly O'Bannon on Feb 4, 2010
Location: U.S.A
Comments:

# 492
Name: Amelia Stanasila on Feb 4, 2010
Location: Bucharest, Romania
Comments:

# 493
Name: Tabitha Stanasila on Feb 4, 2010
Location: Bucharest, Romania
Comments:

# 494
Name: Ghita Stanasila on Feb 4, 2010
Location: Bucharest, Romania
Comments: awareness

# 495
Name: Jan Lucescu on Feb 4, 2010
Location: ROMANIA
Comments:

# 496
Name: Phillip Lamb on Feb 4, 2010
Location: New Jersey, USA
Comments:

# 497
Name: Lilian Pell on Feb 4, 2010
Location: UK
Comments:

# 498
Name: Nathan Pell on Feb 4, 2010
Location: UK
Comments:

# 499
Name: Jennifer Aaron on Feb 4, 2010
Location: Oregon, USA
Comments:

# 500
Name: Joanne Dodds on Feb 4, 2010
Location: morecambe, UK
Comments: My friend has been diagnosed with this condition and it has caused a great deal of pain for her. She is not able to see anyone who knows what they are talking about.

# 501
Name: James Pell on Feb 4, 2010
Location: London, UK
Comments: For my cousin

# 502
Name: kandace stamper on Feb 4, 2010
Location: miamisburg ohio, usa
Comments: My 4 year old boy has one on his left temporal lobe and suffers from really bad migraines amongst other things. People have no idea how bad it kills me as a mother to sit there and watch my son go through that tremendous pain and there is nothing I can do to ease it for him. He has seen several neurologists and neurosurgeons and no one can help him because their isnt enough research or information on arachnoid cysts. We need to get more research and awareness out to the public. My son cannot play any contact sports because he may hemmorhage if he gets hit in the head to hard. Is that any kind of a life for a child? Please help so another parent doesnt have to go through the same agony and pain of watching their child suffer.

# 503
Name: susie on Feb 5, 2010
Location: ohio, united states of america
Comments:

# 504
Name: michael sprague on Feb 5, 2010
Location: USA
Comments:

# 505
Name: Helen Tucker on Feb 5, 2010
Location: Michigan, USA
Comments: My cousin's baby was born with this condition and has had 5 brain surgeries since birth.

# 506
Name: Laura Rostron on Feb 5, 2010
Location: Ontario, Canada
Comments: I don't have an arachnoid cyst, but I do have hydrocephalus

# 507
Name: Karen Campbell on Feb 5, 2010
Location: USA
Comments:

# 508
Name: Jillian del Villar on Feb 5, 2010
Location: USA
Comments:

# 509
Name: Joseph del Villar on Feb 5, 2010
Location: USA
Comments:

# 510
Name: Ashley Carlson on Feb 5, 2010
Location: Bay Area, USA
Comments:

# 511
Name: Denise Barrett on Feb 5, 2010
Location: Wantagh, NY, USA
Comments: For Tyler Epple who has an Arachnoid Cyst.

# 512
Name: Linda Moler on Feb 5, 2010
Location: USA
Comments: For Tyler Epple who has an Arachnoid Cyst.A very good friend has a daught who has the cyst and it not only affected her life but also the lives of her friends. She is only 7 years old and will have to live with this the rest of her life.

# 513
Name: Amy M. Stanek on Feb 5, 2010
Location: Gaston, Oregon, USA
Comments: A friends daughter has one.

# 514
Name: Mary Anita Burns on Feb 5, 2010
Location: Royersford, PA, USA
Comments: A friend's son.

# 515
Name: Lisa Romagnolo on Feb 5, 2010
Location: Long Beach,NY, USA
Comments:

# 516
Name: Grace E. McMillan on Feb 5, 2010
Location: Spring Hill, FL, USA
Comments: Someone dear to me has suffered with this cyst many years.

# 517
Name: Sherrie Colaneri - Day on Feb 5, 2010
Location: New Jersey, USA
Comments: It has affected the lives of many and especially my loved ones.....One blessed young soul with a full life to live.... A little 4 year old who is a angel baby to me forever......

# 518
Name: Christine Weaver on Feb 5, 2010
Location: New Jersey, USA
Comments: It has affected a beautiful little girl I know and her happiness.

# 519
Name: Cheryl Dalzell on Feb 5, 2010
Location: New Jersey, USA
Comments: The fact is it has affected my friend's childs life and that's one too many persons for me.

# 520
Name: Pamela O'Hara on Feb 5, 2010
Location: NC, USA
Comments: I am an elementary school Nurse. I watched horrified as I sent the parents of a child with painful positional headaches, vision loss, and other problems back and back and back to the doctor's, and emergency room, and vision specialists, all telling them there was nothing wrong. I KNEW there was something wrong. He would scream in pain. He couldn't even walk some days. When they finally did a CAT scan, and saw the cyst, they STILL insisted it was not causing any of the symptoms. "It was just a coincidence"...what??? Even most of the medical literature I reviewed said the same thing. This student has had 2 major surgeries and is still not back to school. How scary, I wish doctors and nurses knew more.

# 521
Name: Allison Hyson on Feb 5, 2010
Location: Millville nj, USA
Comments: One of the most important 5 year olds in my life was born with an arachnoid cyst. has had a shunt and epilepsy amung numberous other issues... ANYTHING to help!

# 522
Name: Trisha Walden on Feb 5, 2010
Location: USA
Comments:

# 523
Name: Rosemarie DePaolis on Feb 5, 2010
Location: USA
Comments:

# 524
Name: Debbie Stock on Feb 5, 2010
Location: UK
Comments: I have been fortunate in that I successfully had a spinal arachnoid cyst removed in 2007, but knowing what others are going through with their AC's, they need all the support they can get, This is an extremely debilitating condition and it's about time people took notice.

# 525
Name: Maureen Crossman on Feb 5, 2010
Location: USA
Comments:

# 526
Name: Christa Weichmann on Feb 6, 2010
Location: Colorado, USA
Comments:

# 527
Name: Stephanie Sullivan on Feb 6, 2010
Location: USA
Comments:

# 528
Name: Noreen Burns on Feb 6, 2010
Location: USA
Comments:

# 529
Name: tabatha walker on Feb 6, 2010
Location: gaston oregon, USA
Comments:

# 530
Name: Jacqui Hopkins on Feb 6, 2010
Location: UK
Comments:

# 531
Name: teresa kaya on Feb 6, 2010
Location: Indiana, USA
Comments: A child of a friend has one

# 532
Name: Lapeyre karine on Feb 6, 2010
Location: Puyloubier, France
Comments: One friend of me got this problème

# 533
Name: Elspeth on Feb 6, 2010
Location: New York, NY, USA
Comments:

# 534
Name: Dorothy Crouch on Feb 6, 2010
Location: New York, NY, USA
Comments: My friend's fiance has an arachnoid cyst which grew in the spot from where she had one removed when she was a child. I want them to live happily ever after, though it seems now that will have to wait.

# 535
Name: Tara Biello on Feb 6, 2010
Location: USA
Comments:

# 536
Name: Penny Smith on Feb 7, 2010
Location: Missoula, MT, USA
Comments: My 14 year-old nephew has been diagnosed with one and it affects every area of his life: from school, to home, to any activity he may want to participate in. He just wants to have a normal life and that isn't possible with the pain this cyst causes.

# 537
Name: Becca Pell on Feb 7, 2010
Location: South London, UK
Comments: I hate what the doctors are doing to my cousin. Doubting him and giving him the run of the mill. When you do every neurological exam or test in the book, and nothing comes up but his arachnoid cyst in his brain, why then can't this be enough of a reason for his many many symptoms? What is it the you doctors want from him? Do you want to drive him potty? Do you want him to through the towel in and suffer in silence? Sometimes I can't help but think you doctors enjoy acting superior and telling someone it is in their head. But what basis do you have for that conclusion. I guarentee you doctors that the patients in this case know much more about what is really going on, because you haven't bothered to study up on any arachnoid cyst case! Shame on you doctors, shame on you for anyone who has walked out of your office feeling neglected and feeling hopeless.

# 538
Name: Maria Godfrey on Feb 7, 2010
Location: USA
Comments:

# 539
Name: Greta Fay on Feb 7, 2010
Location: Devon, UK
Comments: My 5 year old Daughter has a large interhemispheric arachnoid cyst and had a shunt fitted at 18 months old. So far she has been coping fine but the future scares me greatly for her, she cant tell me what she is experiencing and as a mother all I want is to protect and help her and try to understand as best I can.

# 540
Name: Matthew Triggs on Feb 7, 2010
Location: Devon, UK
Comments: My partners Daughter has an arachnoid cyst and I would like to support your petition.

# 541
Name: Melony Pell-Silver on Feb 7, 2010
Location: UK
Comments: For my cousin Gregory. People say a lot against the NHS, and usually you can defend them. In this circumstance, you can't. If as a doctor you are giving up on a patient because you don't understand the way a disease works, you are a bloody disgrace!

# 542
Name: Annie Bellaiche on Feb 7, 2010
Location: FRANCE
Comments:

# 543
Name: shane collett on Feb 7, 2010
Location: Devon, UK
Comments: my niece suffers from arachnoid cyst

# 544
Name: Cathy George on Feb 7, 2010
Location: Leighton Buzzard, UK
Comments:

# 545
Name: Janine Glasheen on Feb 7, 2010
Location: Allendale, NJ, USA
Comments: Sister-in-law's best friend's son has this condition.

# 546
Name: Bill Carcary on Feb 7, 2010
Location: Portsmouth, UK
Comments: My wife's cousin has one and has had to have numerous operations and will continue to have them

# 547
Name: Natalie Garver on Feb 8, 2010
Location: MI, USA
Comments:

# 548
Name: Angela Beasley on Feb 8, 2010
Location: Florida, USA
Comments: My daughter has an arachnoid cyst in the superior-fossa (not sure if I spelled that right) of her cerebellum and suffers from constant migraines

# 549
Name: Tana Thompson on Feb 8, 2010
Location: Grants Pass, OR, USA
Comments: My cousin has a grandson dealing with this condition.

# 550
Name: Nina Giongo on Feb 8, 2010
Location: devon, UK
Comments:

# 551
Name: Kenneth Gay on Feb 8, 2010
Location: forest grove Oregon, USA
Comments: my little neice has one and the family went through a lot with her

# 552
Name: Marissa Vauline, RN on Feb 8, 2010
Location: Philadelphia,PA, USA
Comments: I believe arachnoid cysts, with or without "mass effect", cause symptoms. I've tried many times to get neurosurgery in my hospital on board with arachnoid cysts, and most never budge. I can't understand it! I may have not gone to medical school, but I went to nursing school and graduated with honors. We study the same human body, if I can see these cysts cause problems, why can't those higher up the food chain get it?

# 553
Name: Susan fitzpatrick on Feb 8, 2010
Location: Warrington,Cheshire,UK
Comments:

# 554
Name: Abigail Dagnall on Feb 8, 2010
Location: Warrington,Cheshire,UK
Comments:

# 555
Name: Vikki Lomas on Feb 8, 2010
Location: Newton,UK
Comments:

# 556
Name: Catherine Balcer on Feb 8, 2010
Location: Southport,UK
Comments:

# 557
Name: Gareth Pell on Feb 8, 2010
Location: UK
Comments: Please keep raising awareness for this rare disease. And help us get it through doctors thick skulls (no pun intended), that cysts can cause symptoms.

# 558
Name: Eileen O'Rourke on Feb 8, 2010
Location: Levittown, NY, USA
Comments:

# 559
Name: Kevin O'Rourke on Feb 8, 2010
Location: Levittown, NY, USA
Comments:

# 560
Name: ELLA PEMBERTON on Feb 8, 2010
Location: UK
Comments:

# 561
Name: Erika Delgehausen on Feb 8, 2010
Location: Sioux Falls, SD, USA
Comments:

# 562
Name: Maggie Rea on Feb 8, 2010
Location: Phoenix, AZ, USA
Comments:

# 563
Name: Lucinda Duffy on Feb 8, 2010
Location: UK
Comments:

# 564
Name: Ivelisse Rodriguez on Feb 8, 2010
Location: CT,USA
Comments: I was diagnosed in August of 2007. I have a cyst that is 1.7 *1.9 cm. I suffer from migraines,moodiness,tremors,restless leg syndrome in my legs. The doctors tell me that none of these symptoms are a result of my cyst. They say that my cyst is too small to cause these symptoms. They put me on amitriptyline for my headaches and basically dismissed everything else. Its been very frustrating when you feel that no one is taking you seriously.

# 565
Name: Cara Jamieson on Feb 8, 2010
Location: Adelaide, South Australia
Comments: Its deteriorated my mind, my daily living, my well being, my thoughts. Every day i know im more damamged, everyday is the process to the end of me.

# 566
Name: Brandy Williamson on Feb 8, 2010
Location: Yorkshire, UK
Comments: I've been following the same diet Dia's on from her blog. I am doing all I can to keep my body whole and healthy, but we can't forget I have the cyst. Despite my greatest efforts to stay healthy, I am detiorating. It is important to stay upbeat and positive, and I thank A.C.A for helping encoraging me to stay strong.

# 567
Name: Joyclin Jaksons on Feb 8, 2010
Location: North Pole, AK, USA
Comments:

# 568
Name: Beki on Feb 9, 2010
Location: Adelaide,South australia
Comments: For Cara XXX

# 569
Name: Ron Eggleton on Feb 9, 2010
Location: Olympia, WA,USA
Comments:

# 570
Name: Lian Harris on Feb 9, 2010
Location: UK
Comments:

# 571
Name: Tom Ward on Feb 9, 2010
Location: USA
Comments: Went through the horrible ordeal of my daughter having a arachnoid cyst and wish no one else would ever have to go that nightmare.

# 572
Name: Connie Siegman on Feb 9, 2010
Location: North Pole, Alaska, USA
Comments:

# 573
Name: Jodi Bennett on Feb 9, 2010
Location: Arlington, TX, USA
Comments: I have watched what it has done to my sister's life. It has changed everything for her. She can no longer do many of the things she enjoys.

# 574
Name: John Randall on Feb 9, 2010
Location: CANADA
Comments: I have seen how it slowly kills my sister. Every day a bit of her is gone.

# 575
Name: Danny Randall on Feb 9, 2010
Location: Canada
Comments: For my cousin

# 576
Name: Linda Silva on Feb 9, 2010
Location: USA
Comments: my friends Grandson has it.

# 577
Name: Tammy Elliott on Feb 9, 2010
Location: USA
Comments: It is my cousins son who has this.

# 578
Name: Grant Wagner on Feb 9, 2010
Location: USA
Comments: My mother has a spinal cord archnoid cyst. She has been extremely ill and can't do much at all . People need to become aware of arachnoid cyst and if a lot of people become aware of them then maybe they will come up with a cure.

# 579
Name: Bryant Wagner on Feb 9, 2010
Location: USA
Comments: My mother has a spinal cord arachnoid cyst. It has changed my mother because she can't sit down. I want more people to be aware of the cyst because they are very painful. Maybe they will find what is causing the cyst and help the people with them.

# 580
Name: PATRICIA SEADER on Feb 10, 2010
Location: Mesa, Arizona, USA
Comments: My cousin's grandson has had surgery twice in the past 2 months. It sounds very scary, and I understand he may well have to have future surgeries, depending on how things go. He is only about 4, so this is very hard on the whole family, and our extended family are very concerned for them.

# 581
Name: Ana Oliveira on Feb 10, 2010
Location: Luzern ,Switzerland
Comments: I'm doing this for my Aunt ( she's younger than me, by the way)!

# 582
Name: Stephen Morrison on Feb 10, 2010
Location: Havelock North Carolina, USA
Comments:

# 583
Name: Joshua Maragni on Feb 10, 2010
Location: USA
Comments:

# 584
Name: Ligia Pereira on Feb 10, 2010
Location: London, UK
Comments: My mother has two ac's in the head, and saw 4 neurosurgeons - all of them say it's nothing to worry... One of them is 6cm x 5cm x 5cm and the bone on top ( right) of her head is thinner, and is causing mass effect and minor midline shift- still ,this is not important!!! THIS NEEDS TO CHANGE!!!

# 585
Name: Martim Oliveira on Feb 10, 2010
Location: Amora, Portugal
Comments: My father's aunt has this...

# 586
Name: luan vaughan on Feb 10, 2010
Location: tzaneen, south africa
Comments: 10 years of constant pain,and personality change

# 587
Name: Angela Sweeney on Feb 10, 2010
Location: PA, USA
Comments:

# 588
Name: Lisa Tosi on Feb 10, 2010
Location: NY, USA
Comments: A friend of the family suffers from this condition.

# 589
Name: Pamela Mollet on Feb 10, 2010
Location: Huntington, NY, USA
Comments: Painful to watch family and friends suffer.

# 590
Name: Gina Mastandrea on Feb 10, 2010
Location: Franklin Square, NY, USA
Comments:

# 591
Name: Liz Munoz on Feb 10, 2010
Location: Levittown NY, USA
Comments:

# 592
Name: Cynthia Sheldrick on Feb 10, 2010
Location: New York, USA
Comments: Dont like that a friend of mines' son frequently suffers from the side effects, major headaches, dont like to see anyone suffer

# 593
Name: Kathleen Volino on Feb 10, 2010
Location: USA
Comments:

# 594
Name: Leanne Walker on Feb 10, 2010
Location: Lake Zurich, IL, USA
Comments: My son has an arachnoid cyst which has required surgeries and medications. It alters his mood and ability to function on a daily basis. It has made him stop playing the sports that he loves and has impacted the entire family greatly. It was so very difficult to find a doctor that could accurately diagnose my son's issues much less treat him. More research and training is desperately needed to improve the diagnosis and treatment of arachnoid cysts so that our children/siblings/friends can function in and enjoy life to its fullest.

# 595
Name: Linda Wilson on Feb 10, 2010
Location: Oklahoma, USA
Comments:

# 596
Name: Steve Loukas on Feb 10, 2010
Location: Crystal City, USA
Comments:

# 597
Name: Irene Sathue on Feb 10, 2010
Location: USA
Comments:

# 598
Name: Rhonda Cutter on Feb 10, 2010
Location: East Patchogue NY, USA
Comments:

# 599
Name: Lisa Gee on Feb 10, 2010
Location: New Port Richey, FL, USA
Comments: One of my dearest friend's son has this.

# 600
Name: Julie Holloway on Feb 11, 2010
Location: California, USA
Comments:

# 601
Name: Lara Van Beek on Feb 11, 2010
Location: Colorado Springs, USA
Comments: My husband has an arachnoid cyst

# 602
Name: melanie fox on Feb 11, 2010
Location: levittown, USA
Comments:

# 603
Name: Maureen McLaughlin on Feb 11, 2010
Location: USA
Comments:

# 604
Name: Michelle Elliott on Feb 11, 2010
Location: Cincinnati,USA
Comments:

# 605
Name: Michael Gold on Feb 11, 2010
Location: Los Angeles, CA,USA
Comments: My nephew was improperly diagnosed and has suffered as a result.

# 606
Name: Kendale McDaniel on Feb 11, 2010
Location: Tampa, Florida,USA
Comments: I have been diagnosed with an Arachnoid Cyst.

# 607
Name: Betty DuLude on Feb 11, 2010
Location: Seekonk, MA,USA
Comments:

# 608
Name: Tracy Rutherford Bukowski on Feb 11, 2010
Location: Illinois,USA
Comments: My 4 year old daughter was diagnosed with an arachnoid cyst. Fortunately, she has not manifested any symptoms yet, so we currently just need yearly MRI's to check the growth.

# 608
Name: Graham Hood on Feb 12, 2010
Location: Redart, Virginia,USA
Comments: For a friend of the family, Dia.

# 609
Name: Frank Mapili on Feb 12, 2010
Location: Newport, NC,USA
Comments: One of my fellow Marines' son has suffered from this. The Doctors have misdiagonesd this 6-year old boy because there are not enough studies about this.

# 610
Name: Rebecca Laubach on Feb 12, 2010
Location: Cherry Point, NC,USA
Comments:

# 611
Name: travis morea on Feb 12, 2010
Location: USA
Comments: taking peoples lives away, is never a good thing

# 612
Name: James Laubach on Feb 12, 2010
Location: Bethlehem, PA, USA
Comments: My daughter is in the US Marine Corps. Her staff sergeant has a son who is 6 years old. For a long time doctors misdiagnosed him as just having migraines and high blood pressure, but it turned out he had an arachnoid cyst. Now he will be getting surgeries for the rest of his life, and will never be the same.

# 613
Name: JENNIFER GULLETT on Feb 12, 2010
Location: HAVELOCK, NC, USA
Comments: A coworker's 6-year old son was diagnosed with it. He's already had one surgery and there will be many more in the future.

# 614
Name: Patricia Pell-Grant on Feb 12, 2010
Location: UK
Comments:

# 615
Name: Patrick Barry on Feb 12, 2010
Location: Portland, OR, USA
Comments: I have a friend with an undiagnosed cyst on her brain.

# 616
Name: Sarah Carlson on Feb 12, 2010
Location: USA
Comments: A friends 6 y/o has had to endure unneeded pain and suffering, and his parents unneeded stress and ridicule (after a MONTH of debilitating headaches, and an MRI/CT scan revealing the cyst, his parents were asked "well, are you SURE hes not just faking it, for attention?...") becase there is not enough information readily available to medical professionals about this disease.

# 617
Name: WILLIAM STAFFORD on Feb 12, 2010
Location: ASHINGTON NORTHUMBERLAND, UK
Comments: Not my life in any way which is very fortunate but my friend's partner has the disease which I know affects both their lives in a major way.

# 618
Name: Kimberly Crawley on Feb 13, 2010
Location: Canada
Comments: I was diagnosed with an arachnoid cyst seven years ago, when I was 19. It's scary to have a big, fluid-filled hole in your brain, with very few answers from the medical community. There needs to be more public awareness of this condition, and more scientific research.

# 619
Name: Donna Lodato on Feb 13, 2010
Location: New York, USA
Comments: Very good friend has this cyst, wish more than anything more could be understood and done to help this child.

# 620
Name: Jordan Laubach on Feb 13, 2010
Location: bethlehem PA, USA
Comments: my sister works with a lady whos 6yr old son has an arachnoid cyst.

# 621
Name: ramon brace on Feb 13, 2010
Location: USA
Comments: It has affected a very good friend.

# 622
Name: jimmy harrison Feb 13, 2010
Location: USA
Comments:

# 623
Name: Kim Compagner Feb 15, 2010
Location: Michigan, USA
Comments:

# 624
Name: CLAYTON PENNEY Feb 15, 2010
Location: Largo, USA
Comments:

# 625
Name: Mercedes Mendez Feb 15, 2010
Location: Fort Worth, TX, USA
Comments:

# 626
Name: Elizabeth Barnette Feb 15, 2010
Location: kentucky, USA
Comments:

# 627
Name: Laura Dininni Feb 15, 2010
Location: Pennsylvania Furnace, Pennsylvania, USA
Comments:

# 628
Name: LYDIA PAGAN Feb 15, 2010
Location: NEWARK, N.J., USA
Comments: MIGRAINE, CONFUSIONS, BALANCE, ETC. IVE COMPLAINED TO MY DOCTER BUT TO THEM ITS NOTHING WRONG HAD TWO MRI DONE ALL THEY SAY WELL STILL THE SAME SIZE SO EVRYTHING OK. IM NOT THE SAME, SOMETHING IS WRONG WITH ME.

# 629
Name: Michael Crawley Feb 16, 2010
Location: Georgetown, Ontario, Canada
Comments: My daughter has one that severely reduced her ability to cope with living for many of her formative years.

# 630
Name: Tonya Bennett Feb 16, 2010
Location: Louisiana, USA
Comments: I feel like I am loosing my mind. I forget things with in 10 min, I have mood swings from hell, I feel nervous all the time and live on Xanax. I have headaches neckaches and ringing in my ears, my vision is less and I feel like I have a band around my head. I feel weak, and when I do have energy I can't do anything that makes my pulse go up or my body throbs for hours and I can't get my heart rate down. My skin is super sensitive. I can't even have a massage with out my nerves feeling like they are being ripped out of my body. When the massage stops my nerves continue to throb for over an hour and are extremely painful. Nothing I can do will stop the pain. My arms now shake for no reason which makes it hard to type or evern write. I have a hard time turing the wheel when I drive. The entire right side of my body seems more effect than the left. The cysyt is on the left middle cranial fossa measuring approximately 1.1 x 1.2 x 1.9 cm. The right side of my face swells up now and it's really not cute! I want my life back I want it out. My neurologists say there is no reason to remove it. I say there is. I can't hold a job I can't exercise, I am afraid to be alone. I always have a phone strapped to me to call 911. If I am home alone I will go in the front yard and sit for hours. I do that so someone passing by or one of the neighbors will see me if I pass out. I'm hoping they call 911. I am miserable. The slightest thing turns me into Sybil from hell. My body twitches, I feel short of breath, my heart skips. I am always feeling like I am going to die.

# 631
Name: Clive Williams Feb 18, 2010
Location: Portsmouth, UK
Comments: I have been diagnosed with a posterior fossa arachnoid cyst. Not sure of the size. Have had an MRI scan and have seen a neurologist. He too seems to think this is not the cause. I have very similar symptoms to you, continual dull headache, sometimes very sharp pains and migrane type. Aching neck shoulders and top of back, also sharp pains that last a few minutes. Facial pains, tinitus has become worse and it sometimes affects my eyes, blurredness. I also get tingling around my face and over the top of my head. Sometimes feel like my muscles are trembling. Tired all the time but I don't sleep well.

# 632
Name: Allan Tuhy Feb 18, 2010
Location: North Dakota, USA
Comments: I thought I was dying when my office walls were spinning around on a diagonal. I had unbearable headache and could hear the blood moving in my left ear. Found a Dr who opened my head and tried to cut out most of the cyst wall. Dr cut a nerve and said the cyst was so attached to my brain he could not get much. My head is very deformed from 51 years of the cyst getting larger.I had 6 months of very little pain and then some sever brief pain which has become very sporadic at 4 years after surgery. No pain meds for over 8 months.

# 633
Name: Thomas Velazquez Feb 18, 2010
Location: USA
Comments:

# 634
Name: Erika Rizzotti Feb 18, 2010
Location: Rochester, USA
Comments: My arachnoid cyst is pressing up against my trigeminal nerve. I have extreme facial and head pain constantly, amongst other problems. I'm on gabapentin and hydrocodone and the pain still will not go away.

# 635
Name: amanda Koontz Feb 20, 2010
Location: MCAS Cherrypoint, USA
Comments: a co-workers son was misdiagnosed sereval times before discovering that it was an arachnoid cyst. To think that a little boy could have lost hs life because doctors and nurses are ill-educated is unacceptable.

# 636
Name: Debbie Mckay Feb 20, 2010
Location: Maine, USA
Comments: has not affected me directly. I heard abot it from my friend

# 637
Name: suzanne meehan Feb 20, 2010
Location: bridgeton, nj, USA
Comments: my friend's daughter had an arachnoid cyst.

# 638
Name: Jean Kane Feb 20, 2010
Location: New Jersey, USA
Comments:

# 639
Name: Jacqueline Horner Feb 20, 2010
Location: USA
Comments:

# 640
Name: Jen Schober Feb 20, 2010
Location: USA
Comments:

# 641
Name: Barbara Panzino Feb 20, 2010
Location: USA
Comments:

# 642
Name: Deirdre Gillin Feb 20, 2010
Location: USA
Comments:

# 643
Name: Gloria McClain Feb 22, 2010
Location: portsmouth, rhode island, USA
Comments: My grandson was dx with an arachnoid cyst in October 2009. He has been having seizures every 6 months for 1 and 1/2 years (since Oct. 2008), now since December 26th he has had 4 seizures. The seizures are ALWAYS when he is sleeping, and are getting worst. Most recently he had a seizure this morning at 3:30 am and another one at 12:40 pm. That is 2 in 10 hours. My daughter is at Hasbro Childrens Hospital now, to see if cysts has grown, or why is having so many seizures NOW. Very frustrating. Gloria McClain

# 644
Name: tonya redden Feb 22, 2010
Location: maryland, USA
Comments: My 7 year old had a large arachnoid cyst on the left side. It was taking up 20% of his brain. He had the fenestration done at Hopkins in 2008. It was an accidental discovery, he had no symptoms at all. Thankfully, the procedure is doing what it's supposed to. However, it's still a daily worry for us.

# 645
Name: Jamie Foltz Feb 22, 2010
Location: Myrtle Beach, SC, USA
Comments: I have a 13 yr old son who has an arachnoid cyst on his right temporal lobe which I believe is the cause of his bipolar disorder. He has severe headaches daily and has a difficult time in school because of concentration. I wish more drs were aware that this affects your life everyday.

# 646
Name: Lisa Lackermayer Feb 22, 2010
Location: New Jersey, USA
Comments: One of my sweetest co-workers has a daughter affect with this illness and it took longer than it should have for her to get the help from her doctors that she needed.

# 647
Name: Jay Shockey Feb 22, 2010
Location: Louisiana, USA
Comments: My wife was diagnosed with an AC behind her left eye this past fall. She has a lot of headaches and other medical issues because of it.

# 648
Name: Kevin Fitzgerald Feb 23, 2010
Location: Chicago, USA
Comments:

# 649
Name: Marilyn Keesey Feb 23, 2010
Location: Laurel, MD, USA
Comments:

# 650
Name: Pamela French Feb 23, 2010
Location: Maryville, IL, USA
Comments:

# 651
Name: Meribeth Swartz Feb 23, 2010
Location: USA
Comments:

# 652
Name: Louann Herrera Feb 23, 2010
Location: USA
Comments:

# 653
Name: Lori Matsushita Feb 24, 2010
Location: USA
Comments:

# 654
Name: Amy Olszewski Feb 25, 2010
Location: Maryland, USA
Comments:

# 655
Name: JULIA GOUW Feb 26, 2010
Location: COLTON, USA
Comments:

# 656
Name: Kristof Dams Feb 27, 2010
Location: Diest, Belgium
Comments: When i was 18 i complained about headaches to a brain doctor in my right head, they did every scanner test out there, the answer was: nothing wrong with you, the cyst is not on the right side but on the left side so nothing is wrong! 7 years later, many seizures, blackouts, headaches i complained again about pain on my right side, another brain specialist tell me, the cyst is on my right side, but nothing is wrong! This means my first doctor, a brain specialist, lied to me, they told me the cyst was on my left side, while it now seems to be on my right side. The police now took me to a psychatriac hosptal and the judge agreed for this for one year! I have/almost had a good running business with 20k customers. The police told i have schizofrenia, then a law psychiater analist tell me i have a complex learning dissorder. I am already complaining many years about my pain and my healt, everybody misdiagnosed me, and the police, judge and psychiaters treaten me wrong! Now i am going to a brain specialist advised by others on the petetion to try to talk about my problems, get some respect, awareness, good communication, and i'm afraid surgery is the only thing left. I have many problems, i hope this new brain specialist admit the problems are because of my 72mm x 55mm huge cyst! Seizures, blackouts, spasm, kind of epelepsy, double vision, ear ringing, exploding right side head(where the cyst is). I have no hope anymore if this brain specialist don't admit the cyst is the source of all my range of problems.

# 657
Name: Dina Tuscano Feb 28, 2010
Location: Maine, USA
Comments:

# 658
Name: Laurie Smith-Del Pino March 2, 2010
Location: West Bloomfield, MI, USA
Comments: I began to have seizures at the age of 14; an EEG showed problems in the temporal lobe area; I was put on seizure medication which did not work. I went off of the medication myself and continued to have serious symptoms of seizures, headaches, severe mood swings, pressure in my head, headaches, ; in 2007 the symptoms culminated into severe pain behind my eyes and depth perception problems = I could not tell where the stairs were when going up and down them. I was hospitalized many, many times , mostly for psychiatric problems until March 2007 when an MRI showed an arachnoid cyst. I had it removed by endoscopic surgery through my eyebrow by Dr. H. Shahinian at Cedar Sinai Hospital in Los Angeles. He completely removed it and put a piece of teflon in the place where the cyst was. I have had absolutely no symptoms whatsoever since then and live a normal life now.

# 659
Name: Belinda Pua March 2, 2010
Location: Maui, Hawaii, USA
Comments: My six year old was born with it. She was develpmentally delayed and even though she can walk she tires easily. Her legs go numb and she has severe migraines as well as siezures. Now at age 6 her head size is nearing the 95 percentile for an adult female. Somedays she hits people when she is trying to hug them. Other days she mouths off when she wants to say I love you. Then after she doesn't even realize what has happened and just hops off to play.

# 660
Name: Jessica Kirkman March 2, 2010
Location: Huntersville, NC, USA
Comments: My son was born with an arachnoid cyst. He is only 5 years old and just recently underwent his 4th brain operation. The neurosurgeon first tried to fenestrate the cyst with no success. The 2nd surgery was to install the shunt. He has had two shunt revisions since then. My son has no symptoms whatsoever other than the fact that the CT scans and MRI's show this gigantic arachnoid cyst along with ever increasing ventricles. Thanks for what you are doing for arachnoid cyst research.

# 661
Name: Michelle Buck March 2, 2010
Location: Dallas, TX, USA
Comments: I had an arachnoid cyst discovered when i was 16; i have remained unaffected, however I am 30 now and more cautios and about to undergo a re-evaluation to make sure i'm still okay. I'm quite nervous aobut how things may have changed in 14 years.

# 662
Name: Judy Boyer March 2, 2010
Location: Missouri, USA
Comments: I have a posterior fossa arachnoid cyst. I've had 2 surgeries and currently on Social Security Disability due to all my symptoms.

# 663
Name: Sharon Wilkinson March 2, 2010
Location: West Yorkshire, UK
Comments: I have an arachnoid cyst on the left ventrical of my brain.

# 664
Name: Courtney Baker March 2, 2010
Location: Cypress, TX, USA
Comments: headaches, sickness, 6 brain surgeries, loss of work, money, jobs

# 665
Name: Corinne Currier March 2, 2010
Location: Southeast, USA
Comments:

# 666
Name: Sarah Baxter March 2, 2010
Location: USA
Comments:

# 667
Name: Jennifer Brown March 2, 2010
Location: Indiana, USA
Comments:

# 668
Name: Patrick Hall March 2, 2010
Location: Stratford upon Avon, UK
Comments: Friend to Dia, survivor of 20 surgeries for her arachnoid cyst!

# 669
Name: Janet Hall March 2, 2010
Location: Stratford upon Avon, UK
Comments: Friend to Dia, survivor of 20 surgeries for her arachnoid cyst!

# 670
Name: Jennifer Gregg March 2, 2010
Location: USA
Comments:

# 671
Name: Sherrie Weinhold March 2, 2010
Location: MD, USA
Comments: My niece suffered for yearns with all the typical symptoms that were put off as something else. Please raise awareness to all.

# 672
Name: Allen Godfrey March 2, 2010
Location: Levittown, NY, USA
Comments: My good friend Tyler Epple 12 yrs old, diagnosed at age 5.

# 673
Name: neil day March 2, 2010
Location: Washington, PA, USA
Comments:

# 674
Name: Rita Alexandre March 2, 2010
Location: queens, USA
Comments:

# 675
Name: mary ann giacometti March 2, 2010
Location: garden city, USA
Comments:

# 676
Name: Robin Lafer March 2, 2010
Location: Fort Lauderdale, Florida, USA
Comments:

# 677
Name: Ana Guarisco March 2, 2010
Location: Levittown, NY, USA
Comments: Friends of Tyler Epple.

# 678
Name: Michele Afonso March 2, 2010
Location: Levittown, NY, USA
Comments: Friends of Tyler Epple.

# 679
Name: Joseph Guarisco March 2, 2010
Location: Levittown, NY, USA
Comments: Friend of the Epple family.

# 680
Name: Louie Afonso March 2, 2010
Location: Levittown, NY, USA
Comments: Friend of the Epple family.

# 680
Name: GiGi Afonso March 2, 2010
Location: Levittown, NY, USA
Comments: Friend of the Epple family.

# 681
Name: Frank Afonso March 2, 2010
Location: Levittown, NY, USA
Comments: Friend of the Epple family.

# 682
Name: Alvin Godfrey March 2, 2010
Location: Levittown, NY, USA
Comments: Friend of the Epple family.

# 683
Name: Alec Godfrey March 2, 2010
Location: Levittown, NY, USA
Comments: Friend of the Epple family.

# 684
Name: Michael O'Donald March 3, 2010
Location: USA
Comments: brother to Jen and friend of ACA, they do amazing work and deserve some donations to help out with their cause. GO ACA!

# 685
Name: Christopher O'Donald March 3, 2010
Location: USA
Comments: cousin to Jen and friend of ACA, support one of the best organizations out there!

# 686
Name: Margery Evans March 3, 2010
Location: Wales, UK
Comments: We may not have won the battle, but we will win the war! ACA you hold a special place in all our hearts! Stay strong!!!

# 687
Name: Wyatt Morey March 4, 2010
Location: USA
Comments:

# 688
Name: Darian Morey March 4, 2010
Location: USA
Comments:

# 689
Name: Marshall Morey March 4, 2010
Location: USA
Comments:

# 690
Name: Casey Perreault March 4, 2010
Location: USA
Comments:

# 691
Name: David Coughenour March 4, 2010
Location: AFG, USA
Comments:

# 692
Name: Rebecca Coughenour March 4, 2010
Location: NC, USA
Comments:

# 693
Name: Andy Thomas March 4, 2010
Location: USA
Comments: Are dear friends child was dx about 2 months ago an had since already had two brain surgerys.

# 694
Name: Mark Wheeler March 4, 2010
Location: Flushing, Michigan USA
Comments: Lost my job. Can not drive. Can not pilot my own airplane. Pain and seizures. My life is completely trashed!

# 695
Name: Brandon Pember March 4, 2010
Location: USA
Comments: Its hard to know that n e thing could happen at n e givin time and I c how much it hurts mommy because that's her baby

# 696
Name: Kristina Mitchell March 4, 2010
Location: Tenants Harbor, Maine, USA
Comments: I have a cerebullar arachnoid cyst...Near daily migraines, aura 24/7, deterioration of long distance sight, blurriness, dizziness, fogginess and double vision. Currently taking 50mg. topomax and helping with the visual disturbances but still getting headaches.

# 697
Name: Melissa Antonio March 4, 2010
Location: Tenants Harbor, Maine, USA
Comments: A very dear friend has a son who his going through this painful, breath-taking ordeal. Please help in any way possible!! People are suffering and it is crucial to get down to the bottom of this horrible disease. Thank you, in advance, for any considerations. God bless.

# 698
Name: Elaine Truby March 4, 2010
Location: London, UK
Comments: Totally frustrating that I have this thing inside my head, and that it affects day to day life, I work in a stressful environment of Information Technology I get tired easily as I am always trying to counteract my balance problems, headaches are severe with blurred vision , I have not been able to drive due to the dizzy spells, betahistine medication does nothing at all, but neurologist says the cyst has nothing to do with my symptoms. I WANT MY LIFE BACK!!!!

# 699
Name: mohd zaid March 5, 2010
Location: kedah, malaysia
Comments: late dec 2009 i was fainted and went to specilist. they thought that i'm heart problems,. done with all test but still the same. so they suspected i'm getting vertigo. Meet ENT but all o.k, completed MRI and found left of my brain was getting arachnoid cyst. Dr said for 100 people that gone thru with MRI 1 was getting this cyst. They mean this is comment, I;m noW pretty sure wether my dizziness cause by this cyst...

# 700
Name: Adrian Tracy March 5, 2010
Location: Indianapolis, USA
Comments: I was recently diagnosed with a posterior fossa arachnoid cyst. Referred to a neurosurgeon who stated my symptoms (pressure in the back of my head, dizziness, being lightheaded) is not due to the cyst. I do not feel good about this, since all the information I have read about this condition has all of those symptoms. It has affected my life over the past 3 months because I can no longer drive long distances without becoming sick to my stomach, dizzy. I even feel that way at times when I walk. To have someone tell me they can't do anything for me, and knowing I have this cyst on my brain makes me feel hopeless. I know my symptoms are coming from somewhere, and truly believe it is from the arachnoid cyst.

# 701
Name: Bradley Janke March 6, 2010
Location: Lethbridge, Alberta, Canada
Comments: I have three Arachnoid cysts located in various areas of my brain. The Cysts fluctuate in size and cause problems with my speech (losing words mid phrase when talking and forgetting words all together). I also suffer short term memory loss with names of close friends and relatives. I dread going to the Doctor because I am tired of them basically calling me crazy. I know how my body is and how my brain used to function! Doctors have considered removal/draining of at least one. One battle I am finding is that the doctors are just confused and I often find myself teaching the Doctor about the disorder then Doctor educating patient. I pray for the day when I can enter a Doctor appt. not only with confidence, but with a slight chance they have a resolution to my problems!

# 702
Name: Karen Vandiver March 6, 2010
Location: Augusta, Georgia, USA
Comments: I have had chronic pain, balance problems, headaches, and memory problems for quite some time. My AC was found during an MRI to find out why I was having these symptoms about 2 years ago. I feel humiliated because I have post graduate degrees, work as a Psychologist but my doctors refuse to believe that the AC is causing these problems and tell me that there is nothing to be done even though it is huge. I feel alone and angry most of the time.

# 703
Name: Rachael King March 6, 2010
Location: Brooklyn, USA
Comments: The young child of my dear friend is struggling with this terrible affliction. Please bring this condition to the forefront and step up the research to help families like his take care of their children and loved ones. We need to learn more to help prevent more suffering!

# 704
Name: jenifer civalier March 6, 2010
Location: USA
Comments: It is emotional to watch a friend of mine cope with these cysts in her young son...even more so that they have independent health insurance! But that's another issue entirely! Spread awareness and help find a cure or a treatment that would ease the pain of the people who suffer from this.

# 705
Name: Berit Shaver March 7, 2010
Location: Oregon, USA
Comments: I have a close friend whose grandson has a large cyst. I hope more research can be done in this field

# 706
Name: Karen Smith March 7, 2010
Location: Wetumpka, Alabama, USA
Comments: Between the effects of an Arachnoid Cyst and a Pituitary tumor, I can't work anymore.

# 707
Name: Patrick Rigney March 7, 2010
Location: offaly, Ireland
Comments: It hasn't but I would not like it to strike anyone I know.

# 708
Name: Sven McNeil March 7, 2010
Location: USA
Comments: My friend's baby boy has an arachnoid cyst.

# 709
Name: Jackie Greenlee March 7, 2010
Location: Queen Creek, AZ, USA
Comments: We Love Nathan...

# 710
Name: Monika Galas March 7, 2010
Location: Addison, IL, USA
Comments:

# 711
Name: Michael Shaver March 7, 2010
Location: USA
Comments:

# 712
Name: Cristine Negrete March 7, 2010
Location: USA
Comments:

# 713
Name: Joseph McGivney March 7, 2010
Location: USA
Comments:

# 714
Name: Nancy McGivney March 7, 2010
Location: USA
Comments:

# 715
Name: Faith Kieffaber March 7, 2010
Location: USA
Comments:

# 716
Name: Jacob Kieffaber March 7, 2010
Location: USA
Comments:

# 717
Name: Seth Kieffaber March 7, 2010
Location: USA
Comments:

# 718
Name: Dominic Kieffaber March 7, 2010
Location: USA
Comments:

# 719
Name: Darlene Kieffaber March 7, 2010
Location: USA
Comments:

# 720
Name: Matt Szczur March 7, 2010
Location: Addison, IL, USA
Comments:

# 721
Name: N Starr March 7, 2010
Location: USA
Comments:

# 722
Name: Nick Delgudico March 7, 2010
Location: Queen Creek, AZ, USA
Comments:

# 723
Name: Jacob Chapman March 7, 2010
Location: Ohio, USA
Comments:

# 724
Name: Carlie Biggs March 7, 2010
Location: Ohio, USA
Comments:

# 725
Name: jose corea March 7, 2010
Location: ocala , florida, USA
Comments: Nathan Starr

# 726
Name: Cecilia Montalvo March 8, 2010
Location: Tinley Park IL, USA
Comments:

# 727
Name: don m peavey March 8, 2010
Location: Flagstaff AZ, USA
Comments: A friend of mine's son has it.

# 728
Name: Harvey Starr March 8, 2010
Location: Columbia, SC, USA
Comments: My nephew's infant son has an arachnoid cyst, and I have seen first hand how it affects the lives of the parents and relatives of children with this condition.

# 729
Name: David Millstein March 8, 2010
Location: New York, USA
Comments: My nephew's infant son has an arachnoid cyst, and I have seen first hand how it affects the lives of the parents and relatives of children with this condition.A very good friend of mine's son was born with an arachnoid cyst, and the lack of research has left the father with hardly any information about his son's condition now or in the future.

# 730
Name: Kristy Bretz March 8, 2010
Location: Erie,PA, USA
Comments:Not sure if hubby has it;although the symptoms seem to fit. Just had MRI last week showed nothing but we aren't very confident with Dr. on case. Hopefully, we can find a Dr that may address the issues at hand.

# 731
Name: Siobhan Huschke March 8, 2010
Location: Wallingford, CT, USA
Comments:Just diagnosed last week and scared! I don't know what to do or where to go for help! Plus don't make a lot of $ and on school health insurance which is very limited. No insurance through work either....plus this is a pre-existing condition and have low hopes of the future regarding treatment.

# 732
Name: Cecily Gallardo March 8, 2010
Location: USA
Comments: Not really sure, I haven't found anyone with the same one as mine. My cyst is located in the right Parietal Lobe. I have found no one with a cyst in this location... I dont know what it means or if it is significant at all.. I sign because I support this cause and the people affected by it.

# 733
Name: Christian Bullard March 8, 2010
Location: Phoenix, AZ, USA
Comments: I have a good friend who's son was diagnosed with an Arachnoid cyst at 2 months old. the whole experience has been a very trying one for the family & friends.... it is a very unfortunate thing for a child & their parents to have to go through. Awareness/Research should be pursued in an effort to prevent or cure this condition.

# 734
Name: GORDON MCLOUGHLIN March 8, 2010
Location: PORTADOWN, NORTHERN IRELAND, UK
Comments: MY SON WHO IS FIVE HAS THE ONLY CYST IN THIS COUNTRY (NORTHERN IRELAND) SO FAR,AND HE HAS AUTISM AS WELL WE HAVE BEEN GOING THRU THIS FOR YEARS NO HELP HERE IN THIS PART OF THE WORLD EITHER,ON THE OTHER HAND WE HAVE GOD WHO HAS BROUGHT US THRU,LIFE IS HARD WE ARE GETTING THRU ONE DAY AT A TIME.

# 735
Name: Monte Starr March 9, 2010
Location: Orlando, FL, USA
Comments:

# 736
Name: t malin March 9, 2010
Location: UK
Comments: I have to live everyday day at a time as i can't make plans to do things as i don't know when i can get out of the house. The hardist thing is the doctors not take this serusly. My life also affects thoughs around me and my children all i can do is watch and see what its doing to them. They see the inpacked it has on us and are left having to picking up the pices or help care for some of us. Whille all the time the doctors say its nothing maybe your under stress or you need to see someone else. If you are not well alot and can't talk properly i think anyone would get stress if there talking to people who they know for years and can't even say one sentence. If i were a dog the R.S.P.C.A would of given me better care and throught about my welfair and rights. Here affects this cyst has on my life: loss of self confidence worthlessness very bad pains unnecessary suffering loss of time to with my children no support embarrass unable to be me bad memory lack of balance vision problems

# 737
Name: Jeanne Guerra March 9, 2010
Location: Blue Springs, MO, USA
Comments:

# 738
Name: Darlene Wood March 9, 2010
Location: Independence, Mo, USA
Comments:

# 739
Name: Stephen Smitley March 9, 2010
Location: Jacksonville, Nc, USA
Comments:

# 740
Name: Micah Guerra March 9, 2010
Location: Blue Springs, MO, USA
Comments:

# 741
Name: Curtis Wood March 9, 2010
Location: Independence, Mo, USA
Comments:

# 742
Name: Alexander Chen March 10, 2010
Location: Indiana, USA
Comments:

# 743
Name: Jacqueline Gutridge March 10, 2010
Location: Blue Springs,Mo, USA
Comments:

# 744
Name: Amy Olszewski March 10, 2010
Location: Maryland, USA
Comments: My 6 year old son has anger and headache continuously. It buts stress out our entire family, school, and everyone around us.

# 745
Name: Clive Williams March 10, 2010
Location: Portsmouth, UK
Comments: I suffer from sever headaches, what you would call a stress headache, migrane and stabbing type pain. I also have aches and severe pain in my neck, shoulders arms and face. My face goes numb. I experience pins and needles in my arms and hands. My vision sometimes goes blurred and I have tinnitus. My gait is unstable and I now suffer from vertigo like symptoms and giddiness. I have sudden mood swings, mainly towards the very angry side. I'm tired all the time and my sleep pattern is so disrupted I get about 4 hours sleep a night. My concentration is hot to hell. My life, at the moment, consists of getting up, going to work, going home and trying to sleep. I can't enjoy the things I used to do. I love to walk but the pain gets really bad and I'm so tired. Love reading but that makes my head and neck ache. It's funny this has been getting worse for the last 2 years and it's laughable the amount of X-rays and MRI scans I've had. Like most of us sufferers I suspect that the cyst find was incidental and told that it couldn't be caused by that. Funny though, they can't find any other reasons. I've been on several different painkelliers, 2 different types of tricyclic drugs and still I'm getting worse. Have to say the accupuncture takes away some of the aches in my arms and hands for a while. Oh yeah! And sometimes I just forget what I'm about to do or even remember something that I was supposed to do.

# 746
Name: Deborah Olson March 10, 2010
Location: Oakville, Canada
Comments: My daughter was diagnosed with an arachnoid cyst in 99. This cyst takes up her whole right emperal lobe. She has had 9 surgeries to try and correct it or make it happy. Settled.

# 747
Name: Christy Richardson March 10, 2010
Location: Burlington, VT, USA
Comments:

# 748
Name: Krissy Dix March 10, 2010
Location: California, MD, USA
Comments:

# 749
Name: joyce day March 10, 2010
Location: chapelhill, USA
Comments: just know a little boy that has it.

# 750
Name: amber myera March 10, 2010
Location: blue springs mo, USA
Comments:

# 751
Name: Anne Diaz March 10, 2010
Location: USA
Comments:

# 752
Name: barrett coene March 10, 2010
Location: edmonton, canada
Comments: i can not sleep i get migrans almost every day , the left side of my bodie goes num , i have failen two times , problems with my hearing

# 753
Name: Billy Galligar March 11, 2010
Location: USA
Comments:

# 754
Name: Kimberley Milner March 11, 2010
Location: South Elmsall, UK
Comments:

# 755
Name: Anthony Olszewski March 11, 2010
Location: Maryland, USA
Comments:

# 756
Name: Jahaina Ledesma March 11, 2010
Location: Somerset, New Jersey, USA
Comments: Great Cause!!

# 757
Name: Victoria Davis March 11, 2010
Location: USA
Comments:

# 758
Name: Karen McGee March 11, 2010
Location: Delaware, USA
Comments: My 9 year old daughter has been diagnosed with an AC. She suffers from debilitating headaches, dizziness and hypersensitivity to noise. No on can give me answers or offer hope for ending her pain. She has gone from vibrate and active to angry and distant. Her focus on things which once brought her joy is lost. I want my little fireball back!

# 759
Name: Shannon Lai March 11, 2010
Location: Coon Rapids, MN, USA
Comments: My 11 year old son fell while snowboarding and hit his head. To our surprise they found a 2.6cm arachnoid cyst in the back of his scull. After a bunch of research we are scared to death. Tomorrow he goes for an MRI. So far everyone has told us "its no big deal". YEAH RIGHT!

# 760
Name: sandhya rao hermon March 11, 2010
Location: berkeley, ca, USA
Comments:

# 761
Name: Claura Louison March 11, 2010
Location: San Diego, USA
Comments: I hope this petition will help raise awareness.....

# 762
Name: John LoBianco March 12, 2010
Location: NJ, USA
Comments:

# 763
Name: Gladys Martinez March 12, 2010
Location: NJ, USA
Comments:

# 764
Name: Grazyna Weimann March 12, 2010
Location: Plano, TX, USA
Comments: AC in Posterior Fossa. Constant headaches.

# 765
Name: KRIS ROSE March 12, 2010
Location: NEW YORK, USA
Comments: MY FIANCE HAS BEEN DIAGNOSED WITH A ARACHNOID CYST IN THE POSTERIOR FOSSA

# 766
Name: Jody Hariri March 13, 2010
Location: California, USA
Comments:

# 767
Name: Heather Greene March 13, 2010
Location: South Carolina, USA
Comments: I recently found out I have an arachnoid cyst.

# 768
Name: Tessa de Ruijg March 13, 2010
Location: Steenwijk, the Netherlands
Comments:

# 769
Name: Lori Kinsel March 14, 2010
Location: Indiana, USA
Comments: My 3 year old daughter has am arachnoid cyst. Hers is considered rather large by her neurosurgeon (5cm x 5.5cm transverse). She is asymptomatic, and we hope she will stay that way. She was diagnosed due to lymph node swelling caused by cat scratch fever. I get a knot in my stomach every time she complains of a headache. The last thing I want is for her to start showing symptoms and having pain. My dream is that there will one day be a cure, and she will never know the pain many others face daily.

# 770
Name: Mark Starr March 14, 2010
Location: USA
Comments:

# 771
Name: Erik Chamberlain March 14, 2010
Location: Smithfield P.A., USA
Comments:

# 772
Name: Sean Kershaw March 14, 2010
Location: McKinney, TX, USA
Comments: My 6-month old son was diagnosed with a substantial arachnoid cyst. He was operated on a month later and here we are, almost 1 1/2 years later, and he is doing well. Our Neurologist decided to perform a "keyhole fenestration" in order to avoid having to insert a shunt and we have success up until this point. We will see what the future brings as this cyst has obviously affected his brains growth early in his life. As of now he is talking up a storm and creating havoc with his older brother, wherever he happens to be.

# 773
Name: Jasmine Rodriguez March 15, 2010
Location: NJ, USA
Comments:

# 774
Name: Nicole Rogers March 15, 2010
Location: Cobar NSW, Australia
Comments: My 13 year old daughter was check at 5 and found a large arachnoid cyst on right frontal lobe she has numbness, fits, outbursts, depression and she is attending school but not up there in her class, so yeah we are not doing to well at the moment. You never seem to get any answers on what they are going to do about it, she is being treated with Tegretol tablets for the fits which at the moment are not working, but is this going to solve the problem of the cyst. Thats what i need to know. thanks for listening guy's xxx

# 775
Name: matthew luffred March 16, 2010
Location: flagstaff, USA
Comments: my best friends kid has one

# 776
Name: Michelle Richter March 16, 2010
Location: Tyngsboro, Massachusetts, USA
Comments: My son, age 16, suffered a football-related consussion in September 2009 at which time it was found that he had an Arachnoid Cyst on the left temporal lobe. Despite initial scans being normal, isveral weeks later it was determined that the cyst membrane had ruptured during the concussion and resulted in a subdural hematoma. My son underwent a craniotomy to remove the hematom as well as fenestrate the cyst in November 2009. Within a week after the surgery, he began experience sensory seizure activity believed to be caused by the hematoma irritating the brain. He is now being treated with an anti-convulsant and progressing well, save for the mood- related sude effects of these types of medications.

# 777
Name: Pamela Remkus March 16, 2010
Location: Sag Harbor, NY, USA
Comments: My 21 month old grandson has been diagnosed with one.

# 778
Name: Robin Dawson March 17, 2010
Location: Rancho Cucamonga, California, USA
Comments: A friend of mine's child suffered from it.

# 779
Name: katherine Spence March 17, 2010
Location: florence in, USA
Comments: my friends daughter has this

# 780
Name: Linda Williams March 17, 2010
Location: USA
Comments:

# 781
Name: Kara Filler March 18, 2010
Location: Fort Wayne, IN, USA
Comments: my husband has any AC and has not been able to work since Sept 2008. He just finished his 9th surgery and still plaining on more to come.

# 782
Name: Catherine Wakefield March 18, 2010
Location: USA
Comments: By affecting people I care about

# 783
Name: Laura Rogers March 18, 2010
Location: Seabrook, NJ, USA
Comments:

# 784
Name: LAURA HARRIS March 18, 2010
Location: BRIDGETON NJ, USA
Comments:

# 785
Name: Sam Fuentes March 19, 2010
Location: California, USA
Comments: My Wife has a large arachnoid cyst, I have watched her get turned away by alot of doctors, which has cause me not to have faith in the medical system as a whole. I am happy to sign this to help get the recognition this needs.

# 786
Name: Patricia Meeks March 19, 2010
Location: California, USA
Comments: My aunt has a arachnoid cysts and it affects my family a whole lot because she does not participate in many of the things she would like . for example her sons baseball games.

# 787
Name: Sascha Schlub March 19, 2010
Location: Vira Gambarogno, Switzerland
Comments:

# 788
Name: Luisa Alcantara March 19, 2010
Location: New Jersey, United States
Comments: My sorority sister was diagnosed with an Arachnoid cyst in her brain. A treatment is needed. SEAAAAQUIN. KZ3.

# 789
Name: judy pridgen March 20, 2010
Location: georgia, United States
Comments: just found out that my 4 year old grandson has a 2cm cyst somewhere on his brain..will see a neuro soon

# 790
Name: brian bolton March 20, 2010
Location: weston, florida, United States
Comments: I had debilitating symptoms for many months and I was told I need a psychologist. Finally, after having an MRI of the brain they found an 8x7x6 posterior fossa cyst. I was told it was incidental but in the mean time I had severe neurological and spinal complaints and vomiting. I have had 4 surgeries so far (including 2 shunts). I am in severe pain including significant extracranial swelling. The doctors remain confused. I can't work right now or take care of my children. It has effected me tremendously.

# 791
Name: STEVE KELK March 20, 2010
Location: DARWIN, AUSTRALIA
Comments:

# 792
Name: Nukoyia Cration March 21, 2010
Location: MN, USA
Comments:

# 793
Name: Blake Donald March 21, 2010
Location: Henderson, NV, USA
Comments:

# 794
Name: robert macon March 22, 2010
Location: USA
Comments:

# 795
Name: Deborah Kenyon March 22, 2010
Location: Florida, USA
Comments:

# 796
Name: Darren Farinas March 22, 2010
Location: USA
Comments:

# 797
Name: sue bell March 22, 2010
Location: rock hill, new york, USA
Comments: Ninteen year old daughter was diagnosed with an arachnoid cyst on March 4,2010 had surgery on March 17,2010 .This was such a terrible time in our lives she went through hell seeing atleast 8 different doctors all of them telling her that the symtems she was having had nothing to do with her head.It took a few weeks to find a neurological surgeon who took our insurance.the dr sent her for an mri with contrast and the same day we were told that she needed surgery.

# 798
Name: hend aldossary March 23, 2010
Location: poterior, saudi arabia
Comments: heasdache, dizziness, nausea, and memory problems but the doctor told me the cyst not causeing this problem but im healty and i dont have any illness except the arachnoid cyst

# 799
Name: Jan Moffett March 24, 2010
Location: Kosciusko, Mississippi, USA
Comments: A friend of mine son had one.....

# 800
Name: Racheal Carman March 25, 2010
Location: Texas, USA
Comments:

# 801
Name: Tori Thomas March 25, 2010
Location: Bunkie,LA/ Kosciusko,MS, USA
Comments: I support this cause!!!! Something should be done to help this people in need.... MAY GOD BLESS ALL OF YOU!!!

# 802
Name: Sebastian Warburton March 25, 2010
Location: NEW SOUTH WALES, AUSTRALIA
Comments: How hasnt it i have had this since birth, im now 16 i have had lots of surgury , cannot play the sports i want to play, struggle with every aspect of school as i cannot comprehend , find it very hard to relate to people my own age, and the list goes on sooooo sick of mri scans i hate them ,soooooo sick of drs not being able to fix this and the list goes on not to mention the thousands of headaches u have to help us

# 803
Name: Heather Seymour March 25, 2010
Location: Kosciusko MS, USA
Comments: It has affected my son's life and my family's!! All I can say to shortin the words on how this has been for ALL of us (WHAT LIFE?) YOU DONT HAVE A LIFE!!! THATS HOW ITS AFFECTED US!!! Please,HELP US ALL!!!

# 804
Name: Sophia Goss March 25, 2010
Location: Vaiden MS, USA
Comments:

# 805
Name: Matt Burchfield March 25, 2010
Location: USA
Comments:

# 806
Name: John Seymour March 26, 2010
Location: Mississippi, USA
Comments: My Step-Son has this ,and it has really truned our whole life's upside down. I feel so sorry for my son, there is nothing for this and NO DOCTOR in this world knows WHAT TO DO FOR IT!!!

# 807
Name: Robert Cauthen March 26, 2010
Location: Mississippi, USA
Comments: I have this and it is said,that I was born wtih it. I found out that I had this in 2005!! PLEASE HELP US FIND A CURE!!! WE NEED HELP!!! WE ARE ALL GINNY PIGS.

# 808
Name: Claude Assio March 27, 2010
Location: florida, USA
Comments: depression -headaches and mood disturbance

# 809
Name: sarah morton March 27, 2010
Location: northumberland, uk
Comments:

# 810
Name: Cheryl Reese March 27, 2010
Location: Nebraska, USA
Comments: My nephew suffers from headaches from the ac.

# 811
Name: Charles Reese March 27, 2010
Location: Nebraska, USA
Comments: My nephew suffers from headaches from the ac.

# 812
Name: carol hansen March 28, 2010
Location: terre haute in., USA
Comments: i have a 11 year boy that just find out that he have one on the back of the brain on the left side ans he is star to have seaer and the only think the doctor said that a lost on poeple get it and now that i fine is web page its help a lost but i try to fine out some think to help he he not know how imoper it to take care of ir

# 813
Name: Leigh Lucky March 29, 2010
Location: Virginia, USA
Comments: My youngest son, Isaac (3 years old), has an arachnoid cyst. We have experienced a wide range of things with this. Initially, doctors were too willing to attribute his symptoms to "normal" baby things like teething. We had to push for answers while watching him suffer. Finally, when Isaac's symptoms were so bad that they became life threatning, an MRI was ordered and the arachnoid cyst was found. Isaac has been a tough little guy. He has had several hospitalizations as well as 3 surgeries for his cyst and it's effects. He still has many symptoms from the cyst. Isaac amazes us with his ability to laugh and smile in spite of everything he's been through. I gladly sign this petition in hopes of raising awareness for all the heros like Isaac who fight this battle everyday!

# 814
Name: Ryan Helms March 29, 2010
Location: Cincinnati, OH, USA
Comments: I am just now starting to feel thesymptoms, I think. I was diagnosed withit in 2003, but was told I would be ok since I haven't felt anything yet. I have felt very different lately andit has become so distracting that I have to figure out what it is .... I hope this signature helps. Sincerely Ryan Helms

# 815
Name: Timothy O'Toole March 29, 2010
Location: Maryland, USA
Comments: I am very scared because they recently discoverd an Arachnoid Cyst that is about 1 inch round in my head. While doing a deeper scan 2 weeks ago they have now found a Pineal Cyst as well. This one is under 1 CM.. Still this is all new to me and I am pretty freaked out. Cant sleep, work or anything else without worrying about it. I have an appointment on April 7th with a Nerousurgeon to hopefully learn more about these new lifetime friends that are in my head. These 2 Cyst make me wonder if my early learning problems in life were not to blame. Also I have GAD General Anxiety Disorder which I take 20MG of Lexapro a day for.. I am so scared about these things in my head. Tim

# 816
Name: stephanie Lucero March 29, 2010
Location: delaware county pa, USA
Comments: my daughter got diagnosed when she was 11. she suffers so much and like many people living with this we wont be ignored any longer

# 817
Name: kris rose March 29, 2010
Location: forestburgh, ny, USA
Comments: My fiance was diagnosed in 2/10 with an Arachnoid cyst in the posterior fossa. She recently had surgery on 3/17/10 to remove it

# 818
Name: Michael Houghton March 30, 2010
Location: USA
Comments:

# 819
Name: MIKE EDWARDS March 31, 2010
Location: XENIA,OHIO, USA
Comments:

# 820
Name: Karen Smith March 31, 2010
Location: Wetumpka, Alabama, USA
Comments: No longer able to work, due to all kinds of health issues. The doctors aren't sure why most of them are happening.

# 821
Name: Candace Jones April 1, 2010
Location: kosciusko, Mississippi, USA
Comments:

# 822
Name: Laura Jones April 1, 2010
Location: Pearl MS, USA
Comments:

# 823
Name: Margaret Price April 1, 2010
Location: Kosciusko MS, USA
Comments: Please,help us!!! My Grandson has this...Austin Cauthen Kosciusko MS-Diagnosed at age 9, he is 13 teen now!!! He suffer's everyday...somehow,by pain!! He has had all contact sports took away from him also!!! What kinda life is this?????? (((((((Help us!!!!!)))))))))

# 824
Name: Ennis Price April 1, 2010
Location: Kosciusko MS, USA
Comments: My Grandson Austin Cauthen has this Diagnosed at age 9 and he is 13 teen now!!! He was born with it is what they say..... And he has a doctor..and at that a family doctor that knows((((((It's not just in his head!!!!!)))))))) THESE'S PEOPLE NEED HELP!!!!!!!!! AND THE FAMILIES AS WELL!!!!!!!!!!!!!!!!!

# 825
Name: Tiffany Farmer April 1, 2010
Location: Kosciusko MS, USA
Comments: Austin Cauthen Age 13 is suffering with this

# 826
Name: Frankie Farmer April 1, 2010
Location: Kosciusko MS, USA
Comments: Austin Cauthen Age 13 is suffering with this

# 827
Name: melissa mcdaniel April 1, 2010
Location: USA
Comments: a friend on facebook has a child with this illness

# 828
Name: Marsha Whitman April 1, 2010
Location: USA
Comments:

# 829
Name: Darnell Faurot April 1, 2010
Location: Ethel, ms, USA
Comments: My great-nephew has this disease.

# 830
Name: Tabatha McAdams April 1, 2010
Location: Brandon, MS, USA
Comments: I have a friend's child who has had to have surgery for this, and it has grown back.

# 831
Name: Teri Andrews April 1, 2010
Location: USA
Comments:

# 832
Name: Sarah Burchfield April 1, 2010
Location: USA
Comments:

# 833
Name: Sarah Burchfield April 2, 2010
Location: USA
Comments:

# 834
Name: Matt Burchfield April 2, 2010
Location: USA
Comments:

# 835
Name: Tom Ward April 2, 2010
Location: USA
Comments: My daughter has had incredible life altering pain from this condition that very few seem to have head of or know anything about.. She has had one brain surgery and now is having what seems to be another growth returning..

# 836
Name: Judy Mcmurry April 2, 2010
Location: Lafayette, Indiana, USA
Comments:

# 837
Name: Teresa Bromagen April 2, 2010
Location: ohio, USA
Comments: my neice has it ,,,and i know how much she has to stuggle with it .it break my heart knowing or should i say not knowing what she is dealing with.

# 838
Name: marsha sparks April 2, 2010
Location: KY, USA
Comments: Nephew, baby Christopher has an arachnoid cyst.

# 839
Name: Nikki Lyn McDevitt April 2, 2010
Location: Albrightsville, PA, USA
Comments: A very dear friend of mine went many years undiagnosed - she's doing much better now that she knows WHAT is wrong with her.

# 840
Name: Ben Lujan April 2, 2010
Location: Miami, USA
Comments:

# 841
Name: Celestia marenco April 2, 2010
Location: Florida, USA
Comments: My husband has an arachnoid cysts, and we have had trouble finding a neurologist that has throughout information and can help him with his symptoms. They say his seizures are not symptom of an arachnoid cyst. I am hoping for more research and also more involvement from the medical community.

# 842
Name: kayleigh Bone April 3, 2010
Location: United Kingdom
Comments: I beleive its the cyst that has been causing me to have seizures every week and Tourettes syndrome.

# 843
Name: メリサMohi April 3, 2010
Location: tokyo漆
Comments: 私はクモの嚢腫を持っています。 医者〔博士〕をそれを見ていないようにしました。 取り扱い〔治療〕はありません。 私が目まいを持っている　頭痛(吐いている)　そして　歩くことができない　えーと、私が非常に常に疲れていて、ヘルプを必要としている。 誰か私を助けてください！

# 844
Name: 風masachi April 3, 2010
Location: 漆
Comments: スパイン脳くも膜嚢胞。ディジー、頭痛が、、、動揺、疲れ、胃を嚥下障害を話すことができない私はお知らせください。医師、脳神経外科医は、神経科医は私 を助けていません。私は、誰かが私を助けてたまらない

# 845
Name: マークmasachi April 3, 2010
Location: 東京日本漆
Comments: 私の妹は脳くも膜嚢胞を持って、これは彼女の若い命を台無しにしています。彼女は車椅子で、歩くことはできません。多くの頭痛は、非常にめまい、正常に非 常に疲れて話すことができない。誰かが、我々は神経外科医を操作する見つけることができない彼女を助けてください。

# 846
Name: Elo masachi April 3, 2010
Location: 東京日本漆
Comments: My sister has arachnoid cyst on brain, none doctor take treatment with her. The cyst is here too. Please help us!

# 847
Name: michael mendenhall April 3, 2010
Location: USA
Comments:

# 848
Name: Debbie Cockroft April 3, 2010
Location: Kosciusko Ms,USA
Comments: My grandson has this,Austin Cauthen age 13..it has affected his life and not only his but all his loved ones (friends and family).These's people are SUFFERING...HELP THEM PLEASE!!!!

# 849
Name: Robert Wright April 3, 2010
Location: Kosciusko Ms,USA
Comments: Austin Cauthen age 13, is suffering with this....so as many others as you can see! Please help these's people.

# 850
Name: Jeri Turnmire April 3, 2010
Location: Warren County,USA
Comments:

# 851
Name: Buster Gentry April 3, 2010
Location: Kosciusko MS,USA
Comments: I have this and a close friend of mine,their son has it too!! Please help us get some help with this!!Austin Cauthen age 13...please help all of these's people! They are suffering,and need HELP!

# 852
Name: Tori Gentry April 3, 2010
Location: Kosciusko MS,USA
Comments: Our friend's son is suffering with this,and my husband has it too!!! Please help us all!!!

# 853
Name: Jaime Garfield April 3, 2010
Location: Florida,USA
Comments: My daughter has 3 arachnoid cysts, she had surgery to drain one when she was 16 months old, doing great, no issues, has MRI, used to be every year, then every 2, now it is every 3 years....

# 854
Name: АЛЮША Джамджерчинов Alyusha Dzhamgerchinov April 3, 2010
Location: МОСКВА, РОССИЯ RUSSIA
Comments: Моя мама имеет паутинной киста на левой височной доли. вызывает головные боли, головокружение и подавления аппетита

# 855
Name: Alanya Dzhamgerchinov April 3, 2010
Location: МОСКВА, РОССИЯ RUSSIA
Comments: Моя мать это паутинной оболочки кисты головного мозга и был очень тяжелый период, она потеряла работу, должен жить за счет пособий и очень разочарованы. Существует ни один врач, который готов делать операцию, и мы не знаем, что делать. Любая помощь будет признателен. эта болезнь затрагивает по всему миру.

# 856
Name: Arnold Pee April 3, 2010
Location: Kosciusko MS, USA
Comments: A friends son has this,please help all of these's people... ALOT of people have this,and they all have the same problems!!

# 857
Name: Jessie JR Crosby April 3, 2010
Location: Kosciusko MS, USA
Comments: One of my friends son has this.Austin Cauthen age 13...please help all of these's people! They are suffering,and need HELP!

# 858
Name: Sue Hager April 3, 2010
Location: Lexington MS, USA
Comments: My Great-Grandson,has this.Austin Cauthen age 13...please help all of these's people! They are suffering,and need HELP!

# 859
Name: Vanessa Keith April 3, 2010
Location: Cordova TN, USA
Comments:

# 860
Name: Kay Keith April 3, 2010
Location: Cordova TN, USA
Comments:

# 861
Name: Elmer Keith April 3, 2010
Location: Cordova TN, USA
Comments:

# 862
Name: Emelia Villeneuve April 3, 2010
Location: France
Comments: J'ai un kyste arachnoïde dans ma fosse postérieure. Il est de 5 cm par 4 cm x 6 cm et ruiner ma vie. Ils parlent de la possibilité d'enfin me donner une opération de dérivation, mais ce qui s'est passé pendant 6 ans avec ce kyste arachnoïdien!

# 863
Name: Marcelle Villeneuve April 3, 2010
Location: France
Comments: Ma soeur a un kyste arachnoïde très grand dans son cerveau, ce qui lui a causé beaucoup de mauvais jours. S'il vous plaît nous avons besoin de davantage de recherches pour la France. S'il vous plaît nous apporter des médecins qui peuvent nous aider!

# 864
Name: Mildred Fernandez April 4, 2010
Location: Los Angeles, California, USA
Comments: My cousin Ben, who is like a brother to me has an arachnoid cyst and it has affected him greatly as well as everyone who cares about him. His symptoms are numerous and painful and he is also in a lot of debt due to meds. and examinations. Please help my cousin Ben and the many other people suffering from this.

# 865
Name: Morgan Schoemaker April 4, 2010
Location: Alaska, USA
Comments: I have had several friends that have arachnoid cysts, My best friend has to move to a place that can provide care for him, my Girlfriend has one, and has to leave to get it removed.

# 866
Name: Erica McSweeney April 4, 2010
Location: Sag Harbor, NY, USA
Comments: my 22 month old son has a VERY large arachnoid cyst. He is non-verbal. We don't know yet if this is the cause. he will undergo a microscopic fenestration this month.

# 867
Name: Bang Abad April 4, 2010
Location: Philippines
Comments: I have a friend who has a son with arachnoid cyst. I want to help and I don't know how.

# 868
Name: regina colwell April 4, 2010
Location: Bulan Ky, USA
Comments: my granddaughter

# 869
Name: Marianne Bocalbos April 4, 2010
Location: Loma Linda, CA, USA
Comments:

# 870
Name: stephen abad April 4, 2010
Location: philippines
Comments:

# 871
Name: amanda cabuco April 5, 2010
Location: philippines
Comments:

# 872
Name: MAYNYA, OLSZEWSKI April 5, 2010
Location: POLSKA POLAND
Comments: Witam mam torbiele pajęczynówki na moim mózgu i innych na mój kręgosłup, Dziękujemy za rozpoczęcie tej petycji, w tych z nas, Polska cierpi tak samo jak wszędzie indziej, my nigdy nie wiadomo na temat petycji, aż ktoś powiedział nam. Inaczej nie podpisali go wcześniej, a nasi lekarze tutaj również nie traktują tego poważnie. Prosimy o więcej badań, aby na świecie! torbiele pajęczynówki są wszędzie!

# 873
Name: Ritel Czerwinski April 5, 2010
Location: Polska
Comments: torbieli pajęczynówki dotyczą nas tu, dziękuję za nas w tym w petycji. Dziękuję za opowiadają się za nami. wymaga leczenia torbieli pajęczynówki wszędzie. Mam 17 lat, miałem ten torbiel pajęczynówki 6 lat, ja umieram, i nikt nie pomaga. Chodź z nami prosimy o pomoc lekarzy, torbiele pajęczynówki są diabła!

# 874
Name: Magna Czerwinski April 5, 2010
Location: Poznań Polska
Comments: Mój brat ma torbiel pajęczynówki jego mózgu, zrujnowała jego życie. Miał wiele dni, gdzie chce umrzeć potrzebujemy Twojej pomocy, potrzebujemy więcej wiedzy dla torbieli pajęczynówki tutaj Polska i wszędzie. kochamy petycji. dziękuję dziękuję dziękuję

# 875
Name: Julian Czerwinski April 5, 2010
Location: Poznań Polska
Comments:

# 876
Name: Gertruda Czerwinski April 5, 2010
Location: Poznań Polska
Comments: Mój kuzyn ma torbiel pajęczynówki w jego mózgu, poniósł przez długi czas i potrzebuje pomocy ... wszyscy jesteśmy z nim cierpienie. Dlaczego lekarze nie wierzycie? Dlaczego nie mogą nas słuchać? Ile jeszcze możemy sobie poradzić? O ileż bardziej możemy być poddane? Jeżeli był to rak mózgu, należy ją leczyć, należy spróbować, ale dlaczego nie spróbować na torbiel pajęczynówki? Dlaczego nie spróbować?!

# 877
Name: Mikolaj Wysocki April 5, 2010
Location: Gdańsk Polska
Comments: Mam 25 lat i torbiel pajęczynówki w lewym płacie skroniowym. Miałem zastawki wprowadzić kiedy miałam 18, ale od tego czasu przeszedł wiele bólów głowy, głód i zawroty głowy. Nie jestem w ogóle dobrze, a mój neurochirurg nie chce wrócić i zmienić zastawkowego. Dziękujemy za tę okazję, aby moje głosu. Mamy wielu polskich ludzi na całym torbiel pajęczynówki desek, że Polska do czynienia z tą samą rzecz z was. Będziemy z wami przystąpi do walki!

# 878
Name: Zyta Wysocki April 5, 2010
Location: Gdańsk Polska
Comments: Oglądałem mój brat przejść przez tę chorobę zbyt długo z torbiel pajęczynówki. To musi się skończyć. On musi lepiej. Ma zastawki, ale nie działa już.

# 879
Name: Hieronim Wysocki April 5, 2010
Location: Gdańsk Polska
Comments:

# 880
Name: Nata Wojciechowski April 5, 2010
Location: Polska POLAND
Comments:

# 881
Name: Grazyna Wojciechowski April 5, 2010
Location: Polska POLAND
Comments: 45 lat, przerzucane, torbiel pajęczynówki na mózg. Cierpi na codzienne bóle głowy, nudności, zawroty głowy, utraty przytomności, drgawki, i wiele innych.

# 882
Name: Jennifer Rice April 5, 2010
Location: Pinellas County, USA
Comments: Best friend has suffered for the past 17 years from this debilitating disease.

# 883
Name: Borys Michalski April 5, 2010
Location: Warsaw polska
Comments: Koniec torbiel pajęczynówki, podnoszenie się teraz!

# 884
Name: Czeck Michalski April 5, 2010
Location: Polska
Comments:

# 885
Name: Brygid Michalski April 5, 2010
Location: POLSKA
Comments:

# 886
Name: Kamilia Michalski April 5, 2010
Location: Polska
Comments:

# 887
Name: Michal Gorski April 5, 2010
Location: POLSKA POLAND
Comments: spędzić życie do czynienia z cholernie torbiel pajęczynówki. mają tak wiele problemów, a moja rodzina jest bardzo przychylny.

# 888
Name: Malelia Gorski April 5, 2010
Location: Gdańsk Polska
Comments:

# 889
Name: Dentyre Gorski April 5, 2010
Location: Gdańsk Polska
Comments:

# 890
Name: Sonya Martin April 5, 2010
Location: UK
Comments:

# 891
Name: Billy Martin April 5, 2010
Location: UK
Comments: ACA have done a brill job at getting notice for the petition. I have an arachnoid cyst, and years ago there was nothing in place for us, thankfully now we have ACA.

# 892
Name: Billy Martin April 5, 2010
Location: UK
Comments: ACA have done a brill job at getting notice for the petition. I have an arachnoid cyst, and years ago there was nothing in place for us, thankfully now we have ACA.

# 893
Name: Adrian Snellgrove April 5, 2010
Location: AZ, USA
Comments: This is for the Daniels' family. Their 6 y/o son has an arachnoid cyst, was misdiagnosed by many doctors and suffered as a result.

# 894
Name: Max Pell April 5, 2010
Location: UK
Comments: As the ACA shirts say a call to take action, we are all calling you medical doctors to take action, help us please.

# 895
Name: Marsec Wargin April 5, 2010
Location: Kraków Polska POLAND
Comments: czas do końca torbiel pajęczynówki

# 895
Name: Natyna Krzyżaniak April 5, 2010
Location: Polska POLAND
Comments: Błogosławi wszystkich, którzy mają do czynienia z torbieli pajęczynówki, patrzyłem mój przyjaciel od lat cierpi też zbyt wiele żalu do jednego życia.

# 896
Name: Boris Krzyżaniak April 5, 2010
Location: Polska POLAND
Comments: torbiel pajęczynówki to koszmar dla mojej żony, niech żyje w pokoju

# 897
Name: Danek Grzywinski April 5, 2010
Location: POLAND
Comments: my fellow countrymen are signing here today for a cause that is great. I know english. I will tell you, these damn arachnoid cysts ruin lives. God help us all.

# 898
Name: Glenda Ables April 5, 2010
Location: USA
Comments: My friends son suffers from one.

# 899
Name: Jenn Rendall April 5, 2010
Location: UK
Comments: My brother has a arachnoid cyst.

# 900
Name: Galacia Dentry April 5, 2010
Location: Sweden
Comments:

# 901
Name: Rog Dentry April 5, 2010
Location: Sweden
Comments: min son har en spindelvävshinnan cysta. han har varit med om mycket, stackars grabben. han är bara 5 år gammal

# 902
Name: Mel Dentry April 5, 2010
Location: Sweden
Comments:

# 903
Name: Michael Gel April 5, 2010
Location: Sweden
Comments:

# 904
Name: Sally Gel April 5, 2010
Location: Sweden
Comments:

# 905
Name: Mark Pell April 5, 2010
Location: UK
Comments:

# 906
Name: Philip Buddington April 5, 2010
Location: Kosciusko MS, USA
Comments:

# 907
Name: Christy Buddington April 5, 2010
Location: Kosciusko MS, USA
Comments:

# 908
Name: Tiffany Hill April 5, 2010
Location: Kosciusko MS, USA
Comments:

# 909
Name: Sam Hill April 5, 2010
Location: Kosciusko MS, USA
Comments:

# 910
Name: Jonathan Cuathen April 5, 2010
Location: Vaiden MS, USA
Comments:

# 911
Name: Zac Lee April 5, 2010
Location: MS, USA
Comments:

# 912
Name: Jeb Firenze April 5, 2010
Location: Italia
Comments: ciste aracnoide ha rovinato la mia vita

# 913
Name: Marco Firenze April 5, 2010
Location: Italia
Comments: mio fratello ha una cisti aracnoidea, egli non può più lavorare. ha raggiunto fuori alla nostra comunità e ci saranno tutte firmare petizione. non preoccupatevi!

# 914
Name: Melanie Firenze April 5, 2010
Location: Italia
Comments:

# 915
Name: Anna-Maria Firenze April 5, 2010
Location: Italia
Comments:

# 916
Name: Giacamo Firenze April 5, 2010
Location: Italia
Comments:

# 917
Name: Sylvia Sessums April 5, 2010
Location: Brandon MS, USA
Comments:

# 918
Name: David Sessums April 5, 2010
Location: Brandon MS, USA
Comments:

# 919
Name: Tracie Hasson April 5, 2010
Location: Brandon MS, USA
Comments:

# 920
Name: Wanda Herrington April 5, 2010
Location: Brandon MS, USA
Comments:

# 921
Name: Pam Goodwin April 5, 2010
Location: Brandon MS, USA
Comments:

# 922
Name: John Hasson April 5, 2010
Location: Brandon MS, USA
Comments:

# 923
Name: Nichol Hasson April 5, 2010
Location: Brandon MS, USA
Comments:

# 924
Name: Mat Kucharksi April 5, 2010
Location: Polska
Comments:

# 925
Name: Yanna Kucharksi April 5, 2010
Location: Polska
Comments:

# 926
Name: Jessica DeBejar April 5, 2010
Location: Tahlequah, OK, USA
Comments:

# 927
Name: Tim Wolanski April 5, 2010
Location: Cherry Point, NC, USA
Comments:

# 928
Name: Armando Alvarez April 5, 2010
Location: Yuma, AZ, USA
Comments:

# 929
Name: Robert Macon April 5, 2010
Location: Humble, Texas, USA
Comments:

# 930
Name: Amber Macon April 5, 2010
Location: Humble, Texas, USA
Comments:

# 931
Name: Glenn Miller April 5, 2010
Location: Salem, OR, USA
Comments:

# 932
Name: Glenda Ables April 5, 2010
Location: USA
Comments: My friends son suffers from one

# 933
Name: Lerrieann Paras April 5, 2010
Location: Riverside, USA
Comments:

# 934
Name: jinae nielsen April 5, 2010
Location: az, USA
Comments:

# 935
Name: pete bateman April 5, 2010
Location: west yorkshire, UK
Comments: my partner suffers greatly with an ac..i try and support her in the best way possible. It does cause symptoms and theese can be debilitating on the sufferer and here by family and children . It is dispicable and negligent for any doctor,neuro, to implicate psychotic and mental health issues . It is them and their superiors who need better understanding ,, me persnaly believe it is all due to funding ..or lack of. Just another stink up in this already stinking world.

# 936
Name: tiffany canter April 5, 2010
Location: USA
Comments:

# 937
Name: Uira Denibia April 5, 2010
Location: Brasil
Comments: Dois dos meus amigos têm cistos aracnóide. É inacreditável para mim ler que mesmo nos Estados Unidos os médicos não escutam. Eu pensei que era só o Brasil, mas não é! Você deveria ter vergonha, vocês chamam-se médicos, maldita para o inferno. Para permitir que as pessoas sofrem desse jeito, caramba, você para o inferno. Assassinos!

# 938
Name: Mario Denibia April 5, 2010
Location: Brasil
Comments: é besteira de deixar as pessoas que sofrem médicos maldito, cistos aracnóides são reais, que causam sintomas, os médicos fedido!

# 939
Name: Mario Denibia April 5, 2010
Location: Brasil
Comments: é besteira de deixar as pessoas que sofrem médicos maldito, cistos aracnóides são reais, que causam sintomas, os médicos fedido!

# 940
Name: Lee Goodwin April 5, 2010
Location: USA
Comments:

# 941
Name: Mike Dees April 5, 2010
Location: USA
Comments:

# 942
Name: Debbie Dees April 5, 2010
Location: USA
Comments:

# 943
Name: Linda Owens April 5, 2010
Location: MS, USA
Comments:

# 944
Name: Christy Crotwell April 5, 2010
Location: MS, USA
Comments:

# 945
Name: Brooke Rosamond April 5, 2010
Location: MS, USA
Comments:

# 946
Name: Tommie Overstreet April 5, 2010
Location: MS, USA
Comments:

# 947
Name: Harvey Overstreet April 5, 2010
Location: MS, USA
Comments:

# 948
Name: Kempe Hodges April 5, 2010
Location: MS, USA
Comments:

# 949
Name: Carol Hodges, April 5, 2010
Location: MS, USA
Comments:

# 950
Name: Agness Dorman, April 5, 2010
Location: MS, USA
Comments:

# 951
Name: Jenny Clasman, April 5, 2010
Location: MS, USA
Comments:

# 952
Name: マーティンのし, April 5, 2010
Location: 東京日本 JAPAN
Comments: 、それは私が23歳と診断されたちょっと私はくも膜嚢胞がある。私は、開窓を実行したその後もが私を助けて行われている。これは、がんされた場合、私はあ なたに質問を提案し、せ、それが戻って、確かに彼らは再びそれを切り取っしようとすると成長？それはくも膜嚢胞であるため、なぜ、彼らはそれが私の脳裏に 押しておくのですか？

# 953
Name: Bel Grzywinski , April 5, 2010
Location: Polska
Comments: Torbiele pajęczynówki musi umrzeć

# 954
Name: Jonny Parks , April 5, 2010
Location: MS, USA
Comments:

# 955
Name: Marty Price , April 5, 2010
Location: MS, USA
Comments:

# 956
Name: Tim Cauthen , April 5, 2010
Location: MS, USA
Comments:

# 956
Name: Walter Cauthen , April 5, 2010
Location: MS, USA
Comments:

# 957
Name: Terry Cauthen , April 5, 2010
Location: MS, USA
Comments:

# 958
Name: Sandra Cauthen , April 5, 2010
Location: MS, USA
Comments:

# 959
Name: Vivian Tuck , April 5, 2010
Location: MS, USA
Comments:

# 960
Name: Debbie Dickerson , April 5, 2010
Location: MS, USA
Comments:

# 961
Name: Bridget Dickerson , April 5, 2010
Location: MS, USA
Comments:

# 962
Name: Teresa Howard , April 5, 2010
Location: MS, USA
Comments:

# 963
Name: Aaron Howard , April 5, 2010
Location: MS, USA
Comments:

# 964
Name: Phillip Howard , April 5, 2010
Location: MS, USA
Comments:

# 965
Name: Lynn Richards , April 5, 2010
Location: MS, USA
Comments:

# 966
Name: Blake Bell , April 5, 2010
Location: MS, USA
Comments:

# 967
Name: Deb Dickerson , April 5, 2010
Location: MS, USA
Comments:

# 968
Name: Dickie Dickerson , April 5, 2010
Location: MS, USA
Comments:

# 969
Name: Paul Hager , April 5, 2010
Location: MS, USA
Comments:

# 970
Name: Christy Hager , April 5, 2010
Location: MS, USA
Comments:

# 971
Name: Josh Seymour , April 5, 2010
Location: MS, USA
Comments:

# 972
Name: Jim Seymour , April 5, 2010
Location: MS, USA
Comments:

# 973
Name: Matt Melton , April 5, 2010
Location: MS, USA
Comments:

# 974
Name: Ray Melton , April 5, 2010
Location: MS, USA
Comments:

# 975
Name: Wayne Engal , April 5, 2010
Location: MS, USA
Comments:

# 976
Name: Melinda Engal , April 5, 2010
Location: MS, USA
Comments:

# 977
Name: Mickey Stindkoler , April 5, 2010
Location: USA
Comments:

# 978
Name: Jerry Brantley , April 5, 2010
Location: ALABAMA, USA
Comments:

# 979
Name: Barbra Brantley , April 5, 2010
Location: ALABAMA, USA
Comments:

# 980
Name: Andy Brantley , April 5, 2010
Location: ALABAMA, USA
Comments:

# 981
Name: Tony Cosby , April 5, 2010
Location: mississippi, USA
Comments:

# 982
Name: Jenifer Crosby , April 5, 2010
Location: mississippi, USA
Comments:

# 983
Name: Misha Hoffmaster , April 5, 2010
Location: mississippi, USA
Comments:

# 984
Name: Bobby Ray Edwards , April 5, 2010
Location: mississippi, USA
Comments:

# 985
Name: BJ Edwards , April 5, 2010
Location: mississippi, USA
Comments:

# 986
Name: Willy Jaksons , April 5, 2010
Location: Baumholder, Germany
Comments:

# 987
Name: Elisabeth Jaksons, April 5, 2010
Location: Baumholder, Germany
Comments:

# 988
Name: Amy Myers, April 5, 2010
Location: Fulton, USA
Comments: I have very frequent major headaches, that no one can figure out where they come from.

# 989
Name: Maya Ostrowski, April 5, 2010
Location: Warsaw, Polska
Comments: torbieli pajęczynówki zrujnowali mi, kiedyś tętniące życiem młodej kobiety, a teraz ja jestem stary i zgarbiony. koniec tego teraz!

# 990
Name: Marg Notts, April 5, 2010
Location: UK
Comments:

# 991
Name: Amanda Smith , April 5, 2010
Location: Havelock, NC, USA
Comments:

# 992
Name: Dave Olson , April 5, 2010
Location: Havelock, NC, USA
Comments:

# 993
Name: Beth Olson , April 5, 2010
Location: Havelock, NC, USA
Comments:

# 994
Name: Bayl Ostrowski, April 5, 2010
Location: Polska
Comments:

# 995
Name: Raila Ostrowski, April 5, 2010
Location: Polska
Comments:

# 996
Name: Holly Freeman, April 5, 2010
Location: UK
Comments:

# 997
Name: George Freeman, April 5, 2010
Location: UK
Comments:

# 998
Name: Mark Gregson, April 5, 2010
Location: Birmingham, UK
Comments:

# 999
Name: Jennifer Gregson, April 5, 2010
Location: Birmingham, UK
Comments:

***# 1,000***
Name: Alan Kerr, April 5, 2010
Location: Stratford-upon-avon, UK
Comments: Diagnosed with M.E 20 years ago and last year MRI showed up an arachnoid cyst which I belive is responsible for some if not all my symptons. Had to leave University when I was 19 years old and been unable to work since. Please take arachnoid cysts seriously.Alot of GP's say they are an incidental finding on MRI Scans so why mention them in the letter I received if they're nothing to worry about. Are they trying to cover themselves legally in years to come if arachnoid cysts are found to be the cause of my serious symptons ?

# 1,001
Name: Danyal Balla, April 5, 2010
Location: Salisbury, Maryland, USA
Comments: A friend from the Marine Corps has a son who had an arachnoid cyst removed and will have learn disabilities the rest of his life.

# 1,002
Name: Jennifer Yuszka , April 5, 2010
Location: USA
Comments:

# 1,003
Name: Kristina Mitchell , April 5, 2010
Location: USA
Comments: I have an arachnoid cyst in the posterior fossa

# 1,004
Name: Ashley Sekaquaptewa , April 5, 2010
Location: Fort Worth, TX, USA
Comments: I have a beautiful friend who has Arachnoid Cysts that have caused serious problems in her life. She LIVES and she LOVES and she changes lives by just being herself. I want awareness of Arachnoid Cysts to increase because I want her and other people like her to be acknowledged and treated and to be okay.

# 1,005
Name: Kristina Pickett , April 5, 2010
Location: spencerport, ny, USA
Comments: Kym in this video is my cousin

# 1,006
Name: Artur Osiński , April 6, 2010
Location: Skarzysko-kamienna, Polska
Comments: precz z torbielami

# 1,007
Name: Stacy Pence , April 6, 2010
Location: USA
Comments:

# 1,008
Name: Terry O'Sullivan , April 6, 2010
Location: Glenside, PA, USA
Comments:

# 1,009
Name: Melanie Workman , April 6, 2010
Location: Shelbyville, IN, USA
Comments: Mine is rather large. It has affected my total health. Headaches, problems with coordination, because of the position of it. Dizziness, and nerve damage. I now have firbromyalgia, which may or maynot be related to this.

# 1,010
Name: Ashley Wood , April 6, 2010
Location: Western New York, USA
Comments: One of my best friends has a arachnoid cyst and I often have to watch her go through horrible headaches.

# 1,011
Name: Brooke Darnell , April 6, 2010
Location: USA
Comments:

# 1,012
Name: Zac Whitehead , April 6, 2010
Location: United Kingdom
Comments:

# 1,013
Name: Sloan Sherrill , April 6, 2010
Location: Conover, North Carolina,USA
Comments:

# 1,014
Name: Robynn Johnson , April 6, 2010
Location: Pensacola Florida,USA
Comments: My 4-year-old son was diagnosed at 14 months of age. He had hypothyroid, poor growth, and was dragging his right leg. The local neurosurgeon figured that the cyst was the cause of his endocrine issues and his motor issues. She recommended a shunt. After the surgery his hypothyroidism cleared, his growth took off and he quit dragging his leg. Unfortunately he has had many shunt failures and a shunt infection. To date he has had 17 brain surgeries. One surgery ended with a life threatening complication. The basilar artery was hit and Dylan almost died. After 8 weeks in the hospital and 2 at an inpatient pediatric rehab, Dylan is on his way to recovering. Our lives have been a constant battle to keep his neurological status since he was diagnosed. Please understand that these cyst DO cause complications that are not being recognized by many of the neurosurgeons.

# 1,015
Name: Cindy Schneider , April 6, 2010
Location: Indiana,USA
Comments: My 16 year old son has a left temporal lobe cyst. He suffers daily with headaches, dizziness, fatigue, vision problems, emotional difficulties, scoliosis, and the list goes on...

# 1,016
Name: Ashley Vorry , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,017
Name: Kristy James , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,018
Name: Tammy McAdams , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,019
Name: Kristen Gilmer , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,020
Name: Teresa Thomas , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,021
Name: Joey Kittrell , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,022
Name: Larven Tollison , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,023
Name: Ashley Rowlen , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,024
Name: Megan Jones , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,025
Name: Brady Richmond , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,026
Name: Jason Richmond , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,027
Name: Christi Jones , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,028
Name: Fallon Richmond , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,029
Name: Amy Boatman , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,030
Name: Craig Menshew , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,031
Name: Chey Menshew , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,032
Name: Tina Ghram , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,033
Name: Carla Pope , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,034
Name: Connie Granger , April 6, 2010
Location: Mississippi,USA
Comments:

# 1,035
Name: Αινείας , April 6, 2010
Location: Ελλάδα
Comments: Έχω ένα αραχνοειδής κύστη στον εγκέφαλό μου και μου έκανε προκάλεσε πάρα πολλές κακές ημέρες. Δεν είχα καμία ενέργειες για αυτό. Οι γιατροί εδώ δεν ενδιαφέρονται.

# 1,036
Name: Erastus , April 6, 2010
Location: Ελλάδα GREECE
Comments: Ο αδελφός μου έχει μια αραχνοειδής κύστη του εγκεφάλου του και να μην έχει πλέον είναι σε θέση να πάνε να εργαστούν ή να περπατήσει καλά. Η μητέρα μου πέθανε πέρυσι, οπότε είμαι μόνος επιστάτη του, και αυτό προκάλεσε μου να εγκαταλείπουν το σχολείο και να οικοδομήσουμε ένα μέλλον για τον εαυτό μου και την οικογένειά μου. Δεν θέλω να ήχος εγωιστικό, αλλά θα πρέπει να υπάρχει ένα πρωτόκολλο σε ισχύ για αυτό το είδος της ασθένειας, δεν έχει λάβει καμία θεραπεία από τους γιατρούς, είναι ακριβώς να αφήσει τον να λιώνω. Τι είδους πράγμα είναι ότι για να κάνει σε ένα ανθρώπινο ον;.

# 1,037
Name: Cindy Schneider, April 7, 2010
Location: Indiana, USA
Comments: My 16 year old son has a left temporal lobe cyst. He suffers daily with headaches, dizziness, fatigue, vision problems, emotional difficulties, scoliosis, and the list goes on...

# 1,038
Name: tansy harcourt, April 7, 2010
Location: sydney, Australia
Comments: My son has arachnoid cysts. He is 14 months old and has had brain surgery twice.

# 1,039
Name: Johnathon Clark, April 7, 2010
Location: Florence, USA
Comments: My niece has an left middle fossa arachnoid cyst. We need to find a way to treat these kids.

# 1,040
Name: Jade Partridge, April 7, 2010
Location: USA
Comments:

# 1,041
Name: Jan Burch, April 7, 2010
Location: MS,USA
Comments:

# 1,042
Name: Rachel Russell, April 7, 2010
Location: MS,USA
Comments:

# 1,043
Name: Dewhit Russell, April 7, 2010
Location: MS,USA
Comments:

# 1,044
Name: Monica Martell, April 7, 2010
Location: United Kingdom
Comments: My GP has never been able to treat my arachnoid cyst, he doesn't even think it is causing my symptoms. I'm tired of the BS.

# 1,045
Name: Terry Sathers, April 7, 2010
Location: NSW Austrailia
Comments: Where to begin? I feel like I'm repeating everyone else who's signed, but I'm sure that's the point of the petition. My physician doesn't think the cyst is capable of causing my headaches, dizziness, walking and talking problems. I'm so fed up with the whole thing.

# 1,046
Name: Martin Sathers, April 7, 2010
Location: NSW Austrailia
Comments: My son has been treated like trash by his doctors.

# 1,047
Name: Bart Mandle, April 7, 2010
Location: NSW Austrailia
Comments: My friend is messed up by his cyst. Someone please help us.

# 1,048
Name: Jean Mandle, April 7, 2010
Location: NSW Austrailia
Comments: I love my friend Terry, and his life has turn upside down by his arachnoid cyst. Thank you for those who started the petition. There needs to be more done to help someone with this disease!

# 1,049
Name: lance baker, April 8, 2010
Location: Austrailia
Comments: i have one + am in pain all the time

# 1,050
Name: Mal Lee, April 8, 2010
Location: Brisbane, Austrailia
Comments: Where do I start/ I once had a very successful career, was very confident & was happy with life. Then over a period of time 2-3 years I started to get headaches daily, couldn't focus, gained weight, was agressive & dismissive, lost energy, have neck soreness. I was told be several doctors it was depression but I wasn't depressed, I was told the symptoms don't make sense & it's all in my head. I finally had a new doctor who sent me for a brain scan which revealed a huge arachnoid cyst on my brain. Now my problem is that the nuerologist & nuerosurgeons don't believe the cyst is having any impact or creating any symptoms......tell that to my wife who has watched this all happen in front of her eyes! Very frustrating.

# 1,051
Name: kalpana Patel, April 8, 2010
Location: USA
Comments: my sister has an arachnoid cyst

# 1,052
Name: CHRIS TAYLOR, April 8, 2010
Location: UK
Comments: Yes, I too have an Arachnoid Cyst - and after 3 surgeries and many difficult years I certainly can say it has affected my life, not in a good way either!

# 1,053
Name: Jennifer Talbott, April 8, 2010
Location: Maryland, USA
Comments:

# 1,054
Name: Lori McSwain , April 10, 2010
Location: Valdosta, GA, USA
Comments: I met the amazing Dylan Johnson & his wonderful family during my son's brief stay at Shand's Children's Hospital in Gainesville, Fl. Seeing how the lack of research & knowledge of his condition has put this beautiful child, as well as his entire family, in a state of "wait & see" until who know's when is unbelievable. Arachnoid Cysts are real & desperately need to be recognized & studied for all of its victims!

# 1,055
Name: Michael Budzinski , April 10, 2010
Location: Buffalo, NY, USA
Comments:

# 1,056
Name: Amanda Morse , April 10, 2010
Location: Murfreesboro, TN, USA
Comments:

# 1,057
Name: Sarah Decker , April 10, 2010
Location: Virginia Beach, VA, USA
Comments: It's disabled my work life, cut back my hours, blackouts, migraines, dizziness, medicines and bedtimes that impeded the life of a "normal" 28 year old. I had to hold of on having children which I desperately wanted and planned for just as I found out my diagnoses. It has cost me in medical bills and time.

# 1,058
Name: rhinda boatright , April 10, 2010
Location: lebanon ohio, USA
Comments: some on in my family has ilness and has had five surgeries

# 1,059
Name: Graham Savage , April 11, 2010
Location: UK Expat, Spain
Comments: My partner has been diagnosed with 5cm right side peripheral arachnoid cyst following MRI scan. She sees a neurologist very soon in the UK. Fingers crossed that he's a good one! Her symptoms include; pressure headache pains, dizziness, vertigo type imbalance, stiffness & pain in shoulders & neck, pains behind left eye (opthalmologist says nerve endings are irritated), disrupted sleep patterns, stress related difficulties. She is worried sick & more symptom information is needed on this site, for the benefit of those like me. She is most grateful for the support from ACA. Keep this petition going.

# 1,060
Name: Shelly Jones , April 11, 2010
Location: Maryland, USA
Comments: Wow...where do I begin? Headaches, emotional outbursts, vision problems, dizziness. This is my last year of teaching school because of the AC. I can no longer tolerate the headaches. I am usually prescribed migraine medication which makes me very sleepy. The neurologist says there shouldnt be anything wrong me since most of the time I can walk a straight line. Most people don't understand.

# 1,061
Name: Tamara Jackson , April 12, 2010
Location: Big Rapids, Michigan, USA
Comments: My 10-year-old son has had headaches for 2 years. Now the headaches are daily constant head pressure with nausea and dizziness. Has missed 40 days of school from September - January.

# 1,062
Name: Stephanie Bertrand , April 12, 2010
Location: ottawa, ontario, Canada
Comments: I was diagnosed with having an Arachnoid Cyst in June of 2009.

# 1,063
Name: Matt Schultheis , April 12, 2010
Location: Kettering,Ohio, USA
Comments: I'm all about helping out friends or anyone suffering!!

# 1,064
Name: Peta Spinks , April 15, 2010
Location: Bundaberg, Australia
Comments: My 11 year old son has a midline, posterior AC. He has been suffering severe headaches for two months now, is nauseous most of the time and he gets dizzy. The neurosurgeon we saw said that the cyst was not big enough to be causing any problems. However, my son has been unable to attend school, he is scared, sad and depressed as there is no medication that has been effective in providing relief from his headaches. I have lost my bright, happy child. Do you know how hard it is to look you child in the eye and say, 'maybe you just have to learn to live like this'? How can so many people have the same story to tell and yet no one listens? Surely more research needs to be done on ACs.

# 1,065
Name: Savannah Baker-Teel , April 15, 2010
Location: Dallas,Texas, USA
Comments: I just found out that I have one in the left middle fossa of my brain.

# 1,066
Name: shawna ramsey , April 15, 2010
Location: lewistown pa, USA
Comments: my 2 year old daughter was diagnosed in march of 09. She has seizures, vomiting, headaches, and does not sleep. She has other issues as well. Her doctors are treating her for epilepsy not the cyst.

# 1,067
Name: Donald Emerson , April 15, 2010
Location: USA
Comments:

# 1,068
Name: Kristen Varano , April 16, 2010
Location: USA
Comments: I am newly diagnosed. I found out last week that the cyst was found on an MRI in August and my doctor never notified me. I am very scared.

# 1,069
Name: glen miller , April 16, 2010
Location: Murray, KY USA
Comments: balance problems, nausea, vomiting, headaches, Seizures, Have had 1 Fenstration and Now just had my first VP Shunt Implant

# 1,070
Name: samantha palmer , April 18, 2010
Location: huntington beach, ca USA
Comments: i was diagnosed in 1996 with an arachnoid brain cyst, my entire life all i can remember are the headaches i've endured since i was about five years old. I am 22 years-old today, one major brain surgery under my belt and I have never lived better.. but thats due to the medication I've found to relieve my pressure.. Pain killers, I've had them all.. none worked, when I started smoking cannabis, my life greatly improved. Just a little helpful important when it comes to your own health, make your own decisions... smoking for over five years now and I wish I found cannabis early. I wish everyone who has this to find peace of mind, anyway possible.

# 1,071
Name: Jessica Mandell , April 18, 2010
Location: Hampton, VA USA
Comments: I have an arachnoid cyst and I can't find a doctor to take me seriously. I don't have insurance so that makes it even harder. I can feel my body breaking down and it is so frustrating. I worry about not being able to be a good mother to my daughter because of my headaches, fatigue and pain.

# 1,072
Name: EMMA HUTCHINSON , April 19, 2010
Location: mansfield, UK
Comments:

# 1,073
Name: Della Linfield , April 19, 2010
Location: nottinghamshire, UK
Comments:

# 1,074
Name: becky stringfellow , April 19, 2010
Location: nottinghamshire, UK
Comments:

# 1,075
Name: Deborah Stevenson , April 19, 2010
Location: New York, USA
Comments: I'm not sure if my symptoms are caused by my arachnoid cyst but I've been running to many doctors and have had many tests. Mine is still small, 2cm. I have tinnitus in both ears and have recently developed head pains on my left side of my head (the side where the cyst is located). In reading and hearing so many stories, I'm wondering if it's best to have the cyst taken out before there is any chance of it growing. There seems to be a general attitude by doctors that these cysts will most likely not grow and cause symptoms and then they look to other things. I'm scared of surgery but am now thinking, maybe these cysts are best removed when they are small and cause minimal symptoms. I'm grateful that an awareness is being raised. I agree that the medical community has to be educated by us, the patients. Thank you and I will help to support your efforts.

# 1,076
Name: Janine Reyes , April 20, 2010
Location: Oklahoma, USA
Comments: I just found out I have a AC on the base of my brain, this was daignosed after suffering from almost daily migraines for over 10yrs after a car accident while I was in the army and finally a Dr (military Dr/husband is Army) did an MRI, my neurologist doesn't seem too concerned unless my migraines can't be controlled, which they are not and I now get numbness all over my skull and these weird sensations like lightheaded and in a cloud just from moving or a breeeze hitting my face and lots of pressure on the base of my neck .

# 1,077
Name: Susan Reed , April 22, 2010
Location: Franklin KY, USA
Comments: I have been battling migraines, which have turned worse the last two years. I'm experiencing at times blackouts and numbness. I want to feel better and would hope that doctors would want to help people with Arachnoid Cysts to get well.

# 1,078
Name: Diane Ferry , April 23, 2010
Location: Randleman,NC, USA
Comments:

# 1,079
Name: Christina Forline , April 25, 2010
Location: Philadelphia, PA, USA
Comments:

# 1,080
Name: Christine Benlafquih , April 26, 2010
Location: Morocco
Comments:

# 1,081
Name: Sarah Connelly , April 26, 2010
Location: New Jersey, USA
Comments:

# 1,082
Name: Meredith Billings , April 27, 2010
Location: maine, USA
Comments: I have an arachnoid cyst in my temporal lobe, its gradually getting bigger, but I feel that its the cause of my severe headaches, and weakness. I was told it was no big deal , they will keep and eye on it. So its been hard, it was found in 2003, but not before then, when I was having an MRI , for suspicion of MS. No lesions just the cycst. I have had a couple MRI's before then, but there was no Cyst. It was just there one day.

# 1,083
Name: Tammy Thomas , April 27, 2010
Location: New Haven, West Virginia, USA
Comments: My 10yr old son's MRI revealed an arachnoid to his left parietal area. He's been having severe headaches with n/v and some cognitive changes during the headaches. We still haven't talked with his doctor regarding the results. Hopefully tomorrow we will know more.

# 1,084
Name: Summer Robinson , April 27, 2010
Location: Fort Bragg, NC, USA
Comments: One of my identical twin daughters was born w/ a Retrocerebellar Arachnoid Cyst. She is 2 1/2 and cannot yet sit, crawl, walk, or talk. She has been through 11 brain surgeries, and will be undergoing her 12th in June, but has never been her cyst has never been operated on, as we where told that it is inoperable. Mentally, she is right on schedule developmentally, but physically...she has many developmental delays caused by the cyst and her 4 other underlying diagnosis.

# 1,085
Name: Gislaine Rossa, May 3, 2010
Location: London, England UK
Comments:

# 1,086
Name: Steffenie Robinson, May 5, 2010
Location: USA
Comments: My 9 year old son has one

# 1,087
Name: Valerie Tchorz, May 8, 2010
Location: Allen Park, Michigan, USA
Comments:

# 1,088
Name: Brandie Dees, May 8, 2010
Location: Hamilton, ohio, USA
Comments: My 3 year old son has a arachnoid cyst

# 1,089
Name: Victoria Papi, May 9, 2010
Location: Pennsylvania, USA
Comments: My daughter has had migraines.

# 1,090
Name: Mary Parisen, May 10, 2010
Location: New York, USA
Comments: I was experiencing dizziness and was told by an ENT doctor to get an MRI with contrast. It was discovered that I had two arachnoid cysts. I went to two neurosurgeons and they both say to leave them alone even though they are pressing on my 7th and 8th cranial nerve. The symptoms subsided but now two months later the dizziness came back and I have this la la land feeling.

# 1,091
Name: gabriela boulangger, May 11, 2010
Location: birmingham, al, USA
Comments:

# 1,092
Name: Lisa Siprell, May 11, 2010
Location: Florida, USA
Comments: I'm the mother of a 6 year old little boy who suffers from horrible headaches due to an Arachnoid Cyst.

# 1,093
Name: Courtney Smith, May 12, 2010
Location: Wichita, Ks, USA
Comments:

# 1,094
Name: Tania Wisner, May 12, 2010
Location: Ks, USA
Comments: My daughter has been having migraines since she was in elementary school. She was finally given an MRI and they found an arachnoid cyst in her right frontal lobe. The neurosurgeon told her and I am quoting here.."Act like you never knew you were told you had an arachnoid cyst". They are benign, don't cause symptoms, can't possibly be the reason for any of her problems. I would love for him to sit with me in the middle of the night, rubbing her head, watching her cry. Watching the light fade from her eyes. The joy gone from her voice. I hate this feeling of powerlessness. It's heartbreaking to be unable to help your child.

We actually found some doctors that might help thanks to your site. I will, no thanks to certain doctors, help my child.

# 1,095
Name: Sheila Frye, May 12, 2010
Location: Ks, USA
Comments: My niece has it.

# 1,096
Name: Tara Chandler, May 13, 2010
Location: apopka, florida, USA
Comments: Debilitating headaches, nausea, dizziness, numbness/tingling to face, shortness of breath, rapid heart beat, exhaustion, pressure in ears and behind eyes

# 1,097
Name: Amanda Arendale, May 14, 2010
Location: NC, USA
Comments: have major headaches, vision problems, and tingling in hands.

# 1,098
Name: Rosana Hernandez, May 14, 2010
Location: Cashton, Wisconsin, USA
Comments:

# 1,099
Name: Stephen Boyle, May 14, 2010
Location: Henderson, Nevada, USA
Comments:

# 1,100
Name: Olivia Bentley, May 16, 2010
Location: Texas, USA
Comments: I just found out about 1 year now. I have had very bad magraine headaches, short term memory loss, loss of balance and I feel like my symptoms are getting worse not better as time goes by. And alot of you are right, alot of Doctors do not recognize Arachnoid Cysts, because they have never heard of them. Ever some Neurologists do not know about them. I glad someone is doing something about this time of condition. Thank-you. And it had been very difficult with the symptoms. I wish I could feel better:)

# 1,101
Name: Ellen van der Hoek, May 17, 2010
Location: Aerdenhout, The Netherlands
Comments: Just diagnosed with a really big cyste of 11,5cm with a lot of symptoms now for a long time and increasing. Hopefully solution fast.

# 1,102
Name: Sherry Deisher, May 18, 2010
Location: Illinois, USA
Comments: I was diagnosed with an AC in November of 2006. I have become very symptomatic and have seen several doctors that tell me nothing is wrong with me even though the people around me tell me that I am getting worse. I have yet to find a doctor that will " fix " me. I want to thank you all for making people more aware of this illness.
God Bless You!

# 1,103
Name: Naoimh Maher, May 18, 2010
Location: Blarney, Ireland
Comments:

# 1,104
Name: Kathe McBeth, May 18, 2010
Location: Silver Spring, MD, USA
Comments: My grandson, Joey, has just been diagnosed with a posterior fossa arachnoid cyst which has been causing headaches & dizziness -- Joey is only 8 years old. He has an appointment with a neurosurgeon this week and a neurologist soon to discuss options. These are frightening days for us.

# 1,105
Name: James Webster, May 18, 2010
Location: Melbourne, Australia
Comments: My partner has an arachnoid cyst and it is affecting her quality of life. It breaks my heart to see such a beautiful, capable, strong and independent woman like her suffer from the symptoms. I see her symptoms all the time that the doctors who have seen her for 20 minutes say are all in her head. It makes me so angry that no one in the medical profession seems to believe her apart from the odd GP and sad to see my beautiful girl in pain, I can't begin to imagine what it must be like for her.

People with arachnoid cysts need to be shown some respect and deserve to at least be listened too by doctors and specialists so they have a chance of improving their quality of life.

# 1,106
Name: Lisa De Bogele, May 19, 2010
Location: USA
Comments: My son was diagnosed in 2006. Had a fenestration. FRecently rediagnosed 2009

# 1,107
Name: Aaron Olson, May 19, 2010
Location: Minnesota, USA
Comments:

# 1,108
Name: Joey Lannigan, May 19, 2010
Location: Canada
Comments: Friend of Dia DiCristino

# 1,109
Name: Evan Halpern, May 20, 2010
Location: USA
Comments:

# 1,110
Name: julieanne quirke, May 21, 2010
Location: victoria, Australia
Comments: i couldnt begin to tell you how less of a person i have felt living day to day with this cyst i had symptoms of headache that felt like someone was holding a welder on my brain to stabbing pain behind my eye i suffered slurred speech and memory loss as well as blackouts to pins and needles in my arms and hands to weakness then was diagnosed with the cyst the headaches are now chronic and seem to have lost the abilty to spell things as good as i once did still with the sysmptoms i mentioned the doctors say these symptoms are not from the cyst i am confused and just want to be the person mothere friend sister i once was

# 1,111
Name: naomi gresty, May 21, 2010
Location: victoria, Australia
Comments: My best friend/sister is suffering and doctors will not operate on her....she doesnt want brain surgery as much as the next person, but this affecting her daily life as a mother of 5 children....she wants to have the surgery in hope that it will alleiviate the daily pain and stress...doctors here in Australia refuse to hear her daily difficuties with this condition
yours faithfully
Naomi Gresty

# 1,112
Name: Kerry Williamson, May 21, 2010
Location: Adelaide, Australia
Comments: I have a dear friend who is suffering with this, I cannot begin to imagine the pain she feels and it amazes me how she actually makes it through a day.
PLEASE get something done about EARLY detection if possible, also PLEASE listen to patients and the parents of these young ones, they live with this every second of every day. Like CRPS, these people are not generally believed.
As the video is asking SOMEHOW TRAIN doctors PLEASE.
thanks

# 1,113
Name: chris teague, May 21, 2010
Location: victoria, Australia
Comments:

# 1,114
Name: june taylor, May 21, 2010
Location: harwich essex, UK
Comments:

# 1,115
Name: Michelle Richter, May 23, 2010
Location: Massachusetts, USA
Comments: My 16-yr.old son was diagnosed with an Arachnoid Cyst on his left temporal lobe after scans ordered for a football-related concussion in November 2009. Only weeks later did scans and new vision-related symptoms show that the cyst membrane had torn and a subdural hematoma had resulted. One craniotomy, sensory siezure activity afterwards and 2 medications later...we are finally on the road to recovery!

# 1,116
Name: Lorie Jones, May 23, 2010
Location: Spring, Texas, USA
Comments:

# 1,117
Name: Janet Louw, May 25, 2010
Location: Stellenbosch, South Africa
Comments: My daughter has an arachnoid cyst, she is 7 years old, upto about 6 months ago there was no obvious symptoms, but for the last 6 months she gets a headache just about every day.

# 1,118
Name: Julie Recchia, May 25, 2010
Location: Australia
Comments: My 9 year old daughter was diagnosed with an right frontal lobe arachnoid cyst in 2003, it was initially thought she had a brain tumour because of migraines and deteriorated vision (which was never fully restored) after being administered with Prednisolone . This resulted in four years of "reactions/allergies" which were all put down to being psychological after intensive testing. Only the psychiatrist agreed with me that she was a well balanced child and the doctors just didn't know what was causing her symptoms so had to label it psychological. She has since "grown out" of these allergies and we are just biding our time. She is now 16 and has been symptom free for a few years.

# 1,119
Name: Stanisław Skórka, May 27, 2010
Location: Tarnobrzeg, Polska (POLAND)
Comments: Jestem sam z tym rozpoznaniem i nie mam żadnego wsparcia, poza ignorancją lekarzy, którzy każą mi ignorować ból i wiele innych objawów, które są nie do zniesienia!

# 1,120
Name: Susan Grantland, May 27, 2010
Location: Bosque Farms, New Mexico, USA
Comments:

# 1,121
Name: Martin Hinshelwood, May 28, 2010
Location: Glasgow, Scotland, UK
Comments: My son has a cyst and it is killing us :( http://blog.hinshelwood.com/archive/2010/05/26/kaiden-and-the-arachnoid-cyst.aspx

# 1,122
Name: Amanda Kirspel, May 28, 2010
Location: Atlanta, Ga, USA
Comments: I was diagnosed with an arachnoid cyst 3 months ago but have been suffering from the symptoms for 5 years now and continue to because the doctors do not believe the "Wow!That's a BIG cyst" cyst is causing any problems.

# 1,123
Name: Debbie White, May 29, 2010
Location: Austin Texas, USA
Comments: my daughter was just diagnosed with this

# 1,124
First Name    Susie
Last Name    Dykstra
Date: June 1, 2010
Location    Olympia, WA
Country    USA

# 1,125
First Name    Christina
Last Name    Crompton
Date: June 1, 2010
Location    Kansas
Country    USA
Comments--How has an arachnoid cyst affected your life?    I was diagnosed at the age of 5, I have gone 18yrs untreated and now DEEPLY regret not having taken treatment. I am now 30 and this disease controls my life completely. I too have been told its all in my head which anyone who lives with this horrid disease understands the frustration associated with doctors and the "its all in your head" diagnosis. Thank You SO MUCH for supporting our cause!

# 1,126
First Name    Diane
Last Name    Urquhart
Date: June 1, 2010
Location    Kennewick, WA
Country    USA
Comments--How has an arachnoid cyst affected your life?    My husband and I just received the news on Friday May 31st that our 6 year old son has this cyst. I will never get the scanned images of those pictures showing this cyst out of my head. We are new to this walk and send prayers for those who have already begun their journey into this unknown (for us) world of hope and fear for our little boy.

# 1,127
First Name    Steffenie
Last Name    Robinson
Date: June 1, 2010
Location    Oregon
Country    usa
Comments--How has an arachnoid cyst affected your life?    My 10 year old son has an arachnoid cyst and he suffers with it daily!

# 1,128
First Name    Julie
Last Name    Cunningham
Location    Scotland
Country    UK
Comments--How has an arachnoid cyst affected your life?    My best friend's beautiful 15 month old baby has just been diagnosed and is waiting for surgery

# 1,129
First Name    Barbara
Last Name    Moorefield
Country    USAM
Comments--How has an arachnoid cyst affected your life?    We found my 10 year old son's cyst when he was 11 months old. We have been told by more than one doctor that it isn't the cause of his behavior, developmental delays, headaches, visual distortions, language delays, social skill problems, bedwetting, balance/coordination issues, stabismus, anger, attention problems, etc. So, if the cyst is not the cause, then what is? No one has given us an answer, but I believe the answer is.... THE CYST. Please help us bring awareness to arachnoid cysts, so that someone will take us serious and research the best treatment for these cyst. Thank you.

# 1,130
First Name    Aubrey
Last Name    Johnson
Location    Colorado
Country    USA

# 1,131
First Name    Delicia
Last Name    Sorensen
Location    WA
Country    USA
Comments--How has an arachnoid cyst affected your life?    My daughter has a large arachnoid cyst, that is causing vision problems and a change in her behavior (inappropriate outburts and laughter, anixiety and inability to stay focused). Right now I feel like I am living on eggshells waiting to get something done and trying to get doctors to believe what my daughter is saying.

# 1,132
First Name    Carolyn
Last Name    Clancy
Location    Dallas, TX
Country    USA

# 1,133
First Name    Jessica
Last Name    Aycock-Smith
Location    Summerdale, Alabama
Country    USA
Comments--How has an arachnoid cyst affected your life?    How has it not affected my family and I? Every day is a challenge. I am in a severe amount of pain. My head hurts, my neck throbs, my vision is deteriorating, seizures, ringing in ears, pressure Lots of pressure in head and behind eyes, confusion, aggravation, memory loss, disorientation and much more. The fact that most doctors do not think that these symptoms can be related to the AC is crazy. How is that people all of the world, who have never spoken and do not know of each other can all report with same symptoms and all have AC?

# 1,134
First Name    Emerita
Last Name    Ruiz
Country    United States


# 1,135
First Name    Shlenae
Last Name    McBride
Country    USA
Comments--How has an arachnoid cyst affected your life?    My husband has an arachnoid cyst and it has been a nightmare. He had to take medical leave. He gets numb and gets a lot of pressure in his head. Sometimes his eyes feel like popping out. He loses balance and gets spacy. Please take the time to sign this petition. Thank you!



# 1,136
First Name    Melinda
Last Name    Wingate
Location    North Carolina
Country    USA
Comments--How has an arachnoid cyst affected your life?    Nearly 2 years ago, my daughter (9 years old at the time) began having excruciatingly painful headaches that left her unable to do anything but curl up in bed & cry.
Her pediatrician sent her to have a CT scan where they saw "something", then we were sent for an MRI & they found a 4cm arachnoid cyst.
I was told there was nothing to worry about, that these were quite common. The neurologist also said he did not believe her headaches were caused by the cyst.
She continues to have headaches, and I feel like everyone thinks that I am over-reacting when I bring up the cyst.
I worry that no one, other than me, takes it seriously.

# 1,137
First Name    Sandy
Last Name    Ott
Location    Ashland, KY
Country    USA

# 1,138
First Name    Kendall
Last Name    Young
Location    Palmdale, ca
Country    united states
Comments--How has an arachnoid cyst affected your life?    I have an Arachnoid cyst in the posterior fossa of the cerebellum. I am 26 years old I was diagnosed April 2006 but have had symptoms since 2003. First hospitalized in 2005. there is a great deal to say, and great deal of time to spend with a person like me and I am sure everyone else on this site. We have all been fed the same information or lack of information from doctors world wide. we all sound like each others echos. I have had 1 surgery and another to clean up the MRSA I received due to my surgery. well I thought I was doing pretty okay after, only to find out the cyst grew back again in the matter of months. diagnosed again 2009. same placement same size I started out with. 2.5 cm starting then by my surgical date 5x5 cm. last year 2.5cm and I'm not sure now, beacuse it takes an Er visit and alot of asking for an MRI w/ contrast.

# 1,139
First Name    Doreen
Last Name    Melchiorre
Location    Chicago-Illinois
Country    America
Comments--How has an arachnoid cyst affected your life?    My 16 yr old son has one he was diagnosed 2 yrs ago.. They do not treat it like it a big deal but it is... Diet and anxiety have a lot to play on this affecting htis cyst. His high school does not understand he has difficulty and they put me through hell...They do not want to see any findings on it and the nuerologists will not support any special accomodations...We have to rise up and take a stand and get these doctors to listen to their patients and creat a bigger awareness of this problem. We need to stand together strong and unite ...Lets get going and start making people AWARE OF THIS...I NEED YOUR HELP!!!

# 1,140
First Name    Peta
Last Name    McLean
Location    Queensland
Country    Australia
Comments--How has an arachnoid cyst affected your life?    constant headaches. confusion, decreased concentration, memory loss

# 1,141
First Name    jo
Last Name    copley
Country    england
Comments--How has an arachnoid cyst affected your life?    my son has had surgery for a 6.5 5.5cm aracnoid cyst.he is now 9 ,surgery was in 2007 .still has ongoing symptons.

# 1,142
First Name    adam
Last Name    shive
Location    Pennsylvania
Country    'merica
Comments--How has an arachnoid cyst affected your life?    I think what's worse than knowing whether or not the cysts are a problem is not knowing whether or not they are a problem. A bunch of different doctors have given me totally differing opinions on what this thing in my head is. Some have said it's an enlarged cisterna magna, some an arachnoid cyst. Through cases as such we can plainly see that medicine is an art. All I know is I want to stop feeling miserable, tired and headache-y. If it's the cyst or if it's all in my head or if it's because i'm a lazy slob, definitively I want to know. Though, probably never will.


# 1,143
First Name    linda
Last Name    lemaster
Location    ohio
Country    usa
Comments--How has an arachnoid cyst affected your life?    my 4 year old grandson, has an arachnoid cyst...we are waiting to see a doctor...


# 1,144
First Name    Brandy
Last Name    Phipps
Location    Thawville, Illinois
Country    USA
Comments--How has an arachnoid cyst affected your life?    My husband and I had to move back to Illinois from Louisania so our family can help with all the docs appt. and everything else that goes along with this. I feel like all the docs that I go to do not know what they are talking about. I have been to four of them know and they all say yes you have a cyst but there is nothing we can do about it cause of the location of it. So I keep taking all of my meds and keep looking for the right doc that can take this thing out!!!!!!


# 1,145
First Name    Eduardo Pereira
Last Name    Bartalo
Location    Sao Paulo
Country    Brazil
Comments--How has an arachnoid cyst affected your life?    My son has, and he has a lot of problems in school.


# 1,146
First Name    Stacey
Last Name    Czap
Location    Indiana
Country    United States
Comments--How has an arachnoid cyst affected your life?    I have an arachnoid cyst and have headache's, vomiting, dizzeness, and vision problems that are only getting worse!

# 1,147
First Name    nikki
Last Name    wallace
Location    glasgow
Country    scotland
Comments--How has an arachnoid cyst affected your life?    My son was born in august 2008 with an arachnoid cyst on the right side of his brain measuring 2.7 x 2.7 cm. He had an MRI when he was just 2 weeks old and another one last month i have been told from his neurosurgeon that it has grown by 1cm but we have nothing to worry about as it wont cause him any problems, i am however concered as my son has had a series of problems that i feel are related to the the cyst but have been dismissed by doctors saying its nothing to worry about, this is why i am now doing my own research as i am not completely satisfied with what i have been told by the medical team involved.

# 1,148
First Name    joanne
Last Name    knupp
Country    usa
Comments--How has an arachnoid cyst affected your life?    I have a 4.4x2.8x2.7 arachnoid cyst on the cerebellum. My symptoms have become exacerbated since my accident on12/23/09, and have been diagnosed with a TBI. I can no longer work as an RN. I am extremely fatigued, have vertigo, visual disturbances, sensitive to light and noise, and head feels full all of the time.


# 1,149
First Name    Laurie
Last Name    Lyddy
Location    Battle Creek MI
Country    USA
Comments--How has an arachnoid cyst affected your life?    It has changed who I was into who I was meant to be I guess. That is a positive way of thinking of it I suppose. I live with constant pain and migraines. I fly off the handle at a moments notice and always feel like I am the odd man out. It freakin sucks to be perfectly honest. But I won't quit trying to make it better.


# 1,150
First Name    Samantha
Last Name    Di lorenzo
Location    Alabama
Country    USA
Comments--How has an arachnoid cyst affected your life?    I was diagnosed with an arachnoid cyst in January 2010 after a seizure caused me to black out and cause an emergency landing of an aircraft. I had never heard of arachnoid cysts until my doctor told me my MRI was abnormal.

# 1,151
First Name    Stacey
Last Name    Chase
Location    Clearwater fl
Country    Usa
Comments--How has an arachnoid cyst affected your life?    I went from living a normal life for 27 years to the worst pain you could ever imagine. My senses are super heightened to the point I could hear a meat loaf cooking in my over b/c the eggs. 3 years later 3 surgeries later, the last being on june 10 2010 the day after my 30th birthday. What a way to bring in your 30's! Lol I try to make the best of it but living with a never ending headache/nausea and vomiting make it hard. But I keep going and make the best of it. At least I'm lucky in that I have a surgeon who doesn't dismiss me.

# 1,152
First Name    Melissa
Last Name    Karagiannis
Location    Hamilton,Virginia
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have a child with an arachnoid cyst. That is doing very well, but I am so happy to see this awareness site.


# 1,153
First Name    Michael
Last Name    Bazemore
Location    SC
Country    USA
Comments--How has an arachnoid cyst affected your life?    Our son was having seizures so they performed an mri of the brain and found his arachnoid cyst.


# 1,154
First Name    Clayne
Last Name    Corey
Location    Sandy, Utah
Country    USA


# 1,155
First Name    Ricky
Last Name    Cardenas
Location    Wisconsin
Country    USA


# 1,156
First Name    teresa
Last Name    Garcia
Country    USA
Comments--How has an arachnoid cyst affected your life?    After my son has meningitis for the second the doctor did a ct scan that showed a large aracnoideal cyst in left phosa. My life has change. After 3 years my son just had a surgery yetarday. so far he has no severe complication tought he had a complex partial sizure. Please pray for my son that he will get well and live witout all the complication of this disease.Thanks

# 1,157
First Name    Melissa
Last Name    Van Der Zwan
Country    Australia
Comments--How has an arachnoid cyst affected your life?    It hasn't. But it's something I care about.


# 1,158
First Name    jimmy
Last Name    busch
Location    Atlanta, Ga
Country    United States
Comments--How has an arachnoid cyst affected your life?   

im jimmy and i have an inter-cranial arachnoid cyst

# 1,159
First Name    Allison
Last Name    Brinegar
Location    Louisville Kentucky
Country    United States
Comments--How has an arachnoid cyst affected your life?    My boyfriend of almost a year and a half now just found out he had one on his brain. We went and got a MRI for him and are waiting for the results.


# 1,160
First Name    Liz
Last Name    Garver
Location    Michigan
Country    USA
Comments--How has an arachnoid cyst affected your life?    My granddaughter was born with it.


# 1,161
First Name    Johnny
Last Name    Mihelcic
Country    USA
Comments--How has an arachnoid cyst affected your life?    A friend's newborn has the condition and only just was able to return back home.

# 1,162
First Name    Laura
Last Name    Francisco
Location    Chicago,lL
Country    USA


# 1,163
First Name    Anita
Last Name    Strand
Country    Michigan, USA

# 1,164
First Name    Deborah
Last Name    Francisco
Country    US
Comments--How has an arachnoid cyst affected your life?    My little baby great niece had one at birth, she had a procedure done to drain it.

# 1,165
First Name    Begona
Last Name    Ruiz
Country    USA

# 1,166
First Name    sandra
Last Name    Patterson
Location    Talladega, Al.
Country    United States
Comments--How has an arachnoid cyst affected your life?    I just found out that i have a arachnoid cyst, the doctor said that I did not need surgery to remove, But I am afraid that I will later on. he said it has been there before birth probably the first 3 weeks in the womb. I am glad to see this support group. I have watch the videos of other patients. what can I do to help get this info out there?

# 1,167
First Name    James
Last Name    Chaffins
Location    Martin, Kentucky
Country    USA
Comments--How has an arachnoid cyst affected your life?    It is ruining my life...seeing a Dr. is like walking into a wall...I have been told, I am not having symtoms, or that they are not from my AC..but yet, I can't hardly function in daily life, because of My headaches, nausea, sweats, indigestion, vertigo, blurred vision, it goes on and on. I never felt so helpless, and useless in my whole life, someone needs to Educate the Medical Society more, so that people like me don't have to suffer needlessly. Thanks so much James Chaffins

# 1,168
First Name    Micheal
Last Name    Berry
Location    Woy Woy, New South Wales
Country    Australia
Comments--How has an arachnoid cyst affected your life?    I was diagnosed in may 1994 (aged 30) after I suffered a tonic clonic seizure which left me with paralysis of my right arm and leg. I suffer from headaches, dizzy spells, nausea, short term memory problems, absence seizures, sleep disturbances and motion sickness. As a result of these problems I can no longer work (was train driver and volunteer fire-fighter) and because I also suffer from mood swings and depression I find it difficult to make or keep friendships. My life before the health problems destroyed it was one of excitement, fun and self satisfying, but now I don't have any of that! My cyst is 15cm x 7cm x 5cm worth of destruction!

# 1,169
First Name    JOANNA
Last Name    PRYER
Location    Las Vegas
Country    USA
Comments--How has an arachnoid cyst affected your life?    MY FRIENDS DAUGHTER WAS BORN WITH IT..

# 1,170
First Name    Kimberly
Last Name    Smith
Location    Galway, New York, USA
Country    USA
Comments--How has an arachnoid cyst affected your life?    PLEASE HELP


# 1,171
First Name    Leslie
Last Name    Davies
Location    Utah
Country    USA



# 1,172
First Name    Katrina
Last Name    Zalewski
Location    Hayes,Va.
Country    USA


# 1,173
First Name    Kathleen
Last Name    Krull
Location    Lancaster, New York
Country    USA
Comments--How has an arachnoid cyst affected your life?    My son was diagnosed with an arachnoid cyst at 7 years of age. Due to the size he had surgery 4 days later at Women and Children's hospital in Buffalo, New York. He is currently 10 years of age and lives with an arachnoid cyst on his brain.

# 1,174

First Name    Aurelia
Last Name    Frank
Location    Kingwood TX
Country    USA
Comments--How has an arachnoid cyst affected your life?    My son (3 years old) was currently diagnosed with an arachnoid cyst

# 1,175


First Name    Tracie
Last Name    Zueger
Location    Sidney
Country    USA
Comments--How has an arachnoid cyst affected your life?    My daughter is a arachnoid cyst sufferer. Nine surgeries later.


# 1,176

First Name    jane
Last Name    frankland
Location    blue mountains
Country    australia
Comments--How has an arachnoid cyst affected your life?    My 13 year old son has daily headaches, dizziness and lethargy.He rarely attends School and nobody seems to care.

# 1,177


First Name    stephanie
Last Name    burris
Location    4th ventrical
Country    usa
Comments--How has an arachnoid cyst affected your life?    I have suffered migraines, whoosing in my ears, visual disterbances, nasea, dizziness, trembling, tinnitus, drop attacks, referred nerve pain (sometimes my legs feel like they are burning), numbness, vomiting, racing heart, twitching, leakage of CSF out my nose and fatigue. I have days where I feel like I can't cope with this. I was told it was benign and all my blood test are normal. I have been in such dispair and discomfort at times that I have wanted to die and yet I have everyone in my life to live for. This is not benign, these are not the sypmtoms that normally healthy people experience. Doctors need to learn about this and they need to take it seriously.

# 1,178


First Name    Zachary
Last Name    MacGillivray
Location    California
Country    USA
Comments--How has an arachnoid cyst affected your life?    I had a fenestration which was unsuccessful and then a shunt installed. When I was younger I woke up unable to walk for a few days, I have headaches and pressure in my head. I have migrains and suffer from other symptoms from my cyst.

# 1,179


First Name    charlotte
Last Name    dersley
Location    southend essex
Country    uk
Comments--How has an arachnoid cyst affected your life?    my life is sooo bad i wish the pain would go away i have suffered for 2 years now and cant take anymore on my worse days i would gladly end it if it wasnt for my son! i cant move when at its worse feel so helpless help me pls!

# 1,180


First Name    Erin
Last Name    Wilson
Location    Deux Montagnes
Country    quebec
Comments--How has an arachnoid cyst affected your life?    My 4 year old son was diagnosed a few months ago!!!

# 1,181

First Name    patricia
Last Name    parciak
Location    Midlothian,il.
Country    usa

# 1,182


First Name    Randolph S
Last Name    Yale
Location    Harveys Lake,PA
Country    The Good ol US of A
Comments--How has an arachnoid cyst affected your life?    I always knew there was something wrong with me. The back of my head would hurt so bad that I would put an ice pack on it and I would be told that it was my lymphnods fighting off something. 8/6/10 at age 40 is when I went to the er with head, neck,back, and chest pains,nasia,dizziness,trouble breathing, shooting pains in my head and face. I was so scared, I did not understand what was going on with me! I was Blood worked= OK,stress test= OK,CT scan.......=arachnoid cyst 5-6cm in the back of my head. I have trouble with my vision and my hearing with terrible ringing that gets really loud sometimes, fatigue,headaches,groggyness, shooting pains in my head, face, and eyes,trouble thinking.... and it gets worse with heat or temperature changes. I'm truly scared, it seems to be getting worse. I have a 9 year old daughter that means everything to me and this cysts symtoms has effected our relationship, my job,my social life........I stopped doing the things I truly love to do because I feel like crap all the time and am depressed allot because of it.

# 1,183


First Name    Irene
Last Name    Parker
Location    Las Vegas, NV
Country    USA

# 1,184


First Name    Ashleigh
Last Name    Brown
Location    Winnipeg
Country    Canada

# 1,185

First Name    Anna
Last Name    Wulff
Location    Michiana Shores, IN
Country    USA
Comments--How has an arachnoid cyst affected your life?    Just found out I have one after having seizures out of the blue. Being told by professionals there's nothing that needs to be done and the seizures were completely unrelated just because noone seems to know anything about them is not ok. Being told not to worry about the seizures and the cyst unless (until) I have another seizure is unacceptable, dangerous, and immoral. Arachnoid cysts exist and have symptoms that can kill. Research must be done! I feel like a walking time bomb.


# 1,186


First Name    kody
Last Name    shetterly
Location    Tennessee
Country    United States
Comments--How has an arachnoid cyst affected your life?     My eight year old son was diagnosed this year with a small arachnoid cyst on the frontal lobe and has head aches almost daily along with some other related symptoms.


# 1,187


First Name    Sue
Last Name    Pleasant
Location    Margate
Country    United Kingdom
Comments--How has an arachnoid cyst affected your life?    My son has an arachnoid cyst, and we are having trouble getting him an appointment with a neurologist. My local hospital is dragging its heels, and I am desperate for him to be seen and treated.

# 1,188


First Name    Jennifer
Last Name    Ewing
Location    Leesburg, VA
Country    USA
Comments--How has an arachnoid cyst affected your life?    My 11 month old son has an arachnoid cyst that was discovered a little over a month ago. On July 22, 2010 he had a fenestration procedure; but we are back in the hospital and he may need second surgery, a shunt.

# 1,189


First Name    Timothy
Last Name    Hosman
Location    Salem, MA
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have had issues with my Right Posterior Cyst since Childhood of and on. With the technology available in today's world I am astounded at the response I have recieved over the years. It's all in my head....

# 1,190

First Name    Clarence
Last Name    Allison
Location    Little Rock, Arkansas
Country    USA

# 1,191


First Name    jonathan
Last Name    montalvo
Location    miami , fl
Country    u.s.a
Comments--How has an arachnoid cyst affected your life?    let me start by thanking this site and its members THANK YOU !!!!! I was in a bad car crash a few years ago when they found my arachnoid cyst (i never even heard of this) but they told me that its by my torcula and its 6x4 cm big . so every year since then they give me an mri and tell not to worry about it because people can live a normal life with these type of cyst but i try to tell them that there's something wrong with me i tell them about all my negative symptoms and they say go see a mental health doctor so i see the doctor and he gave me a stack of different prescriptions and said to take all these pills everyday and i should be fine so i take them and my symptoms have not improved now i have a bunch of new problems my trembling , panic attacks and vision problems worsened i don't wont more pills for depression , anxiety , mode swings i want surgery already but my doctor tells me im to young for that kind of surgery mind you im 30 yrs old . i have to go to the hospital about 8 to 10 times a year because of migraines and loss of motor skills i just got another mri on 8/5/10 on the 26 of this month i get the results im kinda scared but i wanna do it already i cant live like this !!!!!


# 1,192

SARAH
Last Name    BAHENA
Location    HOUSTON,TEXAS
Country    UNITED STATES
Comments--How has an arachnoid cyst affected your life?    WAS JUST DIAGNOSED TUESDAY 8/17/2010


# 1,193


First Name    Denise
Last Name    Desnica
Location    Brisbane
Country    Australia
Comments--How has an arachnoid cyst affected your life?    Husband just got diagnosed with this cyst. We are searching for answers - thank you for your site.

# 1,194

First Name    karen
Last Name    gilchrist
Location    edinburgh
Country    scotland
Comments--How has an arachnoid cyst affected your life?    my 15 year old son has a posterior fossa arachnoid cyst, diagnosed at 17 months old, numerous surgeries, and still the medical profession dont understand or acknowledge this condition! They are only prepared to take things seriously when presenting with secondary hydrocephalus, this cant go on, things have to change for AC sufferers.

# 1,195


First Name    Jodi
Last Name    Kern
Location    Cross Junction, VA
Country    USA
Comments--How has an arachnoid cyst affected your life?    Just recently have times where I feel significant pressure in my head, confusion, blurred vision, no comprehension, unstable, extreme motion sickness, weakness, feel overwhelmed/panic attacks, memory issues, lack of concentration/focus. Not all of these happen at 1 time, but many of them happen simutanuously. After a CT Scan & MRI/MRA, I was told I had a Arachnoid Cyst but that wasn't the cause of these issues. I am scheduled to see a neuroligist to rule out seizures. I am 35yrs & have a history of Migraines but 3 weeks ago when these things started happening, there was no pain associated with it. I was then told it was probably medication I was taking so they took me off that, now they want to rule out seizures. It is very frustrating to see that everything I am experiencing is things so many others have been going through & they to have Arachnoid Cysts... but according to doctors, that is NOT the reason for the symptoms! Maybe my Arachnoid Cyst has caused me to be stupid because it just doesn't make any sense to me!

# 1,196


First Name    Ashleigh
Last Name    Brown
Location    Winnipeg
Country    Canada
Comments--How has an arachnoid cyst affected your life?    My arachnoid cyst was discovered after I had a tonic clonic seizure in 2009. Since that day, I have experienced short term memory loss, facial numbness, headaches (daily and escalating) mental confusion and cognitive decline, visual problems (spots, problems with peripheral vision, photosensitivity, unable to see in low light, auras, colored * otherwise) ringing in ears, temporary hearing loss, seizures, muscle weakness and temperature sensitivity ( i cannot be outside in high heat or humidity). Please research this disease so that my family and I can have quality of life again.

# 1,197


First Name    Joan
Last Name    Bernard
Location    70 Lovell Ave Windsor CT, 06095
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have a lerge (7.3 X 3 cm) cyst in my lumbar/sacral spine, with peripheral calcification.
I have had adhesive arachnoiditis class 3, diagnosed in 1995 by Dr Charles Burton. This
came about after I had a full spinal mylogram in 1987 after a car accident, I do not know
when the arachnoiditis started, but figure it must have been after the mylelogram in 1987
or in early 1988. It was not discovered immediately because I had concussion, two herniated
discs in my lumbar spine and three bulging in the cervical from my accident. I had spinal fusion
in 1990 L4 to S1 and refusion in 1991 then removal of hardware in 1995 when I continued to
have pain, spasms and neurological deficits after the surgeries, before surgery I had every
conservative treatment, physical therapy, therapeutic injections, chirapractic treatment,
pychotherapy, alternative medicine ( acupuncture, reiki, guided and self meditation, vitamin,
and herbal) nothing helped. In 1990 I was diagnosed with a neurogenic bowel and I have since
been diagnosed with a neurogenic bladder as well so I have from constipation to incontinence
when I have intervention, ( thank God I only have bowel incontinence when I take laxatives so
have some control) I however have more problems with bladder as although I have severe urine
retention I have overflow incontinence or when I take medication which helps it.
As I said AA (adhesive arachnoiditis ) class 3 was diagnosed in 1995, I have had several flares since
then which rendered me paralyzed in the right lower extremity but the use of my right leg always came
back so I could manage with Canadian crutches,with the aresenal of treatment I used including acupuncture
and recently reiki as well as vitamin and herbal therapy. Acupuncture played a major part in helping my pain
and improving my condition, recently I have found that reiki helps as much if not more than reiki as I tend to use
as little medication ( i.e. drugs narcotic and non narcotc ) as possible as they cause so much side effects.
January 2009 things changed I went intoa flare which caused me to be paralyzed in the right lower extremity
which continued to involve the left side, so I was paralyzed from the hip down by March 2009.
The difference this time is that I have been diagnosed with the arachnoid cyst in my lumbar/sacral spine and there
is a question mark as to wether there is a tarlov cyst in the lower sacral spine as I have been having pain and spasms
in my shoulders, arms, fingers, neck, beneath my ears (which makes my face appear swollen ) in my temple and forehead.
as well as the usual ones in my feet, legs, buttocks, back and along my spine.
I have been basically bed-ridden since last January and now my back going around into my abdomen and both buttocks
are badly swollen so that it is even more painful than ever to sit, and painful to lie on my back. I had problems lying on my right side before
but now sitting or lying in any position causes pain and discomfort. I have reached a stage that if it was not for almost daily
treatment of reiki and acupuncture ( I do reiki up to four days a week and acupuncture twice ) insurance used to pay for acupuncture
up till April this year, 2010, never paid for reiki.
I hope I can get some answers as I can not find doctors here in Connecticut who even know how to diagnose the problems I have
much less how to treat them. Dr Charles Burton told me that there are doctors at Johns Hopkins Hospital in Washington who are
dealing with spinal and nervous system cysts so I think that will be my next move.

# 1,198

First Name    sally
Last Name    thompson
Country    england
Comments--How has an arachnoid cyst affected your life?    my grandma has a cyst on her brain but because she is 79 it seems as though the doctors are 'not interested' in helping her continue as normal a life as possible - so frustrating! :0(

# 1,199


First Name    Annemarie
Last Name    Hooper
Location    Beverly Hills, Florida
Country    United States
Comments--How has an arachnoid cyst affected your life?    My son was diagnosed with a brain cyst at the age of 13, after long suffering from debilitating headaches and uncontrollable nausea and vomiting. He underwent endoscopic brain cyst fenestration surgery in October of 2006. His headahces and vomiting completely resolved post surgery. Several doctors said that the headaches and vomiting were unrelated to the cyst, but a wonderful neurosurgeon at Miami Children's Hospital believed otherwise, and my son's health and well being are a testament to his skill. Thank you Dr. John Ragheb of Miami Children's Hospital.

# 1,200


First Name    Denise
Last Name    Mays
Location    Dallas Texas
Country    USA
Comments--How has an arachnoid cyst affected your life?    My son has an Arachnoid Cycst. He did not have symptoms. He had a concussion in a football game at 14 and cyst was found. It was large enough that any future trauma could cause hemorrhaging. The cyst was fenestrated at that time and he has had no symptoms still. He was a very active athlete and having to change his lifestyle was very traumatic for him. He now worries way to much about every headache, dizzy feeling, nausea...etc.

# 1,201


First Name    Evelyn
Last Name    Suarez
Location    Tavares FL
Country    USA
Comments--How has an arachnoid cyst affected your life?    My son had problem since he was very young(around pre-school). I took him to multiple Doctors, but they all diagnose him with ADHD and he was treated with medication. His problem was the learning disability. One day in September 2006 they did an MRI for a sinus infection and they found the Cyst. After many many Doctors, they finally said that my son was born with this condition. I had request numerous times,since he was diagnose with the ADHD,an MRI but the Dr's kept saying that it was not necessary. My son was able to finish the High School as a Homebound Student. But it has been a nightmare to get him to college. There is just one Certified College for children with disabilities and the cost is out of this world. After we applied for grants and scholarships we were still short $8000. He ask me questions that just simply break my heart such as: "why me mommy if I love God so much?", or will I ever be able to work? or drive a car? and I don't know what to answer my son. His motor skills are getting worse as the days go by, yet all the Doctors are saying that they can not intervene, just monitor the Cyst growth. I pray that one day some doctors could specialize in Arachnoid Cyst. Please Help!

# 1,202

First Name    Melissa
Last Name    Rioux
Location    Ohio
Country    USA
Comments--How has an arachnoid cyst affected your life?    I just found out I have a large arachnoid cyst on hte right side of my brain and just as on the cover page of this Web site, i don't see any doctors really taking this seriously right now despite the fact that from what I read, these are dangerous. I am interested in preventing problems for myself and would love to have further information readily available about these.

# 1,203


First Name    Phillip
Last Name    Picquet
Location    Nebraska
Country    United States
Comments--How has an arachnoid cyst affected your life?    Hasn't really affected me or anyone I know, but while researching cysts I came across this site and was immediately impacted by the pain and suffering those afflicted with this must endure.

# 1,204



First Name    Carlene
Last Name    Kanick
Location    Smyrna, GA
Country    usa
Comments--How has an arachnoid cyst affected your life?    I WAS just diagnosed by MRI, my fear is that which is implicated in video, will be my stumbling block, that I will be told that it is a benign congenital cyst not causing any symptoms!!! I would not be seeking medical intervention if it were not creating symptoms!!! Another fear, as video states there is not enough medical professionals that are willing to accept and treat the problem, and finding a qualified experienced doctor will be difficult, and more than likely, with my crappy insurance I will not be able to afford to seek the medical help necessary to deal with my symptoms. So I will be forces to accept and live with the cyst and its debilitating symptoms....Thanks for creating a place where the issue is confirmed and addressed, and shared.

# 1,205


First Name    Kelly
Last Name    Crowder
Location    Virginia
Country    United States
Comments--How has an arachnoid cyst affected your life?    I have been suffering from migrains for over 3 years now and no medician helps. I'm starting to forget things that i say within two to three minutes. My cyst is on the right side but i have this awfull pain on the left side of my head all the time. No doctor will listen to me and wants to blame it on stress or anxiety. Something needs to be done.

# 1,206


First Name    hayley
Last Name    stuart
Location    newcastle upon tyne
Country    united kingdom
Comments--How has an arachnoid cyst affected your life?    my daughter was diagnosed pre nataly had her operation to drain it at 8months old no shunt was fitted as docs thought it best to see how she gets on,it affects every aspect of your life im forever watching her as shes had a few spells of going vacant and then floppy and wen coming too vomiting but all eeg tests been done and various other tests and nothing untoward came back,the doctors can make you feel like its all in your head really i got told that maybee my daughter who is now 23months old was making herself like this as she liked the feeling of dizziness !!!! How on earth would a child at that age know how to do this or even want to,i never went back to work as im forever worrying incase she takes poorly again its a nightmare at times to be honest,shes late with her walking and is getting so frustrated that shes been headbanging things which makes me beside myself as shes already got enough going on in her head ,her tempers can be terrible at times sometimes uncontroleable i dont know wether this is a symptom of what she has or if its just her being a child as i dont have more children to compare her to so dont know whats normal and what isnt,


# 1,207

First Name    shannon
Last Name    barrios
Location    miami florida
Country    united states
Comments--How has an arachnoid cyst affected your life?    it as changed the person i am severe headaches and massive pain

# 1,208


First Name    Shelika
Last Name    Baez
Location    Orlando, Fl
Country    USA
Comments--How has an arachnoid cyst affected your life?    My cousin, who is 19 y/o was diagnosed with a cyst in 2006. Praying that a cure is found.


# 1,209

First Name    Samira
Last Name    Grabarz
Location    Köln
Country    Germany


# 1,210


First Name    senaida
Last Name    martinez
Location    Texas
Country    united states
Comments--How has an arachnoid cyst affected your life?    I found out today that I have one. I've had it for while the drs think, I get very bad migraines, I have blurred vision, nausea, hearing loss in one ear. It is very painful.

# 1,211


First Name    Daniella
Last Name    Roemer
Country    United States
Comments--How has an arachnoid cyst affected your life?   
I just found out I was diagnosed on August 17th 2010 My symptoms have gotten worse with headaches(migraines) nausea and eye pain and dizziness
I had a CT scan done the Dr's say it is 6cm in growth I'm being referred to a neurosurgeon until then its Emergency room visits to relieve my pain

# 1,212


First Name    Joe
Last Name    Howard
Location    Texas
Country    United states
Comments--How has an arachnoid cyst affected your life?    It has effected everything in my life. I have since my fall and incidental findings of a cyst, had daily head pains, trouble concentrating or remembering. I have had seizures, and vision problems as well as hearing loss since age of 5.

# 1,213



First Name    Ryan
Last Name    Reyes
Country    USA
Comments--How has an arachnoid cyst affected your life?    My entire life I have had body tremors, painful pressure in my head and chronic fatigue. Lately, I have been feeling tired, dizzy, weak, I get numbing in my legs and arms, I have extremely frequent urination, eye pain, ridiculous fatigue, nausea, visual problems (flashes), and gastrointestinal problems, as well as an elevated heart rate. My neurologist told me that I had a "small arachnoid cyst" but that he does not think it is causing my symptoms.


# 1,214


First Name    Annie
Last Name    Fisher
Location    colorado springs, co
Country    usa
Comments--How has an arachnoid cyst affected your life?    I was diagnosed with an acrachnoid cyst in march of this year. I have so many symptoms, yet the doctors keep telling me that it is not the arachnoid cyst... However, they cannot explain what is causing my headaches, fatigue, nausea, facial numbness, etc... and none of the medicine they give me helps... mostly it makes me even more fatigued. So I am cycling through doctors at this point. Each doctor hands me off to another. I want to just say "forget it" and stop going to each specialist, but then another headache hits or my significant other gets mad because it's 5pm and I already want to go to bed. It's a struggle to get through every day; especially when trying not to let loved ones know how much pain you are in or how tired you really are..

# 1,215


First Name    Jessica
Last Name    Farchette
Location    Alexander, AR
Country    USA
Comments--How has an arachnoid cyst affected your life?    Its newly discovered and I think I was wrongly diagnosed with Essential Tremor because all the symptoms I have point to an Arachnoid Cyst. I am currently in the process to finding someone who can help me with this. It is depressing not having control over your own body. To not be able to write, talk sometimes, remember things. It makes you feel like a constant outcast and no one understands unless they feel what you feel. The constant shaking, the muscle tensing to control your shaking, the headaches, the vision problems, etc. It is a painstaking journey that no one wants to help us with. Doctors wave it off and put you on a million drugs that can help for a while or don't do anything at all and then sometimes you get treated like a hypochondriac. How can a doctor say its not related, its nothing if he has no clue on the disorder in itself? Its not fair to us, we want a day where everything runs smoothly, where we can be our active selves again. Do the research I will be your first guinea pig because one day in perfect health without tiredness, weakness, uncontrollable movements is better than feeling like a weirdo a target for gaze.

# 1,216


First Name    Amelia
Last Name    Aguirre
Location    Lawndale, CAlifornia
Country    usa
Comments--How has an arachnoid cyst affected your life?    My 17 year old daughter has a arachnoid cyst located in her frontal lobe and has affected her life since age 15. Right now she has been dealing with a mental disorder, learning disability, confusion and headaches. we are still trying to get her stabilized with meds we are out of our wits ends.

# 1,217


First Name    Jane
Last Name    Harcourt-Smith
Location    Guildford Surrey
Country    England


# 1,218


First Name    ryan
Last Name    sheen
Location    NJ
Country    USA
Comments--How has an arachnoid cyst affected your life?    It affects me in many ways. I get migraines that can last up to 5 days of just pounding, pain and intracranial pressure. I cant remember things that I learn that much its like a fog and Im in constant pain all around my body. This matter need's to be dealt with immediately and not pushed away because of a "lack of funding".

# 1,219


First Name    Virginia
Last Name    Baker
Location    Sydney
Country    Australia
Comments--How has an arachnoid cyst affected your life?    One of my 18 year old sons best friend was diagnosed a few months ago with an arachnoid cyst. I am close to this boy and am researching your site to seek information to support him, his family, my son and their friends.

# 1,220


First Name    Nicola
Last Name    white
Location    Uk
Country    Uk
Comments--How has an arachnoid cyst affected your life?    I was diagnosed with intradual arachnoid cyst of the spine 2008. Would like to see more research into this.

# 1,221


First Name    Susan
Last Name    Bellamy
Location    NC
Country    USA
Comments--How has an arachnoid cyst affected your life?    My 21-year-old grandson was recently diagnosed with an arachnoid cyst. We have found it difficult to find much information on this condition. Since he is uninsured, I am hoping he will get the medical attention he needs.

# 1,222


First Name    Damien
Last Name    Vuillaume
Location    Epinal
Country    France


# 1,223

First Name    Lana
Last Name    Platt
Location    Philadelphia,Pa
Country    USA


# 1,224


First Name    Jonathan
Last Name    Barrett
Location    Florida
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have an AC that causes me multiple symptoms, all of which I deal with on a daily basis.


# 1,225


First Name    Kate
Last Name    Moore
Country    Ireland

# 1,226



First Name    Jillian
Last Name    Foxworthy
Location    Sparta, MI
Country    USA
Comments--How has an arachnoid cyst affected your life?    I am 26 and have a arachnoid cyst in the middle of my brain that is the the size of a large egg and is pressing down on my cerebelem. I am a single mother of two little girls and I have to work full time. Every day seems harder than the previous, even typing this is difficult. My vision in my right eye is failing and the right side of my body is weak and goes between numb and severely sharp pain all day, I and always dizzy, I stumble a lot and run into things, I get confused, trembeling hands, insane headaches, it is hard to go up or down the steps to my apartment. Just cooking or trying to take basic care of myself and my daughters is exhausting. I am having a terriably hard tim finding a doctor to help me, I have state-funded insurance that many won't accept and the other neurosurgeons seem too busy to see me for weeks then claim they are not comfortable dealing with this difficult issue. One ER doctor even refused to even examine me when I went in to Emergency because I couldn't walk and my face/neck was stiff and numb I thought I was having a stroke and he threw discarge papers at me and said to "leave...take two asprin and go home". I am begining to think there is nobody that can or will help me.

# 1,227


First Name    Heather
Last Name    East
Location    Houston
Country    united states
Comments--How has an arachnoid cyst affected your life?    Everyday the effects watching my child go through his issues is a great big battle.

# 1,228


First Name    Ruthie
Last Name    McClelland
Location    Erie, PA
Country    USA
Comments--How has an arachnoid cyst affected your life?     Funny, I thought I already signed this petition but could not find my name LOL I was just told I have an arachnoid cyst a couple months ago after getting a CT scan of my brain because of debilitating headaches. I was diagnosed with absent seizures when I was young. I also have an abnormal cervical spine I was born with and a slight scoliosis. Working and stress induce horrible headaches and I find it impossible to work under pressure at all anymore. One of my doctors thinks the cyst has nothing at all to do with my symptoms (I have way more than listing here). Research really needs to be done and these cysts need to be recognized!


# 1,229


First Name    Shameeda
Last Name    Jabar
Location    West Palm Beach, FL
Country    USA
Comments--How has an arachnoid cyst affected your life?    My 3 yr old son has an arachnoid cyst.

# 1,230


First Name    Pamela
Last Name    Richter
Location    FL
Country    USA
Comments--How has an arachnoid cyst affected your life?    I am really struggling with my job which is somehting I have never had a problem with in the 24 years I have worked there. I get these debilitating headaches with visual disturbances and I don't miss work but I work too slow and make errors. I know I seem vague at times because I can't concentrate with the pain. My co-workers don't care. It is ruining my life.

# 1,231


First Name    Janet
Last Name    Blair
Location    Suffolk County, New York
Country    U.S.A
Comments--How has an arachnoid cyst affected your life?    Frequent headaches, some lasting for days requiring me to go to the hospital causing me to miss several days of work.

# 1,232


First Name    Amanda
Last Name    Oppelt
Location    Illionis
Country    USA
Comments--How has an arachnoid cyst affected your life?    My 1month old son has an arachnoid cyst and I'm so scared for him!!!!!!!!!!!!!!!!!!!

# 1,233


First Name    Alexandra
Last Name    Torowus
Location    Oro Valley, AZ
Country    USA
Comments--How has an arachnoid cyst affected your life?    I am 10yrs old. I have ADHD. I have to take medication every day, twice a day. I feel a lot of pressure in my head sometimes. Flying in a plane can be so painful and I don't know how to make my ears pop like some people can. I get headaches almost every day. I get tired at school and get in trouble for zoning out and not paying attention. My Kindergarten teacher always told me to come back from La La Land in front of the whole class and I got embarrassed. I'm really shy around adults because I don't think they understand me and I don't like it when they ask so many questions. I can't control my temper a lot and I don't know why. I'm always saying stuff I don't mean to say. I'm always getting in trouble for something. I hate high pitched sounds they really hurt my ears. My mom said I have the hearing of a dog because lots of sounds that bother me no one else can hear. Sometimes my ears ring and I feel like my head is stuffed with cotton. I get weird pains in my body for no reason. Sometimes I get sharp pains in my right eye that's the side that has the bubble. My head is bulging on my right side and it makes me feel not normal. It feels really painful sometimes when someone pushes on it or touches it. I hate to brush my hair because my scalp is really sensitive. People give me a really hard time about my hair being messy especially since I'm a girl. I hate strong bad smells and I can taste chemicals easily in water and some foods. It tastes really yucky. I can't stand some things on my skin because its sensitive and bothers me a lot. There's lots more stuff that bothers me about it, but I don't feel like telling anymore right now. I feel strange now that I know what it is by its name. I don't feel normal. Sometimes I think I would feel better if I were in heaven, but I think I would miss my mom and my family too much.

# 1,234


First Name    Emme
Last Name    Ribeiro
Location    Seattle, WA
Country    USA

# 1,235


First Name    Dawid
Last Name    Kmieciak
Location    Torbiel pajęczynówli prawej półkóli móżdżku
Country    Polska

# 1,236


First Name    Wende
Last Name    Mathew
Location    Texas
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have had 8 brain surgeries and am waiting to have the ninth at any time. I has impacted my life by destroying it. I can only work part time and then I get terminated for missing too much work due to the cyst. Social Security make me wait 2-3 years for the same disability that I had in the 90's. Why I don't know. I am suffering and cannot even afford any meds. Just when things look like they will turn around for me, boom, here we go again. I am so tired of being treated like a junkie. I have never been so insulted by the medical field. I would never wish this pain on anybody, not even an enemy, I just want to be heard and understood.


# 1,237


First Name    Mary
Last Name    White
Location    Louisiana
Country    USA
Comments--How has an arachnoid cyst affected your life?    My son was diagnosed with and Arachnoid cyst in 2005 when he started having symptoms and an MRI was done. Due to the severity of his symptoms he took his own life at the age of 13 in 2006. Something needs to be done. We were put off for over two weeks to see a nuero doctor even though he was having severe headaches, vomiting, eye problems, silent seizures, tingling in hands, not sleeping due to pain and psychological problems. Had we been able to see the doctor sooner i believe the outcome would have been different, but we will never know.



# 1,238


First Name    Jackie
Last Name    Schilling
Location    Upstate New York
Country    USA
Comments--How has an arachnoid cyst affected your life?    I am so tired of doctors treating only the smytoms and not looking for the cause. Just because it is rare doesn't mean you "can't" have it. I have four boys and myself that ALL have intracranial hypertension with csf leaks. It's a shame that we know our bodies better than the doctors do yet they still come up with their own conculsion and won't look any further!

# 1,239

First Name    Karen
Last Name    Miles
Location    Olean, NY
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have had headaches and been tired my ENTIRE adult life. I only found out recently the I have an Arachnoid Cyst near my brain stem, but the neurologist told me not to worry about it. Another doctor thank god listened to my symptoms and is sending me to the Cleveland Clinic. I have had every test, scan you can imagine and am always told that I am healthy, nothing is wrong and to take an aspirin and get out and take a walk. Kinda tough to do when all you can do is sleep. Something needs to be done!!!

# 1,240


First Name    Brenda
Last Name    Hammons
Location    Ohio
Country    USA
Comments--How has an arachnoid cyst affected your life?    My 2 year old grandson Isiah will be having surgery Nov 2nd to remove his arachnoid cyst.

# 1,241


First Name    Cornelia
Last Name    Konfic Ajdarovic
Location    ZAGREB
Country    Croatia
Comments--How has an arachnoid cyst affected your life?    I was diagnosed in 2008 (49 years) with bi-lateral ponto-cerbelar cysts (3cm x 2,1 and 2,3cm x 1,8 cm). I stopped seeing doctors after hearing for the x time that all my symptoms have nothing to do with my two head-friends. On two MRA scans they were confirmed but... After beeing sent to psychiatrist, who gave me anti-depressants and of course, told me that I am OK and that all my symptoms are only in my head ( no kidding !!!), I said thank you and never went there again. Squeezing sensation in my brain, "goosebumps" in my head, seconds of blackouts, headaches, blurred vision, imbalance, sometimes not being able to move my eyes ( that is the best way that I can describe it...), sometimes having "water" in my ears and in my head, dizziness (the whole room is moving from one side to another...)... I really hope that some day doctors will recognize this as what it is: an illness, phisical illness and not something we are making up !!!!
Thank You for ACA and good luck

# 1,242


First Name    Kim
Last Name    Damer
Country    U.S.A.
Comments--How has an arachnoid cyst affected your life?    Multiple mysterious symptoms - bloodwork is fine.

# 1,243

First Name    Jamie
Last Name    Miller
Location    scotland
Country    uk


# 1,244


First Name    Sol
Last Name    Rosado
Country    US
Comments--How has an arachnoid cyst affected your life?    They discover a arachnoid cyst on May 6 2010 in palm west hospital, they told me it was nothing. I try to get medicaid so I can see a neurologist but they told me I dont qualify. Im having a lot of systoms, feeling very hard headache and pulses on my brain... But I cant do nothing here in Florida they dont he

# 1,245


First Name    Katie
Last Name    Harrington
Location    Tennessee
Country    United States
Comments--How has an arachnoid cyst affected your life?    My 4.5 year old was diagnosed with an arachnoid cyst last year. After many tests, it is our understanding that it has no affect on him, but I want to research it and find out as much information as I can about this and I think more needs to be done to understand exactly how these cysts could be affecting those that have them.


# 1,246

First Name    wendy
Last Name    edwards
Country    united States
Comments--How has an arachnoid cyst affected your life?    OUr baby was born with one and was immediately shunted .....we were told to terminate because of this particular cyst...Now Alex is 10 years old and fabulous!!!


# 1,247

First Name    Michale
Last Name    Edwards
Location    Washington DC
Country    USA
Comments--How has an arachnoid cyst affected your life?    My son has an arachnoid cyst and currently is very healthy and active.

# 1,248


First Name    Molly
Last Name    Jose
Location    Wisconsin
Country    United states

# 1,249


First Name    Kjartan
Last Name    Skjelbreia
Location    Trondheim, Norway
Country    Norway

# 1,250


First Name    Brian
Last Name    Sparks
Location    Roanoke, VA
Country    United States

# 1,251


First Name    Amaris
Last Name    ayala
Location    worcester Ma
Country    U.S

# 1,252

First Name    MONTE KAY
Last Name    YOHR
Location    ks
Country    usa
Comments--How has an arachnoid cyst affected your life?    my daughter has one and has gone from the perfect child to the angry child that doesnt even allow her to go to school...

# 1,253


First Name    Emily
Last Name    Neal
Location    Smithville, TN
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have been to my PCP and he says that there was nothing he could do about it. I just would have a headache that wouldn't stop. I told him my vision was effected and he said that it can't cause problems. The nernologist said that it was too small. The cyst went from 26mmX26mm to 32mmX20mmx38mm in less than a month how can it not be causing problems!!!!! it IS big enough to do something about.

# 1,254


First Name    Nina
Last Name    Foust
Location    Pleasant View, TN
Country    USA
Comments--How has an arachnoid cyst affected your life?    I was diagnosed in 2006 with an arachnoid cyst located on my brain stem. With the location of the cyst, I was told that it was too dangerous to try and remove the cyst. They could do me more harm than good. The Dr. found great amusement in giving me the explanation of my numbness, tingles like spiders crawling on my head, problems with remembering things, sharp shooting pains that would close my left eye, unbearable head aches that make you unable to function, dizziness, twisting my words up, and my balance being off. O wait, did i say memory issues? lol.. He came into my room, leaned against the wall and told me that he knows why I feel like I have spiders crawling on my head... Not much humor in that let me tell you! I live everyday one day at a time, not knowing what the next will bring. I have severe back, neck, and leg pain, sometimes which puts me in the bed for days at a time. I am now legally blind in my left eye and have partial hearing loss in my left ear. Of all the pain I can endure in this world, I fear the pain of one day not being able to see my childrens beautiful faces or hear those precious words, I LOVE YOU!... I enjoy the moments as they are given to me because I know what is to come. I only pray that people would see us, the ones who suffer with this, as more than a nut case. We have pain, we hurt! We have physical evidence with what is causing this! STOP SAYING IT'S ALL IN OUR HEADS! But with that have being said, you are right! You are so right! It is in our head! It's a foreign object on our brains that shouldnt be there! Try a day in our shoes! Let them offer you meds for depression. Your right, I am depressed! I have to live with being told that my pain is not real and is not caused by pressure on nerves in my brain! I have refused pain meds that they have offered me I live on tylenol, which by the way doesnt cut it! But I refuse to become dependent on meds to get thru my day.. But have considered it here lately. lol I pray each and everyday for everyone who suffers with this, I pray that our voices will be heard one day! And I pray that I will continue to hear the voices of my children and their children and to be able to see their faces every morning to continue to put the smile on my face that gives me the strength to keep going and continue! Thank you for this amazing site!

# 1,255

First Name    Shari
Last Name    Massey
Location    Fort Collins, Colorado
Country    USA
Comments--How has an arachnoid cyst affected your life?    My daughter (22 years) has been diagnosed with an arachnoid cyst in the back of her brain. We are trying to find out how it relates to the multitude of symptoms that her life has dished out & that she has been struggling with for years.

# 1,256


First Name    Misty
Last Name    Kirschner
Location    Michigan
Country    United States
Comments--How has an arachnoid cyst affected your life?    A dear friend of mine has this cyst and I'm here to help in any way I can.

# 1,257

First Name    Patricia
Last Name    Anderson
Location    Amberg,WI
Country    USA
Comments--How has an arachnoid cyst affected your life?    A close friend of mine had an arachnoid cyst removed about 10 yrs ago. He had been suffering from migraines, dizzy spells, loss of consciousness, paralysis and numbness in his hands and feet. He hasn't had any of these problems since the surgery. A young man, who will soon be Step father to my grand daughter, was diagnosed a few months ago, and is struggling with blinding headaches, lapses of memory and seizures. His Doctors want to wait, until he has more frequent and more severe seizures, to do anything for him. If a Doctor told you, that you had a large tumor growing in your brain...wouldn't you expect him to to say; "Lets get that thing out of there."? I don't get it.


# 1,258


First Name    Cynthia
Last Name    Thomas
Location    Sanford, FL
Country    USA
Comments--How has an arachnoid cyst affected your life?    My daughter-in-law has one and the quality of her life has been affected.

# 1,259


First Name    Christina
Last Name    Cunningham
Location    Theresa NY
Country    USA
Comments--How has an arachnoid cyst affected your life?    My son, Caleb, who is 8 years old has been living with his cyst since birth. Caleb is a miracle to be here he almost died at birth. He currently has a seizure disorder and I can't get answers on his cyst. Please help!!!!!


# 1,260

First Name    Kerry
Last Name    Murphy
Country    USA
Comments--How has an arachnoid cyst affected your life?    It has made my life so much more difficult! Please help get the attention it needs!!!

# 1,261


First Name    Paul
Last Name    Coutre
Location    Illinois, Chicago
Country    United States
Comments--How has an arachnoid cyst affected your life?    Loss of Vision, memory lapses, sleep dysfunctions, dramatic weight gain and loss, perceptive malfunctions, dysphoria.

# 1,262

First Name    Marilyn
Last Name    Libres
Location    vienna
Country    Austria
Comments--How has an arachnoid cyst affected your life?    I just found today that my brother in the Philippines has been diagnosed having arachnoid cyst. I am clueless of this kind of cyst that i surfed the internet and landed on this site. Hoping that i'll be getting information from your site. I am really worried that i can't stop crying becoz he was told to undergo an operation. I am worried becoz as far as i know every operation can be successful or not especially this is brain operation.

# 1,263

First Name    Gina
Last Name    McKeen
Location    Michigan
Country    U.S.A.
Comments--How has an arachnoid cyst affected your life?    My daughter was diagnosed with one at two years old. Her pediatrician told us there was nothing to be concerned about! She is now twenty seven and has headaches, severe mood swings and other sysmptoms that often leave me to wonder if there is any relation between the two. She is a very strong woman and shows little concern about this issu


# 1,264

First Name    kevin
Last Name    rainey
Location    manchester
Country    england
Comments--How has an arachnoid cyst affected your life?    oh the pain but we gotta be positive i wonder how many of us have this condition and are still suffering in silence cos they frightened the doc gonna send them to the bottom block or at least not believe them , anyway keep positive at least we're in the no ay xxx

# 1,265

First Name    Jayne
Last Name    Andrews
Location    Manchester
Country    England uk
Comments--How has an arachnoid cyst affected your life?    Our son has an aarachnoid cyst on his right side, his logic side of his brain. After spending several years visiting doctors and pycholists and passed from doctor to doctor, still no answers. He can only follow a routine and forgets a lot of simple things which we take for granted. He leaves school next June and we know he will not cope with the, 'big wide world'. As parents it is very frustrating as we do not know what are his limitations are. Is he just being lazy or can he just not cope with things. The constant reminding him of have you done this and have you done that, sometimes feels like we are bullying him and it is very frustrating and hurtful to all. Simple things like getting washed and dressed seem like a really hard task to him. At school he just 'fits' in so longas it is in his routine. He is a good looking lad, very polite, quiet and so because you physically cannot tell there is something wrong with him he goes unnoticed, the quiet boy of the class, no trouble, just a bit clumsy and forgetful..... NO HE HAS AN ARAHNOID CYST that even doctors do not understand.
Please if you are reading this page, please, please,sign and hopefully children like our son will get the help they need and maybe will have a LIFE not an EXISTANCE!!!


# 1,266

First Name    april
Last Name    bartron
Location    brockton mass
Country    usa
Comments--How has an arachnoid cyst affected your life?    headahes constant everdy

# 1,267


First Name    Mark
Last Name    Gagne
Location    South Boston, MA
Country    USA
Comments--How has an arachnoid cyst affected your life?    My son had surgery to remove one at 18 months old

# 1,268


First Name    LaDonya
Last Name    McCullough
Location    Canton,Michigan
Country    USA
Comments--How has an arachnoid cyst affected your life?    I need a good surgeon to help with this concern. Can anyone help me?My life has been altered because of this Arachnoid Cyst.


# 1,269


First Name    Melissa
Last Name    Robinson
Location    Missouri
Country    United States
Comments--How has an arachnoid cyst affected your life?    My 16 year old daughter has an arachnoid cyst. She has headaches and depression. We found out because she was in a car wreck and was having major headaches. We have known for a month and cant get into the neurologist until the 21st of January. All this time we have been worried sick and I feel that there is nothing that I can do for her to ease the headaches. They finally gave her some EsChiq today to try to ease the pain.


# 1,270


First Name    Avis
Last Name    Peterson
Location    Winthrop, WA
Country    USA
Comments--How has an arachnoid cyst affected your life?    My daughter, age 30, has just received an MRI identification of an Arachnoid Cyst in her neck area, December 8, 2010. We are just beginning to research this condition.

# 1,271



First Name    Lonie
Last Name    Johnson
Location    Fort Smith, AR
Country    us
Comments--How has an arachnoid cyst affected your life?    I have an Arachnoid cyst on my brian. I had a CT scan in 2006 and MRI. I was told to get a check up every year. My doctor never referred me to a neurologist. I have had headaches for a year.. I haven't had a MRI since 06. I am still paying on the bills from 06...Its now 2010

# 1,272


First Name    Kelsey
Last Name    Ahmed
Location    pawtucket, rhode island
Country    United States
Comments--How has an arachnoid cyst affected your life?    I have and arachnoid cyst on the right side of my brain. The doctor said it is the size of a small grapefruit that is pushing on my spinal cord. I wake up in the night and feel as though my head will explode. I get woozy and dizzy if i do to much. I have danced for 16 years and because of this cysts i can't teach the one thing i love because i feel faint. My arms and legs get tingly, and my back aches. My stomach gets upset all the time, and my vision and hearing keep decreasing as my days with this go on. My moods snap with in an instant and i feel imbalanced. i ghave gone through depression and the lack of sleep/the overly sleepiness. they say it could be from this. I want to just feel normal, which i have never had. I have always been this way, and i have had this my whole life. It is not all in my head, its the truth, this cyst controls me. This is something serious, and it needs to be known. For something that they say is so common, its very pushed to the side and not very well known to people. Making us more aware of this situation will possibly help those of us who have the issue. We are sick people. We DO NEED HELP. It's now time to stop pushing this to the side, and making it known to the world.

# 1,273


First Name    Sheryl
Last Name    Gassiott
Location    Del Valle ,Texas
Country    United States of America
Comments--How has an arachnoid cyst affected your life?    Vertigo and balance problems.

# 1,274


First Name    nicholas
Last Name    sparkes
Location    hafnarfjordur
Country    iceland
Comments--How has an arachnoid cyst affected your life?    well ive just been diagnosed with having a few Arachnoid Cysts on the cerebellar as i was having constant headaches blurred sensation in left eye,neck and back problems balance issues .nausea the list goes on,waiting on a mri scan now to see in detail the extent of the damage and also to measure the pressure in my skull.im starting to get scared now not knowing what is around the corner so to speak and learning that not many surgeons are willing to help , :( bad bad times

# 1,275


First Name    margarita
Last Name    perez
Country    usa
Comments--How has an arachnoid cyst affected your life?    Sympathy for sufferers for little known disease and a sufferer of another disease that although becoming quite common, is ot understood by many

# 1,276


First Name    Diane
Last Name    Urquhart
Location    Kennewick
Country    United States
Comments--How has an arachnoid cyst affected your life?    My youngest son (7), was diagnosed with an Anachroid Cyst on May 31, 2010. That day his little life turned upside down and our new journey of finding answers began. He has been to see a specialist who did not even acknowledge the cyst was there until I demanded he answer the questions I had. I was told to not join any networks or internet groups (I found Dia and I am not giving her up!). He refused to do any kind of testing other than basic physical tests (which I saw differences since the original testing in May--this was September). He diagnosed my son with Vertigo and Migraine but told me I could not let him play sports? Refused to talk about further tests of the cyst, but telling me to not let him hit his head no matter what? Not good enough. Brady has had two more episodes of phsycial changes since the original diagnosis. I am repeatedly told to not worry about it, he will either lose a whole side of his body or die. Thank you so much for that! I have seen the pictures, the doctors agree it is one of the biggest (it is a huge tear-drop from the top of his skull to the base of his skull) not connected to the brain stem.

Brady has irratic battles of hyper-activity then whole periods where he is almost slow in appearance and manner. Again, I am told to not consider it a symptom. He also gets very dizzy and has constant headaches. Again, we are told to just give him tylenol and wait for it to pass. This little boy is 7 and loves any sport or physical activity. I literally cannot keep him down. He has to move or he will go into stress attacks. As he painfully tells people---He wants his life back. We want that too.

Thank you.

# 1,277


First Name    Ramona
Last Name    Schwedler
Location    Frankfurt
Country    Germany
Comments--How has an arachnoid cyst affected your life?    I have an arachnoid cyst and im running from hospital to hospital being told 'sure its there but its not causing your problems' one doctor even said im depressed and trying to commit suicide (just because i was asking for the operation... i told him about a boy i know that didnt speak, didnt walk and when he finally got his arachnoid cyst done he was able to start learning all this, he will never be able to speak perfect but he is such a brave boy and able to speak easy sentences and even to stay now!!)
my cyst is not too bad from what i can compare but i have a strong headache and i have dizziness and forgetfulness that makes my live and my job harder than it should be...
good luck to all of us that gets the operation maybe some day i will find a doctor, too :-)
thank you for this site and see you on facebook!

# 1,278


First Name    Karl
Last Name    Reust
Location    Wichit, Kansas
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have a VERY large arachnoid cyst, taking the space of my entire left brain. Mine causes grand mal seizures. With medication I live a completely normal life but get restricted from some things like getting a pilot's license.

# 1,279


First Name    Vanessa
Last Name    Lopez
Location    New jersey
Country    Usa
Comments--How has an arachnoid cyst affected your life?    I have a mega cistern magna vs arachnoid cyst, I have so many neurological syntomes that I really don't know what to do anymore.. I have been like this for 8years but I am getting extremely worse! I have been to so many doctors and No help. I am really sick all the time my quality of life is down the drain, can't work,most activities are limited,and according to doctors I am stuck like this unless my brain goes into a hydrocephalus phase...if there is any help out there, I really need it. Thank you

# 1,280


First Name    Alicia
Last Name    Jones
Location    Harlan Ky
Country    Usa
Comments--How has an arachnoid cyst affected your life?    I do not have a cyst, however my 4 year old daughter does. Where we live there are no doctors around that know anything about whats going on with her. Shes been having alot of problems latly and Im scared to death that its her Cyst causing them. I live in constant fear that she is some how gonna hit her head and cause even more damage. Everyone please pray for my little girl!!


# 1,281


First Name    Charles L.
Last Name    Wilson
Location    Florence, Mississippi
Country    USA
Comments--How has an arachnoid cyst affected your life?    I was recently diagnosed with an arachnoid cyst on the back left side of my brain, with a hydrocephalus. I have been struggling with headaches, left arm and hand weakness, left leg numbness and pain. I have recently fallen to the ground 3 times due to my left leg giving out on me. I am real sensitive to cold temperatures, bright light sensitivity, lower back pain, balance and walking difficulties. Cognitively, I have experienced trouble finding the right and appropriate words in conversations, short-term memory loss, left nose bleeds for no reason, and left earache with no ear infection. The MRI showed an arachnoid cyst about 6 cm long, looking like an oblong egg near the cerebellum on my left side. The cyst is crowding the cerebullum and other brain tissues, so much so, the pituatary gland is being compressed now. And that is extremely dangerous. I was told by some of my doctor specialists that I had just a case of migraines or sleep apnea or this pain and discomfort comes with aging. I am 52 years old now at this writing. The neurosurgeon was in no rush to do anything about the cyst; he just referred me to more specialists. And the "merry-go-round" continues for me. I have seen 7 different specialists since April 2010 at a major teaching hospital in the States. I am so disappointed and aggravated at the medical CARE I am supposed to receive!

# 1,282


First Name    Gary
Last Name    DeWitt
Location    Xenia, OHIO
Comments--How has an arachnoid cyst affected your life?    HI, MY NAME GARY AND I HAVE ARACHNOID CYST ON THE UPPER LEFT HAND SIDE OF MY BRAIN. I'M GETTING SO TIERED OF TAKING SO MANY DIFFERENT PILLS AND HALF OF THEM ARE NOT EVEN KEEPING ME FROM HAVING ONE OF MY EPILEPSY ATTACK'S. SO NOW I'M AT THE POINT OF WANTING SURGERY TO TAKE OUT THE CYST I'M NOT SO FOR SURE THAT'S WHAT'S CAUSEING MY ATTACK'S BUT NO MATTER WHAT I JUST WANT IT OUT ANY WAYS. ONCE AGAIN I WOULD DO ANYTHING TO HAVE IT TAKING OUT. I KNOW THATS WEIRED FOR SOMEONE TO BE BAYING FOR SURGERY BUT I'M SURE WE ALL KNOW HOW IT IS . SO MAY GOD BLESS YOU ALL WITH THIS ILLNESS I'LL BE PRAYING FOR YOU.

# 1,283

First Name    Sheila
Last Name    Balliet-Miles
Location    Lansing, MI
Country    USA
Comments--How has an arachnoid cyst affected your life?    I was 47 when diagnosed w/ a very large posteria fossa arachnoid cycst. It has also caused a chiari malformation. The symptoms were horrible and it was decided that I had to have surgery immediately or a stroke/seizure would take my life. I had the surgery and didn't wake up for 5 days. I fell out of the hospital bed the night of my surgery and then was treated for complications (water on the brain) and a shunt was installed and pulled out the liquid. Liuid was analysed and i had bacterial mengenitis! When I finally woke up i couldn't sound words and i couldn't walk. I spent a month in the hospital. This was 3 years ago. I have had so many complications since then, including occipital neurolgia. I have went through MANY treatments and much more medicine. FINALLY in the last few months I've seen some tremendous relief! I would love to be a spokes person on this subject. I think I have experienced it all!



# 1,284


First Name    Carolyn
Last Name    DiBlasi
Location    Tucson,Az.
Country    USA
Comments--How has an arachnoid cyst affected your life?    I've had my AC for 10+ years. It was dicovered after I had my second stroke. Since then I've developed Parkinsons & Fibromyalgia. I'm 63 yrs. old.


# 1,285

First Name    Ryan
Last Name    Kasza
Location    Maumee Ohio
Country    United States
Comments--How has an arachnoid cyst affected your life?    I have been newly diagnosed. A little scared.

# 1,286


First Name    kelsey
Last Name    bussiere
Location    minnesota
Country    usa
Comments--How has an arachnoid cyst affected your life?    I was diagnosed with this by the MAYO CLINIC, and they refuse to do anything!!!!!!!!!!!!!!!!

Please help me.


# 1,287


First Name    Lucero
Last Name    Villalobos
Country    US
Comments--How has an arachnoid cyst affected your life?    It did not affect me directly but I know someone who has this and my heart is broken because I feel so helpless I wish there was hope but so far all I can do is pray.

# 1,288

First Name    Laura
Last Name    Archer
Location    Glendale
Country    USA
Comments--How has an arachnoid cyst affected your life?    I recently found out that a friend of mine was diagnossed with an arachnoid cyst. I want to help make this better for him.

# 1,289


First Name    Don
Last Name    Miliaresis
Location    Stamford, CT
Country    USA
Comments--How has an arachnoid cyst affected your life?    YES - I have an arachnoid cyst (posterior fossa). This information was told to me after my second MRI (several years later) the first Radiologist didn't even think it was worth mentioning in the report and my DR never looked at the pictures. For the past 5 years I have had worsening symptoms and have been told that it was Meniere's Disease, unknown encephalopathy, perhaps MS, and Lyme Disease. My symptoms started with dizziness and balance problems, confusion and disorientation, chronic headaches and migraines, short term memory loss (documented as 35% normal), cognitive abilities (reasoning, comprehension, focus, improper use of words/names, loss of train of thought mid sentence, "mental fog", displacement / separation to surroundings, depression, sudden mood changes - explosive tempers and outbursts, periodic eye and hand tremors, weakness and numbness in left arm and left leg, loss of vision in right eye - inability to focus. I am currently on disability since the attacks are lasting too long for me to work and I am having episodes 2-4 times per week. I can't drive, people keep asking why I forget conversations, my kids keep correcting me since I keep using the wrong word for things. I feel isolated and misunderstood.


# 1,290


First Name    Trevor
Last Name    Reeves 
Country    New Zealand
Comments--How has an arachnoid cyst affected your life?    Normal, productive life is nearly impossible. Medical knowledge is largely ignorant while suffering is widespread. concentrated medical research is urgently required

# 1,291


First Name    Teresa
Last Name    Brown
Location    Henderson, Nevada
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have been sick with dizziness, occasional blurry vision, new visual problem of strobe light like effect, migraines, numbness in fingers, wrists and sometimes elbow but not constant, weakness in arms and legs but not always, 4 different diagnosis of heart problems (doctors always confused due to changes), sometimes off balance like inner ear infection but no ear infection, nausea, fatigue, when sitting heart rate rises, higher then when standing, higher then when walking, major depressive disorder, memory loss, have a history of varying ovarian cysts with eventual hysterectomy and now osteoporosis. These are the symptoms I can remember right off hand but not sure if the ovarian cysts are related. I have experienced many of them all my life, just not as severe as the past 7 to 10 years. Recently being denied Social Security, I hired an attorney and while reviewing medical records I found a 2005 CT Scan in my file which my doctor did not discuss with me at all but apparently just filed away. It was taken for blurry vision and migraines. I have a Posterior Fossa Arachnoid Cyst according to that CT Scan. Because I wasn't getting anywhere but feeling like the doctors thought I was a hypochondriac, I started doing my own research and a few weeks prior to finding this CT scan the other day and I had found a site relating to Neurally Mediated Hypotension of which all my symptoms fit into almost exactly to one patient who put together a website relating to this. When I looked up Posterior Fossa Arachnoid Cyst, on several sites it does say that it almost always causes no problem, but when it does, it sits on the nerves leaving the brain. Not surprising, these are the nerves that when damaged or troubled or put under pressure cause Neural Mediated Hypotension. Doctors really hate it when we diagnose ourselves, but in situations such as this, when you are so ill and left untreated or given meds for symptoms rather than the cause, I think it is necessary we get more involved. I do wish they would take this cyst more serious. I feel so angry that this doctor just put this report in the file rather than doing or saying anything. I have been uninsured, unemployed, unable to get around now and now wonder how I can ever get treatment for it if anyone in my area does have more knowledge on it now than in recent years as I am most positive after all the research I have done this cyst has been a problem for me for many years. I have spent thousands upon thousands of dollars in doctor appointments when I could and now when I have nothing left, I find this out. So yes, I sign this petition with great will to put pressure on for doctors to take this more seriously, more research and treatment.

# 1,292


First Name    Dr. Wolfgang
Last Name    Büchs
Location    Braunschweig
Country    Deutschland
Comments--How has an arachnoid cyst affected your life?    Í´m suffering from archnoid cyst since very long. It was first discovered in 1993.

# 1,293


First Name    Maria
Last Name    Horvath
Location    PA
Country    United States

# 1,294


First Name    Dawn
Last Name    Strong
Location    Nett Lake, Minnesota
Country    USA
Comments--How has an arachnoid cyst affected your life?    Memory, sysmtoms of MS, head aches, vision problems, muscles ticks.

# 1,295

First Name    Celeste
Last Name    Gutierrez
Location    Fort Hood Tx
Country    USA
Comments--How has an arachnoid cyst affected your life?    I just found out i have an arachnoid cyst in my posterior fossa, pressing on my cerebellum and occipital lobe. My symptoms are starting to get worse. I hope i find answers! God bless:)

# 1,296


First Name    Larraine
Last Name    Turner
Location    GORLESTON NORFOLK united kingdom NR32 7BH
Country    United Kingdom
Comments--How has an arachnoid cyst affected your life?    I WAS DIAGNOSED IN APRIL 2010, I USED TO WORK AS A PRISON OFFICER, BUT HAD TO GIVE UP THE JOB I LOVED, DUE TO TOO MUCH TIME OFF. THE ARACHNOID AS TAKEN MY LIFE AWAY RESTRICTED ME FROM DOING THINGS THAT I LOVED, THE PAIN THOUGH SOME SAY ' WHAT PAIN'...I KNOW MY PAIN IS REAL IT IS GETTING THE MEDICAL PEOPLE TO SEE THAT IT IS REAL..THAT IS WHERE THE PROBLEM LIES A LACK OF UNDERSTANDING, COMPASSION. I WILL KEEP FIGHTING ON THOUGH FOR HOW LONG REMAINS TO BE SEEN....

# 1,297


First Name    eva
Last Name    labes
Location    san rafael
Country    usa
Comments--How has an arachnoid cyst affected your life?    My son has an intraventricular cyst in his right lateral ventricle. He has had many tests and procedures. He has suffered from migraines, seizures and other neurological impairments.
He does not require surgery at this present time. If his condition deteriorates and or the cyst grows to cause further obstruction, surgery will be warranted. Our team of doctors still are not convinced that his symptoms are associated with his cyst.

# 1,298

First Name    joshua
Last Name    harrell
Location    Chattanooga,TN
Country    united states

# 1,299


First Name    Amy
Last Name    Parker
Location    Yachats, OR
Country    USA
Comments--How has an arachnoid cyst affected your life?    My Son now 4 has 3 cyst one which was fenstrared at 21 months He suffers from constant headachs,anger and coping skills issues ,feavers, vomiting and is delayed .

# 1,300


First Name    katty ferreira
Last Name    ninaferreira
Location    Portimão
Country    Portugal
Comments--How has an arachnoid cyst affected your life?    Me ha despertado a la realidad, a luchar y quererme a mi misma, y valorar quienes me aman..


# 1,301

First Name    Israel
Last Name    Preciado
Location   
Country    USA
Comments--How has an arachnoid cyst affected your life?    My girlfriend has been diagnosed with it, and even the nurses are against the Dr. decision to just leave it as is. my Gf has a teenage son thats is has mental retardation / hes a quadro / and about 5 or six other issues. how is she supposed to take care of him when she is feeling 8 of the symptoms on and everyday / hour to hour basis? i hope we get our point across!!

# 1,302

First Name    Jennifer
Last Name    CAmpbell 
Location   
Country    USA

# 1,303

First Name    Christine
Last Name    Masterson
Location   
Country    USA
Comments--How has an arachnoid cyst affected your life?    The cyst has affected my life with anxiety, fatigue, "ADD", emotions, rigidity, worry, dizziness, severe headaches, ear pressure, irritability and a lifetime of being told....well it hasn't grown so you are fine...usually they do not. I always say, these symptoms are what we would expect from the area where the cyst lives....no it's fine. I am due for another scan. The list goes on.
I was diagnosed in high school, back in 1988 or 1989.

No one is concerned, except me.

# 1,304

First Name    Jami
Last Name    Jones
Location    CA
Country    USA
Comments--How has an arachnoid cyst affected your life?    My 9 yr. old son has a 8.8 cm arachnoid cyst on his anterior aspect right temporal lobe and extends to right frontal region.

# 1,305

First Name    Dina
Last Name    Tuscano
Location    Maine
Country    U.S.A
Comments--How has an arachnoid cyst affected your life?    My 6 yr old daughter,has a Arachnoid cyst, she was born sith it and had,had 4 shunt revisions. Her cyst is abnormally large and until now we haven't gotten a lot of answers from her doctors. It's only through sites like these that we are able to get answers.

# 1,306

First Name    Christina
Last Name    Crompton
Location    Kansas
Country    USA
Comments--How has an arachnoid cyst affected your life?    In a bad way it has made my life way more difficult but in a good way I am much less selfish and more giving of my time and love to others.

# 1,307

First Name    Kathleen
Last Name    Wiekert
Location    NJ
Country    USA
Comments--How has an arachnoid cyst affected your life?    My daughter has been diagnosed with 3 arachnoid cysts last November. She suffers from daily headaches and the medicine is not helping her yet.

# 1,308

First Name    Emma
Last Name    Bacon
Location    Bristol
Country    GB

# 1,309

First Name    Gabriele
Last Name    reed
Location    denver, co
Country    usa
Comments--How has an arachnoid cyst affected your life?    My son was finally diagnosed with an AC in 2006 (6 yrs of age)and had surgery, after 2 years of intense search to figure out why he had recurring high temps beginning @ 103*F - 105*F+! They would come with regularity every 8 weeks, then 6 weeks, and months before surgury every 4 weeks. He did hold his head and complain of headaches, and near the end would complain of dizziness, and blurriness in vision.
Now 5 years later, we're going through this again... minus the temperatures, although his dizziness, and blurred vision have intensified along with the headaches.

# 1,310

First Name    Brad
Last Name    Passow
Location    Topeka, KS
Country    USA

# 1,311

First Name    Stacey
Last Name    Hamilton
Location    Las Vegas, NV
Country    USA
Comments--How has an arachnoid cyst affected your life?    I just want to live without the cluster headaches I get because of my cyst.

# 1,312

First Name    Jennifer
Last Name    DeLisle
Location    Westerly, RI
Country    United States
Comments--How has an arachnoid cyst affected your life?    My 7year old daughter had a massive seizure on her school bus the other day. Never had one before in her life. They did A CT scan and discovered the cyst and some scarring on her left side of her brain. We went to a children's hospital where they Diagnosed her with a large Arachnoid Cyst. they also told us she had a stroke in utero. Because of the cyst they stated that it explained her right sided weakness, the seizures her mood swings and all her learning disabilties! But they said we shouldn't do anything...wait and see if it grows more, no medication for a little girl that had a 7 minute seizure because of this damn thing and now has minor brain damage!

# 1,313

First Name    Kenyatta
Last Name    Lewis
Location    Atlanta Ga.
Country    USA
Comments--How has an arachnoid cyst affected your life?    My son has been an arachnoid cyst. He has focus problems and prossessing problems in school.

# 1,314

First Name    Julia
Last Name    Swindall
Location    Hollister,MO
Country    USA
Comments--How has an arachnoid cyst affected your life?    An arachnoid cyst has affected my life by letting me not remember my alphabet in kindergarten. I was held back a year but at this point I didn't understand why, I had tried just as hard as all the other kids probably even harder but it just wasn't sticking. That summer I was in bed when I started to have a seizure in my room. My mother was in her room asleep until my dog Max noticed me and woke my mom up. She came into my room because she thought she smelt something coming from my room. I had soiled my pants and was not responding to my mother. She called the ambulance and my dad right away. I was taken to three hospitals before they could preform surgery. After surgery the doctors said that I would never be able to learn like the other kids and that I would more than likely be behind them. I have since then gotten help and my cyst was popped and I no longer have trouble with my alphabet. I am a A B student and am in the top 20% of my class. I am now a senior in high school about to graduate in may. After graduation I am planing to go to college at Northwest Missouri State University to major in Pre-Med. This also affected me because after my surgery I continued to wet the bed until i was about ten years old. I was scared to spend the night at a friends house in fear that I would wet the bed. This disease has affected my life in more ways then I know how to say. But I will say that I am lucky to have such loving parents, friends, and family to support me in whatever I do. I hope that anyone that reads this will be inspired to do more than they think possible.

# 1,315

First Name    Joanna
Last Name    Duncan
Location    Chino, CA
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have an AC, diagnosed over a year ago. So far not much done for me by the medical community other than to blow me off or tell me it is nothing to worry about. They repeat MRIs and tell me basically...Yep, it's still there. No ones understands how debilitating it actualy is. The frustration and pain make the headaches and pain even more intense. The medications they put me on dont do much for the pain or the cyct, but bring on a slew of horrid side effects to deal with along with the effects from teh cyct itself. I am currently online trying to find assistance and treatments on my own since all of the Doctors involved in my care are so insistant on not doing anything themselves. I feel helpless and just left alone to deal with something that is scary and with not a lot of medical information or medical assistance out there. This needs to change. Not just for me, but for the younger sufferers who can not speak for themselves.

# 1,316


First Name    Tracie
Last Name    Zueger
Location    Sidney,MT
Country    USA
Comments--How has an arachnoid cyst affected your life?    My daughter is now 20 and has had a arachnoid cyst since 7 months of age. If it wasn't for persistance with these doctors who claimed we were all crazy, she wouldn't be alive.

# 1,317

First Name    Megan
Last Name    Garza
Location    Billings, MT
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have an arachnoid cyst on my left temporal lobe. It was diagnosed at the age of 7 months. I am twenty now and have had eight surgeries since, the latest being in 2008. I am very fortunate to lead an otherwise normal life as a junior in college.

# 1,318

First Name    Rob
Last Name    Garza
Location    Montana
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have a niece with ac. She has had her whole life 20 yrs. She has 2 shunts probably got the best care from Mayo clinic. In MT my family had many arguments with doctors when she was in extreme pain they did not want to do anything just told to sit and wait, the last time we said no way you do something now. A pediatric neurologist saw here referred us to a optamalogist who checked her eye pressure she was in surgery within hours. People please do not give up press on for help the pain these poor people are in is extreme and painful to watch, they need help now.my niece is doing great after her trip and surgery at Mayo clinic.

# 1,319

First Name    derek
Last Name    hall
Location    telford shropshire
Country    england
Comments--How has an arachnoid cyst affected your life?    there are lots of things i would like to do but i cant.

# 1,320

First Name    Madelyn
Last Name    Gonzales
Location    Campbell, Ca
Country    USA
Comments--How has an arachnoid cyst affected your life?     I was diagnosed with a arachnoid cyst when I was 18 years old. I had and have constant problems such as severe headaches, memory and writing problems, seizures, black outs, heart problems, and many other medical problems. i have seen a number of doctors and been on a number of medications from caffeine pills to bipolar and epilepsy pills to blood thinners. It never seemed to help, but all the doctor would to is up the milligrams or try another medication. It felt like they were just not trying at all to find out what was wrong. Its been a constant struggle living with this. Especially when it comes to having a job or being in relationships. At times it has caused me to lose one or the other. After a while of getting nowhere I stopped seeing doctors and taking medications, partially because of losing medical coverage. I am currently trying to seek help and get coverage through state programs, but of course they do not consider it an important enough condition to let me get coverage and treatment for. Its been an unbearably rough journey for me because now I have to suffer and tough out my problems, but I hope to one day to get the right help I need.

# 1,321

First Name    gina
Last Name    brock
Location    georgia
Country    united states
Comments--How has an arachnoid cyst affected your life?    my son was born with it,we did not find it until he was 7yrs old,never had heard of this before.This is something that I live with every day..I left it in gods hands,

# 1,322


First Name    marty
Last Name    walters
Location   
Country    uk
Comments--How has an arachnoid cyst affected your life?    chronic headaches

# 1,323

First Name    Elizabeth
Last Name    Kepping
Location   
Country    US
Comments--How has an arachnoid cyst affected your life?    We just found out my 2 yrd old son has AC.

# 1,324

First Name    Karen
Last Name    Bancks
Location    UK
Country    Manchester
Comments--How has an arachnoid cyst affected your life?    My son has had his cyst fenestrated at 3months old by an amazing surgeon, He is now one and is still defying his original predicted future so we have yet to see what the future will hold, however good or bad, We are his parents and we will be there for him. Perhaps a little more information and an understanding by some of arachnoid cysts may have made or journey so far a little easier but, it will surely make our sons life a lot brighter for his future and any further treatment?

# 1,325

First Name    Cara
Last Name    Jamieson
Location    Adelaide, South Australia
Country    Australia
Comments--How has an arachnoid cyst affected your life?    Brought me to my knees when i realized i wasn't just bi-polar, i had more than what anyone could have imagined going on inside me...

# 1,326

First Name    mildred
Last Name    endicott
Location    west virginia
Country    usa
Comments--How has an arachnoid cyst affected your life?    I am in pain more often than not now and am losing my enthusiasm for previous activities.


# 1,327

First Name    Trinia
Last Name    Moore
Location    Cleveland, GA
Country    United States
Comments--How has an arachnoid cyst affected your life?    This cyst affects my life daily. We do have a wide range of symptoms that somebody needs to address not to just be sent away from one doctor to the next like we are crazy.

# 1,328

First Name    Ronda
Last Name    Summerlin
Location    Houston
Country    USA
Comments--How has an arachnoid cyst affected your life?    We thought our beautiful 20 year old daughter was having a crisis because of having a baby instead of going to college right after highschool, she was having horrible mood swings, mostly angry for no real reason, we had her tested for diabetes, took her to the emergency room because she couldn't breathe, we thought her asthma had come back but she "sounded clear", they sent her home with "anxiety" medication, low and behold, it's a common symptom of the arachnoid cyst we discovered when she finally got an MRI for having a three month headache! It's horrible to be treated like an uneducated idiot when you know something isn't right! GOD bless all the families dealing with this.

# 1,329

First Name    Bryant
Last Name    Vreeland
Location    Seattle, WA
Country    United States
Comments--How has an arachnoid cyst affected your life?    My 14yr old daughter was just diagnosed with one. She had been having severe headaches and problems with her eyes so we took her to a specialist who found it. The problem is the Dr. says that it can't be causing her symptoms and now she can't participate in sports and several other activities that she loves. It is time Dr.'s started listening to parents of sufferers and the sufferers themselves.

# 1,330

First Name    Michael
Last Name    Stansbery
Location    Indiana
Country    USA
Comments--How has an arachnoid cyst affected your life?    We have a 9 year old son with an arachnoid cyst. He has headaches often centered over the site of the cyst and has hearing problems while the headaches are happening.

He can't go to school during the episodes and he feels terrible. Doctors tend not to believe that the cyst is the cause of the pain even though the pain is directly over the cyst.

# 1,331


First Name    Titus
Last Name    Muncy
Location    Texas
Country    USA
Comments--How has an arachnoid cyst affected your life?    Ive had, so far, four brain surgeries, all of which have been unsuccessful in treating my many symptoms...

# 1,332

First Name    Abigail
Last Name    Hipkin
Location    Bedford
Country    UK
Comments--How has an arachnoid cyst affected your life?    For many years I have suffered migraine headaches (no common cause identified), intention tremors (no cause identified), periodic blurred vision (no issues identified by opticians), localised radiculopathy (no cause identified), occasional motion sickness (no common cause in terms of mode of transport, length of journey etc.), sensitivity to atmospheric pressure, periodic nausea and dizziness. I have recently been diagnosed with an arachnoid cyst and am astounded that the medical community continues to treat by etiology rather than examining the possible links between these various common symptoms and the presence of arachnoid cysts in the sufferers.

# 1,333


First Name    Tracey
Last Name    Holloway
Location    Ohio
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have just recently found out that I have an arachnoid cyst. For almost a year now, I have had ringing in my ears. For years now, I have been experiencing small tremors every once in awhile. Kind of like Katharine Hepburn, but much, much less severe and only every so often.

I have been to two ENTs and my regular doctor. None of them could figure out what is causing it until my GP finally ordered an MRI for me. My GP got the results for the MRI and said that everything was fine, never telling me about the large cyst in my brain. I then went to another ENT who immediately said, "Oh! You have an arachnoid cyst in your brain and I want you to see a neurologist about it." I was shocked since my GP said nothing about it. When I confronted him about it, he said that he didn't think it was a big deal and was nothing to worry about.

I am in the process of trying to find a neurologist in my area. Regardless to say, I am scared to death of this and also of brain surgery!

# 1,334


First Name    Robert
Last Name    Crouse
Location    Lynn, Massachusetts
Country    USA
Comments--How has an arachnoid cyst affected your life?    My girlfriend has an arachniod cyst. She recently had a seizure, isolated event, and the doctors will not even acknowledge that it may be from the cyst. Now she cannot drive for 6 months and I had just bought her a car.

# 1,335

First Name    Robert
Last Name    Crouse
Location    Lynn, Massachusetts
Country    USA
Comments--How has an arachnoid cyst affected your life?    My girlfriend has an arachniod cyst. She recently had a seizure, isolated event, and the doctors will not even acknowledge that it may be from the cyst. Now she cannot drive for 6 months and I had just bought her a car.

# 1,336


First Name    rose
Last Name    smith
Location    rosevile
Country    united states
Comments--How has an arachnoid cyst affected your life?    Long story but my brother has one, which we believe has an effect on his behavior. And causes delusions, and blackouts

# 1,337


First Name    Adam David
Last Name    Johnson
Location    Hollywood, CA
Country    U.S.A.
Comments--How has an arachnoid cyst affected your life?    I have one.

# 1,338

First Name    Kate
Last Name    Howard
Location    Pittsburgh, PA
Country    USA
Comments--How has an arachnoid cyst affected your life?    My husband was diagnosed with an AC while on active duty with the airforce. He has constant double vision, and nystagmus- as well as frequent headaches.

# 1,339

First Name    lydia
Last Name    pagan
Location    newark nj
Country    us
Comments--How has an arachnoid cyst affected your life?    i have migraines since 1998. it keeps getting worst .2006 they found a cyst on my brain but doc. says my sympthoms are all in my head. but them again when i do go see a doc. or neuro they ask me if i had a seizer. or that i dont have the sympthom yet. what is that suppose to mean. its 2011 and still going thru this. ive gone to second opinion, that dr. said "well you was born with it and your going to die with it" yes thats what he said. he prescribed me migraine med. but it has side effects. waiting for my health insurance to start again cause they stoped it. so i can let him know a piece of my mind. its ashamed i have to go thru this. what they waiting for, a accident to happen when im driving with my daiughter, or else where. have migraine, confussions , sometimes i have vision problems. when i work the little stress i go thru, will trigger my migraine.i have to do the same thing more than twice in order for me to get it. never in my life i had to go thru this. . thnx!

# 1,340


First Name    Wendy
Last Name    Burns
Location    Texas
Country    USA
Comments--How has an arachnoid cyst affected your life?    I was diagnosed with an arachnoid cyst in my left frontal lobe, approximately 2" in diameter. This is a congenital finding only discovered in 2006. Therefore, I have no basis from which to determine how the cyst may have changed in size throughout my life before it was discovered. I believe myself to be symptomatic for various and significant reasons--given that this cyst lies in the executive part of my brain. I have experienced the bewilderment and frustration when met with the response that this is an "incidental finding" and not responsible for any of the difficulties I have experienced throughout my life. I have come to live with a level of pain from headaches, fog, and confusion. It has taken me a long time to come to terms with the double edged prospect that brain surgery will have its own complications with no 100% guarantee that the cyst won't return if drained. Or, that I might live with a shunt implanted in my body to keep CSF fluid draining. I have just learned to live with it and remain confounded by a medical community trend to de-valuate arachnoid cysts. I am hopeful that medical science and research will reveal and address a lot of the issues those with arachnoid cysts face--I hope in my lifetime.

# 1,341


First Name    Helen
Last Name    Pluckrose
Location    London
Country    England.
Comments--How has an arachnoid cyst affected your life?    I had a responsible job as a nurse and was known for my patience, had a partner and a mortgage till 22 and then suffered frequent seizures and became aggressive and unreasonable - 6 years in and out of mental hospitals. Seizures stopped, personality returned to normal and then after pregnancy my eye turned in. The cyst was found but said to be harmless. Tiredness, dizziness and weakness was dismissed as psychological. I went back to a psychiatrist who confirmed I do not have and can never have had a personality disorder and gave his professional opinion that I was suffering from organic brain damage - this was disregarded by GP.

Recently I have had to give up my job because of severe dizzy spells,fatigue and nausea and falling over for no apparent reason.Unable to stand at times. I was referred to a cardiologist and given all clear - going back to the neurologist now. If I don't get anywhere this time I am going to go and stand in a public place every time I get dizzy until I faint and ambulances are called - I do not accept that my active life is over at 36 - I have a child. I thought of searching for arachnoic cyst to see if that could possibly have anything to do with it and found you. Thank you for this - my symptoms are listed here very clearly.

# 1,342


First Name    Susan
Last Name    Rollins
Location    Spartanburg, SC
Country    USA
Comments--How has an arachnoid cyst affected your life?    Massive headaches, dizziness,blurred vision

# 1,343


First Name    Marylen
Last Name    Borgen
Location    Fontana, CA
Country    USA
Comments--How has an arachnoid cyst affected your life?    I'm a 42 year old female. I have been suffering from migraine headaches since I was 24 years old. Doctors always treated them as stress headaches all these years. Usually they say to take Ibuprofen, Tylenol but as the pain increased they proscribed Tylenol 3's and Soma. That helped for awhile but the pressure of the headaches have increased. Last month I was rushed to ER because my blood pressure levels were high. While there they ordered CT scans and an incidental finding of an arachnoid cyst. One week later I was back in the ER after awakening from a nap unable to talk or move, cold clammy sweat and disoriented. Again, my blood pressure had shot up. Kaiser did a CT scan as well and they're findings were no evidence of acute intracranial hemorrhage. There is a prominent CSF/fluid attenuation collection within the posterior fossa at the midline near the ambient cistern which measures approx. 3.5 AP x 2.4 TR cm. No evidence of midline shift. The Impression: Cystic collection within the posterior fossa at the midline just superior to the ambient cystern suggestive of an arachnoid cyst. After doing research online, I have recognized a lot of symptoms to which before I blew off as aging, stress, etc. Never did I think there was something in my head causing these painful body somatics. In the last 3 years the headaches have worsen, causing nausea, vertigo and blurred vision, dropping of items right out of my hand, as well as physical imbalance and short term memory issues, sleeplessness. It's taking a month but I am scheduled for an MRI which I hope will tell me more. Hope that others who suffer will speak up and sign this petition.

# 1,344


First Name    Bonnie
Last Name    Dean
Location    Alabama
Country    USA
Comments--How has an arachnoid cyst affected your life?    Have ab shunt on the right side my head for ac. also had lamonecty from t3-t5 for ac. Know I had this since 1987. Have good days , bad days and days i just want to forget about. Im 45 now in 2011.

# 1,345

First Name    Cindy
Last Name    Quam
Location    Brainerd, MN
Country    USA
Comments--How has an arachnoid cyst affected your life?    It has taken my life, my spirit, my soul away. No Doctor I have found thinks it has anything to do with any of my problems. New Doc thinks I have post traumatic stress syndrome from sphenoid sinus disease left untreated for 2 years. Surgery in Dec. 2010 fixed that. All the Arachnoid symptoms remain. Awaiting my appointment with the Psychiatrist for more testing- I must be crazy they think. In 1989 I was kicked in the back of my head hard enough to shift my brain & had a right subdural hemorrhage, no signs of Arachnoid cyst then, just the bleed. I just don't understand.

# 1,346


First Name    Lisa
Last Name    Welms
Location    California
Country    USA

# 1,347


First Name    Michael
Last Name    Stansbery
Location    Indiana
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have a 9 year old son with an arachnoid cyst that causes him near constant pain. It is located in the back of his head and causes him sometimes debilitating pain. He isn't able to be a regular 9 year old. Most days he can't go out and play, or swim in the summer time with his friends. The pain is too great most days.

The days that the pain isn't bad enough to limit his playing are few and far between, and most times these periods of less or no pain last hours, not days.

I urge the medical community to do more research into arachnoid cyst treatments. It's a horrible thing to see the pain on the face of your 9 year old child and no there is nothing that you can do to help him.

# 1,348


First Name    Ava
Last Name    Shrader
Location    W.V.
Country    U.S.A.
Comments--How has an arachnoid cyst affected your life?    My daughter has an arachnoid cyst on the front temporal area of the brain. She is also Autistic, as well as having been diagnosed with a Neuropathy covered under Muscular Dystrophy. I see regression, stuttering, repeating actions and words. She now prefers to write or type what she wants to say. She has "normal" conversations that way...I say whatever works...assistive technology can be great! However repeated actions and other things concern me as well. She is 18. I want to please raise awareness and provide every patient, their families & friends, with hope. I would like to express that more research or even case studies be done, to provide that hope and make the most of the fun times and achievements one can have, despite a medical condition. My thoughts and prayers are with each and every one associated with a patient diagnosed with an arachnoid cyst! Please bring awareness!

# 1,349


First Name    Krystal
Last Name    Shane
Location   
Country    United States
Comments--How has an arachnoid cyst affected your life?    My symptoms have changed my life. the headaches and dizziness are debilitating and the fatigue makes it almost impossible to maintain a daily life.

# 1,350


First Name    trinette
Last Name    rawlins
Location    antioch, california
Country    united states
Comments--How has an arachnoid cyst affected your life?    My son has had a shunt placed for a cyst on his brain and has had it revised. The cyst seems to be ok now but his doctor dont know why his right foot is dropping.

# 1,351


First Name    david
Last Name    kyle
Location    lincolnshire
Country    uk
Comments--How has an arachnoid cyst affected your life?    our unborn son due in 4 weeks has one detected on mri

# 1,352


First Name    nicola
Last Name    white
Location    Belfast
Country    Northern Ireland
Comments--How has an arachnoid cyst affected your life?    Weakness, numbness in legs, tingling in feet, no energy, tinnitus.

# 1,353


First Name    Boutaleb
Last Name    Lahcen
Location    Algiers
Country    Algeria
Comments--How has an arachnoid cyst affected your life?    I am anormal personne i soufre in silent he breake my life i feel alone docteur don't know i patient and i hope

# 1,354


First Name    Taylor
Last Name    Taranto
Location    USA
Country    USA
Comments--How has an arachnoid cyst affected your life?    I'm an AC patient and am in constant pain and am losing control of my motor skills and memory. I'm 26, married and have an 11month old daughter.

# 1,355


First Name    Stephanie
Last Name    Hampton
Location    Las Vegas, NV
Country    USA
Comments--How has an arachnoid cyst affected your life?    I was told for many years that the cyst wasn't affecting anything even though I had and still do have horrible headaches, mood swings, I have an underactive thyroid and was told I'm suffering from fibromyalgia and lupus. I'm in constant pain then a little over a yr ago I had gained nearly 50lbs (I have never been over a 100lbs my entire life) then I had a major seizure at work and don't remember anything while in the hosp. For 4 Days. I was sent home and my husband ans I went on another search for a neurologist and neutosurgeon. I was out of work for 6 mo and after I finally found a surgeon it took them 4-5 mo. To realize how severe my case was. I ended up with hydrocephalus and started hallucinating. I'm lucky robe alive and now I have a Vp shunt that I guess is still working so the surgeon said a few weeks ago, but the damage is done because no one knows anything about it. I've lost so much of my memory that alot of times I just instantly forget or argue with my husband. I started twitching again which was really bad before the surgery (and I also loss control of my bladder 2-3x before my surgery). I get extremely confused when I look at papers and have to organize them, I just can't do it I can't make sence of it all. I zone out alot I'm very emotional and self conscious cuz I'm not "ME". And I know I'll never be who I was and that saddens me And depresses me. Some once told me, a boss as a matter of fact that I can now just reinvent myself. Like that's how easy it should be. I cry myself to sleep at night cuz I I have no faith in the medical profession. I've heard "you're fine. you're fine" too many times only for something horrible and close to death happen. I'm afraid I'll drop dead at any minute or worse have another seizure while I'm driving and injure another person. I can't remember things, sometimes I still hear voices or see things and it scares the living hell out of me. Thankfully I have my husband who has been there every step of the way for me, but my family just doesn't understand the dynamics of it all. They think because I have a shunt in now that I should be just fine And I'm not and I would do anything to have me back again. If I've learned anything it's this: 1. Listen to your instincts, only you know you, so keep searching and investigating and reading as much as you can about this disease, BECAUSE IT IS A DISEASE THAT SADLY ISNT SEEN IN THE MEDICAL COMMUNITY AS ONE YET, SIMPLY BECAUSE THESE DR.S DONT KNOW. SO INFORM YOURSELF AND GET IT OUT THERE. WE ARE NOT CRAZY, WE ARE SICK AND NEED TO BE
HEARD. NOW I CAN ADD THIS SITE TO THE SOME THAT I ALREADY HAVE. JUST KNOWING IM NOT ALONE HELPS , ESP. WHEN YOU FEEL SO ALONE. PEOPLE DONT KNOW UNLESS THEY HAVE GONE THROUGH IT THEMSELVES. THANK TOUNFOR THIS SITE. IF ONLY FOR THIS MOMENT IN TIME I KNOW IM NOT ALONE NOT CRAZY. THANK YOU AND GOD BLESS EACH N EVERYONE OF YOU:)

# 1,356


First Name    Lisa
Last Name    Shealor
Location    Virginia
Country    USA
Comments--How has an arachnoid cyst affected your life?    I live with headaches sometimes daily. I also have vison loss in my right eye this is with me forever along with my cyst.

# 1,357


First Name    Marie
Last Name    Chano
Location    Cuero, Texas
Country    USA

# 1,358


First Name    Holly
Last Name    Plouffe
Location    Winnipeg
Country    Canada
Comments--How has an arachnoid cyst affected your life?    My 19 year old son was diagnosed yesterday with a 4.8 x 4.5 cm cyst on his left lobe part of his brain. I his mother am devastated.

# 1,359


First Name    Teresa
Last Name    Bratcher
Location    Salvisa, Kentucky
Country    United States
Comments--How has an arachnoid cyst affected your life?    My 18 year old daughter has a very large primary sacral arachnoid cyst. She has been in severe pain for over 2 years before she was diagnosed with this. We went from doctor to doctor before we found out what she had. She has severe pain in both legs, low back, bowels and kidneys. The Chief Neurosurgeon at the University of Kentucky has asked us to come and meet a Interventional Radiologist to explain the Fibrin Glue procedure. We may end up taking her to Cleveland Clinic because they are so much more experienced with treating Arachnoid Cyst. We could use all the help and information we could receive. Matter of fact it would be a blessing. I have posted this 6/22/11.

# 1,360

First Name    Patrice
Last Name    Sepulveda
Location    Pompano Beach Florida
Country    USA

# 1,361

First Name    Becky
Last Name    McMahon
Location    ohio
Country    united States

# 1,362


First Name    Pauline
Last Name    Ramirez
Location    New York City
Country    USA
Comments--How has an arachnoid cyst affected your life?    I am 22 years old and I just found out 8 months ago that I have an arachnoid cyst. It is no wonder that all my life I've experienced blackouts, nausea, and dizziness...throughout my chidhood I thought having blackouts and suddenly dropping to the floor for a few seconds was normal and that's why I never told my mother or anyone. Due to an accident last summer, I was under many examinations including a brain MRI, and that's when my cyst was discovered. Since i'm not too familiar with my condition, I want to get better informed and integrated with arachnoid cyst awareness. This is only the beginning of the journey and us arachnoid cyst patients, will never GiVE UP! Parents, doctors, teenagers, friends, neighbors, family members...PLEASE ask questions and make sure your patients and loved ones get examined if symptoms occur. Unfortunately, I never was asked by my doctor about unusual things that I would feel and I never spoke up because again...as naive and stupid as it sounds I thought it was normal. = [

As I write this comment, I have a headache and slight dizziness but now I understand why.

I hope arachnoid cyst patients like myself look to a bright future, worry free with your help and concern.

Please spread the word.

# 1,363


First Name    Kimberly
Last Name    Mendoza
Location    Phoenix
Country    USA
Comments--How has an arachnoid cyst affected your life?    I experience chronic pain, often severe, along with many of the symptoms associate with an arachnoid cyst which was revealed on a MRI in the area that my pain originates, but my neurologist and even Dr. Nakaji of Barrow Neurosurgical Associates insist that it's not the cause of my pain. Stearoid injections and NSAID do nothing. It seems my only relief is narcotics or muscle relaxers that knock me out, so I'm in pain most everyday in order to work.

# 1,364


First Name    Houda
Last Name    Ghabach
Location    Sydney
Country    Australia
Comments--How has an arachnoid cyst affected your life?    My 21 year old daughter has an arachnoid cyst. Unfortunately if you dont have private health cover you are turned away. The public system can only offer you so much in Australia as resources are limited about the knowledge and treatment of this cyst. The two hospitals which are Westmead and Royal Prince Alfred put my daughter on a waiting list and I didn't even get to see the doctor I was supposed to see. Dr Alan office rings me after 4 weeks to tell me that if i didnt have private cover he was no even willing to give my daughter a consultation. Thankfully Concord Hospital took it seriously, Dr Steel is her neurologist, who had her eyes tested as well as having an mri with contrast to see what he is dealing with.
A week after her mri my daughter was admitted to hospital with abdominal pain and 5 days later had her gal bladder removed. The funny thing happened after surgery, her head aches, sharp pain behind her eye has gone away, she is able to eat gluten, wheat, and dairy again as I had to eliminate from her diet because it was giving her bad head aches and pressure behind her eye.
She does however have low blood pressure which was present before and after surgery.

# 1,365

 
First Name    Tracey
Last Name    Dronet
Location    Virginia
Country    Us

# 1,366


First Name    Nancy
Last Name    Duhon
Location    Prairieville Louisiana
Country    USA

# 1,367


First Name    Michele
Last Name    Waldrop
Location    Texas
Country    USA
Comments--How has an arachnoid cyst affected your life?    Precious baby of dear friend has been diagnosed with this rare disease.

# 1,368


First Name    Angela
Last Name    Grunewald
Location    Louisiana
Country    United States
Comments--How has an arachnoid cyst affected your life?    My son was diagnosed with an arachnoid cyst at the age of 5. He was a micro-preemie and was born at 24 weeks. He had a brain bleed at one month old and had a reservoir place. His brain fluid had be drained daily. They would insert a needle to drain the fluid. At five months old he was finally stable enough to get a shunt placed. At the age of 3 he was diagnosed with epilepsy. He was put on medication to help control his seizures. At the age of 5 he started having these "episodes" I thought they were conciseness seizures because he was still able to talk. When he would have these "episodes" he would scream, "mommie, it hurts!" and throw up because it was so painful. I would take him to the ER and they would have a cat scan done. Nothing was found. His shunt was not malfunctioning. Yet, he was still have these "episode" a few times a week. I spoke with his neurosurgeon and neurologist about. On a Thursday we went to see his neurologist and I was told these were not seizure but some type of episode. She looked at me and said, "Angie, I know you. You will not stop until you find out what is wrong with him." We had another cat scan appt in two weeks. She told me if he had another "episode" not to leave the hospital until he had a cat scan done. The next day he had another "episode." I took him to the ER and they did a cat scan. His neurosurgeon was out-of-state til Tuesday. One of his partners came to read the scan. He saw something in the 4th ventricle of his brain. I was told that there were three options but none of them were an option for my child. I just looked at him and was like WTF? He said, "don't look so disappointed." I said, "we have been in and out of an ER for almost 2 months and we finally know what is wrong with my son, but there is nothing that can be done for him! How can I not be disappointed. On Saturday he was scheduled for an MRI. They scheduled his MRI for that afternoon. I was finally told that it was scheduled that late in the day because the ER doctor requested it and not the neurosurgeon. Cade's pediatrician showed up at the hospital for another child. He called the MRI department to try to get it moved up. They wouldn't unless the neurosurgeon requested. Finally the neurosurgeon requested it. By now we had been up for a while and Cade had ate 3 gold fish crackers. They would not do it that day because he ate the crackers. He needed to be put to sleep for the MRI. Finally it was scheduled first thing the next morning. The neurosurgeon and his pediatrician read the results. I saw them discussing it and by the looks on their faces I knew it was very bad. I was told he had an arachnoid cyst in the 4th ventricle of his brain. The neurosurgeon told me he would have to get together with a team of neurosurgeons to figure out what to do. Finally his neurosurgeon came back to town on Tuesday and looked at the cat scan and MRI results. He told me he wasn't sure what could be done, but scheduled his surgery for the next morning. He said once he was able to see the cyst, then he would have a better idea of how to fix it. The surgery lasted about an hour. He came out and said, "All I had to do was run a line from the cyst to the existing shunt and it will drain to his belly just like his brain fluid." Wow!!! I was shocked it was that simple! It has been 7 years since his shunt was placed and has never had to be revised. We are blessed for that.

# 1,369


First Name    Keagan
Last Name    Benoit
Location    Louisiana
Country    USA
Comments--How has an arachnoid cyst affected your life?    My 7 year old cousin has it, hes my world.

# 1,370


First Name    Donna
Last Name    Graham
Location    Nashville, TN
Country    USA

# 1,371


First Name    Tracey
Last Name    Dronet
Location    Norfolk, VA
Country    US
Comments--How has an arachnoid cyst affected your life?    It has caused my sister a lot of pain in dealing with my nephew and has almost taken his life several times.

# 1,372


First Name    Larry
Last Name    Douget
Location    South Central Louisiana
Country    United States of America

# 1,373


First Name    Peyton
Last Name    Borders
Location    Louisiana
Country    United States
Comments--How has an arachnoid cyst affected your life?    I watch my little brother closely,because he has seizures and a shunt.

# 1,374


First Name    Paul
Last Name    Baker
Location    Los Angeles, CA
Country    USA

# 1,375


First Name    Diane
Last Name    Broussard
Location    United States
Country    United States

# 1,376


First Name    Angela
Last Name    Marcotte
Location    Louisiana
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have a nephew with one who suffers seizures that are hard for the doctors to keep under control. Signing this petition on behalf of Cade Dronet


# 1,377


First Name    Holly
Last Name    Penouilh
Location   
Country    United States
Comments--How has an arachnoid cyst affected your life?    I have to watch my friend go through the pain of watching her 7 year old son who has one. it is horrible to watch him when he is going through any of his symptoms.

# 1,378


First Name    Lisa
Last Name    Venegas
Location    Gonzales, La
Country    USA

# 1,379


First Name    Neil
Last Name    Mortimer
Location    Leeds
Country    England
Comments--How has an arachnoid cyst affected your life?    It hasnt thankfully but why should that mean i turn my back on it? I shouldnt ofcourse hence im signing the petition

# 1,380


First Name    Kelly
Last Name    O'Neill
Location    Ontario
Country    Canada
Comments--How has an arachnoid cyst affected your life?    I was diagnosed with a right posterior fossa cyst that is about 2 x 1 x 1.5 cm by MRI. My doc initially sent me for the MRI due to my complaints of hand and feet tingling, dizziness, ligh headedness, head aches and extreme fatigue, among other symptoms. These symptoms started after i had my little boy almost 2 yrs ago. None of the doctors I have seen will take my symptoms seriously as being related to this cyst. The symptoms have affected my daily life in a significant way,, but I can't seem to find a doctor to help me. This complaint seems to be many people's complaints. I continue my search for a Canadian doctor who will treat this cyst so that I can someday resume my normal activities.

# 1,381


First Name    Melinda
Last Name    Lazzo
Location    Wichita, KS
Country    United States
Comments--How has an arachnoid cyst affected your life?    I discovered I had a cyst in 1997. It's quite large, behind my left eye. It cannot be drained due to location and size. It cannot be removed for the same reasons. I've had multiple eye surgeries, which now we think is due to the cyst. So a year and a half ago, I had a shunt put in, to alleviate the pressure. For the most part I'm doing well. I still haven't gained my vision back in that eye, and I still get excruciating headaches. I just take one day at a time.

# 1,382


First Name    Michelle
Last Name    xxx
Location    Tennessee
Country    USA
Comments--How has an arachnoid cyst affected your life?    I hope this petition can be a huge help!

# 1,383


First Name    Monette
Last Name    Gott
Location    Oakdale
Country    U.S.A.
Comments--How has an arachnoid cyst affected your life?    not that i am aware
Date you signed the petition    07/11/2011

# 1,384


First Name    Shane
Last Name    Marcotte
Location    Louisiana
Country    United States
Comments--How has an arachnoid cyst affected your life?    A good friend has a son with it, she has made me aware!
Date you signed the petition    07/11/2011

# 1,385


First Name    Rachel
Last Name    Cormier
Location    La
Country    US
Comments--How has an arachnoid cyst affected your life?    This has affect a friend's two boys!!! Please help!!
Date you signed the petition    07/11/2011

# 1,386


First Name    Chad
Last Name    Benoit
Location    Louisiana
Country    United States
Comments--How has an arachnoid cyst affected your life?    Have a friend with young child suffering from this disease.
Date you signed the petition    07/11/2011

# 1,387


First Name    Adina
Last Name    Leslie
Location    Georgia
Country    USA
Comments--How has an arachnoid cyst affected your life?    Probably in some way that i'm unaware of. But I'm hoping that my signature will make a difference.
Date you signed the petition    07/12/2011

# 1,388

First Name    peggy
Last Name    russell
Location    baton rouge
Country    usa
Comments--How has an arachnoid cyst affected your life?    a child i know is affected with the arachnoid cyst. a major challenge in life.
Date you signed the petition    07/12/2011

# 1,389


First Name    Jennifer
Last Name    Sharp
Location    Portland, OR
Country    United States
Comments--How has an arachnoid cyst affected your life?    A friend's son has it. Everyone deserves a good quality of life, and hopefully by banding together we can get these people the help they need.
Date you signed the petition    07/12/2011

# 1,390


First Name    Maaike
Last Name    Quinn
Location    Amsterdam
Country    The Netherlands
Comments--How has an arachnoid cyst affected your life?    .
Date you signed the petition    07/13/2011

# 1,391


First Name    Nick
Last Name    Adams
Location    Nashville
Country    USA
Comments--How has an arachnoid cyst affected your life?    I know of someone who does. I want to help spread awareness.
Date you signed the petition    07/13/2011

# 1,392


First Name    john
Last Name    sumaryono
Location    massachusettes
Country    USA
Comments--How has an arachnoid cyst affected your life?    I have a friend who has it.
Date you signed the petition    07/14/2011

# 1,393


First Name    Kale
Last Name    Renner
Location    Lethbridge, AB
Country    Canada
Comments--How has an arachnoid cyst affected your life?    Just wanting to help.
Date you signed the petition    07/14/2011

# 1,394


First Name    Ali
Last Name    Tate
Location    Kentucky
Country    USA
Comments--How has an arachnoid cyst affected your life?    In support of fellow YouTuber friend.
Date you signed the petition    07/14/2011

# 1,395


First Name    Niamh
Last Name    Duffy
Location    Wicklow
Country    Ireland
Comments--How has an arachnoid cyst affected your life?    ...
Date you signed the petition    07/14/2011

# 1,396


First Name    Rachel
Last Name    Tobin
Location    Melbourne
Country    Australia
Comments--How has an arachnoid cyst affected your life?    While I have never been personally affected, I recently watched a home made documentary that brought me to tears. No body should have to go through such pain, and every body with an arachnoid cyst deserves the correct treatment.
I wish the best to anybody affected xx
Date you signed the petition    07/14/2011


Click here to sign the petition if you haven't already done so.